Doctor insights on:
Why Do Some Doctors Say Lupus Sle Is A Terminal Disease
Do you think all connective tissue diseases (lupus, sjogrens, scleroderma) are more alike than doctors realize since they tend to overlap so much?
Yes and no: Autoimmune diseases are all as different as the people who get them. These conditions all result from the body's immune system attacking different parts of your cells and tissues. Each person's disease will reflect the tissues that are being damaged. It is likely that everyone who has one of these conditions has a different spectrum of tissue damage which may be similar in some ways.. ...Read more
I have a question about have both postive ssa (ro) (ena) ab igg, and also a positive sle-70 (ena) ab- dr says lupus but it seems to be it would be
sclerederma- doc wont call back im so confused :(?
Autoimmune disease: If you cannot communicate with your doctor it might help to find a second opinion. Make sure it is with a rheumatologist who sees lots of patients with auto-immune conditions. Much of the diagnosis will depend on your clinical presentation along with a full panel of laboratory tests, and your providing only a few of these makes it very difficult to even suggest a diagnosis. Need to be seen. ...Read moreSee 1 more doctor answer
When the doctor order cocci serology and species antibodies bartonella, what he expected to find?Lupus?Lyme diseases?
Trying to find out why I have sudden, severe joint pain in the metacarpophalangeal joints of both hands. I have joint pain in my hands, worse in the thumbs. My doctors have no idea what's causing it. Tests for ra, lupus, gout, fifth disease, etc, all have
Hi, I have been diagnosed with fibro 8 years but have have a few friends (with the condition) say I my have lupus. How do I ask my doc to check?
Just ask: Lupus is usually easily to screen out with a couple of blood tests. Raise the subject with your doctor to find out if such tests should be considered. ...Read more
My mother was being treated for lupus her insurance swithched her to a new doctor who say now that she dose not have lupus should we seek second o?
Could be a good idea: Because there is a high false positive rate for the ANA (the usual screenign test for lupus), many patients are diagnosed with lupus who don't actually have the disease. Ask the new doctor why he/she doesn't feel that your mother has lupus. Find out what tests were performed. If the new doctor is not a rheumatologist, it would be reasonable to see one for an expert second opinion. ...Read moreSee 1 more doctor answer
What do you advise if doctor says he thinks I have lupus due to ANA + bloodtest also cfs abd fibro what are main symptoms of lupus?
See Rheumatologist: Not sure if the doctor is a rheumatologist or Primary Care. Need to see a Rheumatologist. The Ana blood test has differrent degrees. 1:40 is weak, but 1:620 is pretty strong. You need follow up testing that would provide more specific results and then everything should be considered-your symtpoms, objective and subjective findings, blood tests. The best decision can then be made. ...Read more
Can any internal medicine doctor interpret most blood tests or is it better to see a specialist such as for blood tests for lupus or blood disorders?
Start with PCP: Yes, any general internist can interpret routine blood work including for auto immune issues like lupus, but there may be a benefit of having a specialist like a rheumatologist (arthritis doctor) help if further testing and detailed management of such disorders if needed. Best regards. ...Read moreSee 1 more doctor answer
I have aps. My doc says i would have to be off Coumadin (warfarin) for several weeks to be tested for lupus anti-coagulant antibody. How do I know if I have it?
Negative ANA levels. High TBO tests (118 iu/ml). Negative TSH. could I still have lupus? So frustrated with my results! Doc says hashimotos.
No but: why are you not trusting your doctor's conclusion? By the way, did you mean high TPO instead of TBO? Was the TSH negative =zero or normal? None of these tests however pointed to lupus but were compatible with Hashimoto's with still normal thyroid function (normal TSH) eventually leading to hypothyroid status and thus requiring regular follow-up. ...Read more
I have postural orthostatic tachycardia syndrome due to lupus (thats what doc says) does that mean I have a poorer prognosis? I hardly have joint pain
Rehumy says borderline lupus maybe was just a virus despite negative ebv, and stds. Doctor says no to stay on plaquenil (hydroxychloroquine) for remition. Who do I believe?
See below: I would be inclined to side with the rheumatologist, but perhaps you need a second opinion from a different rheumatologist to settle the issue. ...Read more
I have a butterfly rash and a positive ANA doctor says doesn't show in blood work but its probably skin lupus.Can i finish my half sleeve tattoo?
Can a vitamin D level of 21 cause depression? My doctor suspects I'm depressed. I say I'm just exhausted. I can't be in the sun because of lupus.
Yes; easy to take D3: Low D can cause depression and fatigue and is associated with aggravation of SLE! Take 5-8000 iu of D3/day to get your levels in the 50-80 range. See http://doctormurray.com/vitamin-d3-is-important-in-autoimmune-disorders/ and http://tinyurl.com/zstm5u3 and http://tinyurl.com/2chkcer Many with lupus may have undiagnosed Lyme disease. See http://tinyurl.com/m2eld3v and http://tinyurl.com/zsx7eaq ...Read moreSee 1 more doctor answer
My skin is sore, my joints feel like they have the flu, I have a headache for over 10 days & my doctor says my blood test for lupus is normal.?
Many possibilities: Unclear as to absolute diagnmosis as these are several non-specific symptoms. They range from simple viral disease to more serious possibilties. The most troubling is a headache lasting this long. More information is needed to guide you but follow up with your primary care and possibly seeing a neurologist is suggested. ...Read more
Ana 1:160speckled, ESR 29, IgG 1710, low grade fever, flulike feeling, wrist and back ache (sometimes) blotchy areas on arms/stomach in heat, swollen nodes 1cm in neck, doc says lupus, do I trust her?
My ANA blood test came back positive twice one doctor says im boarder line lupus another doctor says I have RA arthritis my face has been swollen?
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