Doctor insights on:
Why Does Cystic Fibrosis Shorten Life Span
Chronic Illness: Progress in management has improved the quality of life for CF patients but it doesn't take away the basic vulnerabilities of the illness. In its worst forms, the illness shuts down production of enzymes that permit digestion of food & creates excessive mucous in the lungs that sets them up for deadly pneumonia & lung scaring. At some point, one of the complications will end their life. ...Read moreSee 1 more doctor answer
Unknown: If you ask many experts they will tell you statistics based on large populations, when you look at an individual its harder to predict. As long as the person takes good care of their diabetes and takes all the medicines for cystic fibrosis and sees the doctor frequently at any sign of infection then the person can live a very long life. ...Read more
Depends: Without a full exam and review of medical records and history of infections secondary to CF would be remiss in trying to become an actuarial. Go see a pulmonologist and discuss the options and likely outcomes. ...Read more
Depends...: There is no way to accurately predict how long a person with cystic fibrosis will live, as many different factors affect a person’s health. Severity of disease and time of diagnosis are two such factors. Many people have a mild case of cf, while others can have moderate or severe. In 2009, the median predicted age of survival was in the mid-30s. ...Read more
Median is 5.5 yrs: That being said, population statistics can't be applied to individuals. How well the surgery went, the match characteristics, how well oh avoid infection, your fitness prior to transplant, how well you tolerate the transplant regimen, etc all effect your quality of life and longevity. ...Read more
5 to 10 years: 5 year survival after double lung transplant occurs in 80% of people with cf. 10 year survival occurs in 50% of people with CF who have a double lung transplant and therefore is the average life expectancy. Regular medical care to manage episodes of rejection and infection in the transplanted lungs are critical to achieving a good outcome. ...Read more
Not very close!: Good morning, patients with cystic fibrosis have many difficulties due to recurrent infections and many visits to doctors. Things have changed recently with an aggressive treatment approach provided centers with specialty clinics for management of cf., yet it will far from being close to having a life similar to one without cf. Follow the instructions of the team for the best possible quality. ...Read more
Depends on test: Depending on the original test that was performed, it is unlikely that a diagnosis of CF will be made later in life. Most of the testing that is done today is highly accurate. If you are referring to yourself, at age 31, if the diagnosis of CF has not yet been made, and you have been relatively healthy all of your life, i would say it is unlikely you have it. ...Read more
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