Doctor insights on:
Why Cant Cystic Fibrosis Patients Date Each Other
Increased infection: I am not a pulmonary or infectious specialist so I would defer the definitive answer to those specialty physicians. My understanding is that cystic fibrosis patients have increased risk of pulmonary infection. Placing two individuals with the same increased risk together would increase their risk even more. ...Read more
The caloric needs of a CF patient can be 20-30% higher or more than someone without cf. The use of calories for example in respiratory effort uses calories that would otherwise not be expended.
Eating a high protein high calorie diet along with CF nutritional supplements will help boost caloric intake.
I hope that this helps. ...Read more
Many ways: This is a chronic disease that can cause a variety of consequences to the patient and their family. This is a very complicated question to be answered briefly here. ...Read more
Too complicated: This is a massive topic to be explained here (in detail) ...Read more
Cystic fibrosis: CF is a genetic defect and at this time, it cannot be repaired. Companies such as sangamo pharmaceuticals are working on cures for mono-genetic diseases, and maybe someday a cure could become available. ...Read more
Depends on overall pulmonary and GI status:
if pancreatic insufficient:
-mucolytics such as pulmozyme
-chest physiotherapy to clear secretions
-nebulized antibiotics if chronic psuedomonas
-azithromycin if chronic pseudomonas
there are also other medications based on disease state. ...Read more
Thick: The secretions in cystic fibrosis are more viscous (thicker) than normal and interfere with normal drainage resulting in blockages of the bronchial tubes of the lung with resultant pneumonia and lung injury. Similar issues involve the pancreas. Newborns with the disease frequently have difficulty passing their bowel movements. ...Read more
Would it be possible for someone to donate a lung to a cystic fibrosis patient when you are a smoker?
Depends: If your pulmonary function tests show both lungs to have adequate capacity and no significant emphysema then it could be possible. Bear in mind that you both have to be able to live relatively normal lives on the single remaining lung. Both you and the recipient should avoid being in the same room with a cigarette! ...Read more
Can you tell me in disinfectants. It causes infections in cystic fibrosis patients. It is a gramof female crabs and shrimp?
Not sure: What the question is asking. Can you rephrase it more clearly? ...Read more
Is CBAVD sensitive for Cystic Fibrosis? In other words, if a male patient has both vas deferens, can it be assumed they do not have cystic fibrosis?
So far not at all: Trying to replace the faulty gene has been a failure so far. The new science of epigenetics tells us that our genes (even "bad" ones) are changed by diet and life style. I havegiven children with CF vitamin supplements. They help greatly but there is no cure. Find a physician who uses nutrient treatment. ...Read more
Not high fat: One of the problems folks with CF have is that their pancreatic duct gets blocked. This means that the fat-digesting enzymes from their pancreas can't get to their gut and break down the fat they eat. A high-fat diet would be very bad in this situation. You need to have conversations with your CF doc to optimize your diet. You should have both a pulmonologist and a GI doc on your team. ...Read more
It should: Cystic fibrosis is a genetic condition causing significant lung dysfunction. A double lung transplantation replaces the native lungs with supposedly normal lungs, eliminating the problem, but replacing it with problems directly related to transplanted lungs, i.e. Chronic rejection or bronchiolitis obliterans. ...Read more
Does a successful lung transplant completely get rid of the lung problems for cystic fibrosis patients?
It may: Or you could trade one set of problems for another - even successful lung transplants eventually develop obliterative bronchiolitis after a period of time. Be sure that you meet some post transplant patients who are successful, and compare your quality of life to theirs - if your treatment regimen is oppressive and your lung function is bad enough, you may be better of after a transplant. ...Read more
Certainly: Cystic Fibrosis (CF) most common life-limiting genetic disorder of Caucasians, affecting approximately 30K people in the US. A, impacting mainly respiratory function. In recent years patients symptoms better controlled by genetic findings and better medications. Emotional & phys. Development depend on severity, time in hospital, complications. Morb. & mort. Factors afect emotional, cognitive behavior. ...Read more
As a carrier:
Genetic carrier testing:
more than 10 million americans are symptomless carriers of the defective CF gene. This blood test can help detect carriers, who could pass CF onto their children. To have cystic fibrosis, a child must inherit one copy of the defective CF gene from each parent. ...Read more
I have family members with cystic fibrosis. Is it possible to start show the symptoms in my 20's?
What are the chances of a child getting cystic fibrosis among the different racial groups in the u.S.?
Acording to the CF foundation: the overall birth prevalence is 1/3700. It can occur in any race, however the greatest incidence is in caucasians of northern european descent, being 1/2500. The other major groups affected are hispanics 1/13500, african americans 1/15000.
More than 10 million of us carry one part of the defective gene, but to have the disease you must have a copy from both parents. ...Read more
Depends on genes: The risk of acquiring cystic fibrosis (CF) depends on whether the parents of a child are carriers for the gene. It is estimated that about 1 in 20 americans are carriers of the CF gene. In order for a child to acquire the disease, both parents must be carriers. If both parents are carriers, there is then a 25% chance that the child will acquire the disease. ...Read more
Cough, poor growth: Common symptoms of cystic fibrosis include cough, wheeze, recurrent lung infections, poor growth, foul smelling stools, salty sweat, clubbing, and rectal prolapse. The more symptoms the greater the chance of having cystic fibrosis. Most infants today are diagnosed by newborn screening for CF before they develop any symptoms and early therapy can minimize disease symptoms. ...Read more