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Doctor insights on: Why Did Our Geneticist Say It Was Not So Bad To Have Eds

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Why did our geneticist say it was not so bad to have eds?

Why did our geneticist say it was not so bad to have eds?

Tends to be "mild": Most cases and types of eds have fragile skin and joint dislocation as the worst consequenses. However the vascular type can be devestating with spontaneously rupturing blood vessels in multiple organs causing bleeding or bowel rupture. Eds can be confirmed by genetic testing and typed by skin biopsy. ...Read more

Did (Definition)

DID is an acronym for "Dissociative identity disorder" or "Multiple personality disorder" (psychiatric disorders). It is also ...Read more


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4 afriend shes in bad shape with vascular eds, in hosp.Dr said she needs to decide future/code status, she has the right at 20 to make own decision rite?

4 afriend shes in bad shape with vascular eds, in hosp.Dr said she needs to decide future/code status, she has the right at 20 to make own decision rite?

Yes: Very important - every adult needs to decide how he or she wants to leave this world (especially what he or she does not want done) before a severe event or illness happens. That means each adult should write his wishes down, give a copy to his doctor, and give another copy to a family member. Two forms are the advance directive and the polst (physician orders for life-sustaining treatment). ...Read more

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If a physio therapist thinks I have eds, who should I get in contact with when family dr say can only find out with a biopsy and won't do anything?

If a physio therapist thinks I have eds, who should I get in contact with when family dr say can only find out with a biopsy and won't do anything?

Clinical Findings: The diagnosis of ehler danlos syndrome is based on the clinical symptoms and family history and for some types of eds a skin biopsy is needed to help with the diagnosis. If you have clinical symptoms with or without family history, and you need a skin biopsy, it has to be ordered by your family doctor.If you are not happy with his opinion you can see another md or a rheumatologist for second opinion. ...Read more

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Double jointed, long tongue, tall, slim, stretchy skin-- is that a bad form of eds?

Double jointed, long tongue, tall, slim, stretchy skin-- is that a bad form of eds?

Yes it is bad for: Any one, it cause the joints to e exposed to un usual forces leading to early arthritis and more fractures. ...Read more

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I just had jaw surgery last tuesday. The surgery was a success, but I am having very bad pain in my lips nose and two jaws. The eds ?

I just had jaw surgery last tuesday. The surgery  was  a success, but I am having very bad pain in my lips nose and two jaws. The  eds ?

Acute pain: Post surgical acute pain is biologically useful. Acute pain is of short duration, but it gradually resolves as the injured tissues heal. It is appropriate to use whatever medication (including narcotic analgesics) for treatment and palliation. Re.: follow your surgeon's directions. ...Read more

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Bad headaches upn waking, sweating, pain behind eyes, neck pain, have eds type 3, but no tumour or bleed. Have hd electric shock pains in limbs? Why?

Bad headaches upn waking, sweating, pain behind eyes, neck pain, have eds type 3, but no tumour or bleed. Have hd electric shock pains in limbs? Why?

Mitochondrial?: In many instances, EDS hyperextensible type is caused by an underlying mitochondrial disorder. EDS with mito may manifest as progressive daily fatigue, headaches, muscle/joint pain and swelling, dysautonomia, autoimmune disease, gastrointestinal dysmotility. I advise a clinical genetics consultation. https://www.pinterest.com/debkdrake/mitochondrial-hypermobile-eds/ ...Read more

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How do you get eds?

How do you get eds?

Genetic!: You are born with it. It (several variants) are genetically acquired and in the patient's dna. It not acquired! treatments are symptomatic. There are no cures. ...Read more

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What are the types of eds?

What are the types of eds?

EDS types : Ehler danlos syndrome is a disorder of elastic fibers -----genetically based and many sub types have been identified. ...Read more

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What are the signs of eds?

Loose-jointedness: There are several variations of eds but they all have loose-jointedness as a primary symptoms. Increased elasticity of the skin may also be present. ...Read more