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Why Did Our Geneticist Say It Was Not So Bad To Have Eds
Tends to be "mild": Most cases and types of eds have fragile skin and joint dislocation as the worst consequenses. However the vascular type can be devestating with spontaneously rupturing blood vessels in multiple organs causing bleeding or bowel rupture. Eds can be confirmed by genetic testing and typed by skin biopsy. ...Read more
4 afriend shes in bad shape with vascular eds, in hosp.Dr said she needs to decide future/code status, she has the right at 20 to make own decision rite?
Yes: Very important - every adult needs to decide how he or she wants to leave this world (especially what he or she does not want done) before a severe event or illness happens. That means each adult should write his wishes down, give a copy to his doctor, and give another copy to a family member. Two forms are the advance directive and the polst (physician orders for life-sustaining treatment). ...Read moreSee 1 more doctor answer
If a physio therapist thinks I have eds, who should I get in contact with when family dr say can only find out with a biopsy and won't do anything?
Clinical Findings: The diagnosis of ehler danlos syndrome is based on the clinical symptoms and family history and for some types of eds a skin biopsy is needed to help with the diagnosis. If you have clinical symptoms with or without family history, and you need a skin biopsy, it has to be ordered by your family doctor.If you are not happy with his opinion you can see another md or a rheumatologist for second opinion. ...Read more
I have eds hypermobility sometimes when i turn my head something catches for sec and pops loose front sides of my neck. Tendons muscles? Is this bad?
I just had jaw surgery last tuesday. The surgery was a success, but I am having very bad pain in my lips nose and two jaws. The eds ?
Acute pain: Post surgical acute pain is biologically useful. Acute pain is of short duration, but it gradually resolves as the injured tissues heal. It is appropriate to use whatever medication (including narcotic analgesics) for treatment and palliation. Re.: follow your surgeon's directions. ...Read more
Bad headaches upn waking, sweating, pain behind eyes, neck pain, have eds type 3, but no tumour or bleed. Have hd electric shock pains in limbs? Why?
Mitochondrial?: In many instances, EDS hyperextensible type is caused by an underlying mitochondrial disorder. EDS with mito may manifest as progressive daily fatigue, headaches, muscle/joint pain and swelling, dysautonomia, autoimmune disease, gastrointestinal dysmotility. I advise a clinical genetics consultation. https://www.pinterest.com/debkdrake/mitochondrial-hypermobile-eds/ ...Read moreSee 2 more doctor answers
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