Doctor insights on:
Will My Skin Start To Age And Develop Wrinkles And Lose Elasticicity Earlier If Ehlers Danlos
Lupus Management: Only a dermatologist or rheumatologist can manage lupus and ehlers-danlos syndrome. Seek one out. . . Do it soon! ...Read more
If I happened to have thin, translucent skin that was caused by vascular Ehlers-Danlos syndrome, would my skin have been that way since I was a child?
May occur: The thin skin is part of Ehlers-Danlos. It is called cutest Lexus. However as we mature there can be increased thinning. Part of it also depends on the type of Ehlers-Danlos you as there are many genetics subtypes ...Read more
Possibly: However, the hallmark of eds is increased extensibility of joints. If you do not have this, you do not have eds. ...Read more
All my wounds healed fine when I was a kid, now they're resembling ehlers danlos along with stretchy skin. Do effects not manifest until later in life?
Important evaluation: Ed manifests more as we age. Biggest concern is alterations in blood vessels which may result in big problems. You need to be seen by an opthalmologist and dentist and also have genetic counseling. Most obvious presenting problems include joint dislocations, wound healing problems, and scarring. Avoid heavy lifting. Get evaluated asap as complications can be very problematic if left undiagnosed. ...Read more
Is it possible to have extra stretchy skin without having some serious underlying condition like Ehlers-Danlos syndrome or Marfan Syndrome?
Potentially: There certainly is a variation in what is considered normal for skin elasticity. Don't hesitate to be seen if there is a question. A biopsy can usually be pretty definitive if there'd is any question about the diagnosis. ...Read more
What happens to the skin if you both have Ehlers Danlos (thinner and elastic skin) and scleroderma (thicker and stiffer skin)? Any skin changes?
It might seem the two would cancel each other (EDS involves less effective collagen and stretchy skin, SD involves XS collagen deposition) but unfortunately it seems to be somewhat additive. Suggest you check our
http://prettyill. Com/forums/viewthread/531/#2699 and continue working with your regular practitioner. ...Read more
Can my cousin with ehlers danlos syndrome live a full life if she mostly has skin involvement and not organ involvement? And can she have kids?
Detoxification: Skin is the largest organ of the body. It is a great detoxifier, but you do not want that to be its job or else this is the result. You need to find out why the other organs such as the liver, Intestines and her lungs are not functioning it optimal detoxification. ...Read more
Is it possible that I have ehlers danlos with stretchy skin being only symptoms? No hyper flexible joints. Just stretchy skin
Increase fluids: Increase fluid intake, likely just dehydrated. At least double your usual intake of water. ...Read more
Is it possible for ehlers danlos to surface later in life? My skin is stretchy. I don't have flexible joints, bone pain, or anything else.
No: Ehler-danlos is a genetic condition. You cannot acquire it. ...Read more
What are the most reliable skin biopsy sites for Classical Ehlers-Danlos? My skin has been badly damaged by lifelong bouts of chronic eczema and a few years of pottery class---- I need to figure out what my 'best bet' biopsy site would be.
Ehlers-Danlos: The vast majority of Ehlers-Danlos patients are without symptoms and live normal lives. The severe vascular Ehlers-Danlos is fairly obvious and may not need a skin biopsy at all. Good luck - you may wish to consider evaluation by a geneticist. ...Read more
Loud grinding sound in base of scull (neck) when turning head. Strong occipital headache. Have Ehlers Danlos. Is it chiari malformation? Other cause?
See your doctor: The grinding is generally a sign of digerati on in the facets, or neck joints. As an ED person, your ligaments which hold the bones in place are most likely lax, allowing excess movement. While, this could. Rear a chairing type malformation, I think arthritis is a more common answer. An X Ray will be telling ...Read more
Hyperflexible joints, but no dislocations; thin, elastic skin w/ atrophic scars, but bruising regular; poor circulation; GI issues; ehlers danlos?
Could be: There are multiple types of ehlers danlos that vary in symptoms and severity. It is am inherited disorder so you should see a family history of similar symptoms. ...Read more
Are heart attacks more common or more common at a younger age in ehlers danlos? If so what type of eds?
Burst aneurysm in grandpa's leg at age 75. Dr just found aortic aneurysm at 87. Is this common at these ages or suggestive of ehlers danlos?
Should I get tested for ehlers danlos syndrome if I have a majority of the symptoms and are in my early 20?
Depends: Specific tests for Ehler-Danlos are expensive and not readily available and there are more than one type. Management depends more on clinical findings than tests. Usually other family members are involved. That said, if there is a medical school or foundation near you that is involved in testing for studies, etc., go ahead. ...Read more
I have Ehlers Danlos syndrome, and my rectum prolapses sometimes. Is there any way to treat this? Afraid it will keep getting worse w/age.
See surgeon: I would recommend that you speak with a surgeon as this may be a more complicated situation given the Ehlers Danlos. ...Read more
Would a diagnosis of the VASCULAR subtype of Ehlers-Danlos syndrome likely happen before age 35? Hypermobile family with no sudden deaths.
It can: I have seen it but it sounds unlikely in you. ...Read more
At what age are people typically diagnosed with vascular Ehlers-Danlos syndrome? Unlikely at age 35?
At all!! The syndrome can vary in its various abnormalities so that it can be Diagnosed in childhood and in milder cases later in life. The answer really is ALL AGE GROUPS!
Hope this is helpful
Dr Z ...Read more
Where I live no Drs know about Ehlers Danlos syndrome. What can I do to manage my pain and symptoms and keep the disease from getting worse early?
Call the State Med-: -ical society, the should be able to give you names in your area. You might have to travel some if from a not very populated area. ...Read more
Mom was disabled by osteoarthritis in her 50's. Multiple spine surgeries. I am 37 w/ OA in lots of joints. Could we have Ehlers Danlos? Worth knowing?
Hard to say: ED has definite features that most docs are familiar with. I would find it hard to believe you could live well into adulthood without someone investigating you both if you fit criteria. It can accompany but is not specific to ED patients. ...Read more
Can a U.S. Dr prescribe for me in Canada? I can't find a Dr that can even spell Ehlers Danlos syndrome let alone treat it.
ED Syndrome: This syndrome can have multiple symptoms, it is a connective tissue disorder which makes your skin and joints very flexible and somewhat weak. The vascular type is more worrysome, since it can cause dilatations of blood vessels that could eventually rupture. You should have a complete work up at a referral hospital and a local doctor should be able to control you according to your specific case. ...Read more
1 in 5, 000: The incidence of EDS is estimated to occur in 1 person in 5, 000. ...Read more
That would be: Highly unusual & unlikely, but, I suppose, not impossible. I couldn't find a case study of anyone with more than one type. ...Read more
You are healthy: There are several variations of ehlers-danlos syndrome and a similar disorder called benign hyper mobility syndrome. The most common types are certainly compatible with a normal life. You can protect your joints by maintaining a normal weight and keeping the supporting muscles strong. ...Read more
Not if no other sign: Some persons have hyperextensible elbows (going to more than 180 degrees) with no other hyperextensible joints and no other signs of ehlers-danlos syndrome (eds). Of the many types of eds some are clinically benign. If your elbows are not problematic, there is no need to check. ...Read more
I have ehlers-danlos and work the coldest departments in a grocery store. The rings that fit loosely 3 years ago won't fit at all. Is it reversable?
Probably no: An interesting question. My guess would be to avoid them as your connection tissue will not respond in a normal way to these injections. ...Read more
Joints are very loos: The joints are hyper-extendible and you can bend the wrists backwards a lot. ...Read more
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