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Doctor insights on: Will Working Out Affect My Nf1 If It Hasnt Been Active

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Will working out affect my nf1 if it hasnt been active?

Will working out affect my nf1 if it hasnt been active?

No: There is nothing about the big issues in nf that can be activated with exercise, unless you already have pheochromacytoma which is causing hypertension. ...Read more

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Dr. Gerald Mandell
160 doctors shared insights

Neurofibromatosis (Definition)

Neurofibromatosis is a genetic condition characterized by caf_ au lait spots, which are pigmented patches of skin, and benign ...Read more


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What are nf1 symptoms?

What are nf1 symptoms?

Variable: Dark brown skin patches, frecking(armpits, groins, under breast), raised spots (lisch nodules) on the iris of the eye, fractures of long bones in childhood, freckling armpits, groin, womens breasts, orneurofibromas (tumors on the skin or deeper in the body), larger tumors under the skin (plexiform neurofibromas), with pressure on nearby nerves or organs, cognitive impairment (adhd, learning disorder. ...Read more

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Is it possible to have both nf1 and nf2?

Is it possible to have both nf1 and nf2?

Not reported: Chances of nf1 and nf2 occurring in same patient extremely rare . They are caused by different genes and chromosomes. Nf1 occurs in an estimated one out of every 3, 500 births.Approximately 50% inherited and other 50% of cases are the result of spontaneous genetic mutation. Severity varies with expression.Nf2 occurs in an estimated one out of every 40, 000 births. Smaller percentage inherited. ...Read more

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Can (men1 or men2 or and nf1)be dangerous?

Can (men1 or men2 or and nf1)be dangerous?

Sometimes: Cancerous and noncancerous tumors can develop in these syndromes.Men (multiple endocrine neoplasia) is in two forms.Men1 involves tumors of the pituitary, parathyroid gland, and pancreas. Hyperparathyroidism occurs in men1 with demineralization of bones. Men2 involves the thyroid gland, adrenal gland, and pancreas.In men2 most noted tumors, medullary thyroid cancer and the adrenal pheochromocytoma. ...Read more

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Hi does having nf1 mean a shorter life expetancey?

Hi does having nf1 mean a shorter life expetancey?

Majority do: Most patients with type 1 neurofibromatosis have mild involvement and live relatively normal lives. Patients with severe involvement can have deformity of bones and large amount of overgrowth of tumors.If severe in infant or young child sometimes can be fatal. ...Read more

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If I have nf1 what is the chance that I will have a child with nf1?

If I have nf1 what is the chance that I will have a child with nf1?

Neurofibromatosis: If you mean neurofibromatosis1, there is a 50% likelihood of the child inheriting the defective gene and the disease. It is an autosomal dominant disorder. ...Read more

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I have nf1 what's a good way to explain it to someone who has never heard of the condition?

I have nf1 what's a good way to explain it to someone who has never heard of the condition?

Nervecell overgrowth: Neurofibromatosis is inherited problem varying in degree of involvement from mild to severe.Neurofibroma, benign tumor that originates from the nerve cells.Tumor usually arise from nerves in skin or jut under skin.Type 1 usually appears in children with brown flat skin spots, freckling in armpits, and soft tumors under the skin. Rarer Type 2 involve more brain tumors acoustic/ vestibular neuromas. ...Read more

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Is nf1 or nf2 associated with unilateral acoustic neuromas?

NF resource: Here is a great resource where you can find lots of answers about neurofibromatosis: http://www.nfnetwork.org/ ...Read more

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Did the "elephant man" have nf1?

Possibly: Joseph merrick was born aug 5, 1862 in england. Severely deformed from birth, he supported himself as a side-show exhibit. He eventually became a permanent resident of the london hospital, where he died in 1890. Although his specific diagnosis may never be known for sure, it is now suspected that he had a combination of nf-1 and proteus syndrome. http://en.wikipedia.org/wiki/joseph_merrick. ...Read more

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Is there a food to avoid as nf1 patient?

Is there a food to avoid as nf1 patient?

No: Neurofibromatosis type 1 may never cause you any problems, or it may be very troublesome. It is difficult enough to have an illness like this without falling for somebody's made-up internet dietary advice. Ignore it. Your food choices won't impact your disease. Simply eat sensibly, avoiding most of the very sugary, very salty, and very greasy stuff. ...Read more

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