Top
30
Doctor insights on: Why Are Doctors So Hesitant To Diagnose Lupus

Share
1

1
Why are doctors so hesitant to diagnose lupus? I have several symptoms and positive sjogren's ss-a.

Why are doctors so hesitant to diagnose lupus? I have several symptoms and positive sjogren's ss-a.

Prob u don't have it: Systemic lupus erythematosis is one of dozens of diseases grouped into the category of autoimmune connective tissue diseases. Many of these do not fit nicely into one, so that one can have a 'mixed' connective tissue disorder, or have an overlap of signs & sx. It may take years of following one of these unclear disorders to see a pattern. U probably have sjogren's disease, period. C rheumatologist. ...Read more

2

2
I believe that I have lupus but the doctors that I have seen are hesitant to diagnose it. I have auto immune hemolytic anemia and auto immune thrombocetapenia. What shouldi do?

I believe that I have lupus but the doctors that I have seen are hesitant to diagnose it. I have auto immune hemolytic anemia and auto immune thrombocetapenia. What shouldi do?

Treatment decisions: The real question is not "Do I have lupus?" but "How do I treat whatever this is?" There's no "magic bullet" for lupus and if it's not obvious, often the treatment is worse than the disease. The key is to manage your anemia to keep you able to function, and your thrombocytopenia to prevent serious bleeding. Decisions about administering immunosuppressants, IVIG, etc. are ahead. Be informed. ...Read more

3

3
What doctor diagnoses lupus?

What doctor diagnoses lupus?

Rheumatogist: Lupus, SLE, or Systemic Lupus Erythematosis is mainly cared for by rheumatologists. ...Read more

4

4
Can people with lupus become doctors?

Absolutely: Just like anyone with a chronic illness can become a doctor. ...Read more

Dr. John Kim Dr. Kim
1 doctor agreed:
5

5
Can I treat my lupus my self without going to the doctors.

Dr. John Kim Dr. Kim
1 doctor agreed:

Not recommended: Would recommends working with your doc to make sure your symptoms are well controlled. ...Read more

6

6
What are the things that make doctors think a person could have lupus?

What are the things that make doctors think a person could have lupus?

Multiorgan SLE: Typically, persons with systemic lupus erythematosis (sle) report joint swelling and pain. Others have a characteristic facial rash on both sides of their nose called a malar or "butterfly" rash. Some persons develop sharp chest pains that worsen with breathing call pleuritic pains. Sle can efffect kidneys, liver, brain and many other organs. ...Read more

7

7
Is there a quick , simple test I can have at the doctors for Lupus - having a few symptoms of it over the years ?

No: A diagnosis of Lupus is made with a combination of blood tests and symptoms. There is not one simple test that will tell you for sure. ...Read more

8

8
How can my doctor tell whether I have lupus?

Examination: It will take a history, physicial, lab tests, imaging - this combination is used to help make the diagnosis. A screening test is the ANA test but it must be done by the correct technique - immunofluorescence. There are other tests labs offer that are not correct. A + ANA does not by itself make the diagnosis of lupus. A + ANA is found in a lot of other conditions - rheumatologist will help. ...Read more

9

9
Should i go see a doctor if I am developing symptoms of lupus?

Should i go see a doctor if I am developing symptoms of lupus?

Absolutely: If you believe you may have lupus you need to have lab work done to check for autoantibodies related to lupus and other connective tissue disorders. Depending on the symptoms and lab results you may need to consult a rheumatologist. ...Read more

10

10
My doctor explained to me that he thinks I have lupus but it hasn't fully manifested yet. Is that normal?

Yes: Lupus can evolve over years and become a more obvious diagnosis as time goes on. I personally do not believe in the concept of undifferentiated connective tissue disorder. The majority of these cases eventually turn out to be lupus. ...Read more

11

11
How does a doctor check for lupus?

How does a doctor check for lupus?

History physical lab: The history and physical or very important and after that your physician will do laboratory studies to help clarify what you have lupus or not. The presence of an endocrine about is important. It is not diagnostic of lupus but it is very consistent. When that is found there are variety of other antibodies in the nucleus of the cell there also tested. The test you for a loop is your visitation may The history and physical or very important and after that your physician will do laboratory studies to help clarify what you have lupus or not. The presence of an about is important. It is not diagnostic of lupus but it is very consistent. When that is found there are variety of other antibodies in the nucleus of the cell there also tested. The test you for lupus your visitation may also have you see a rheumatologist. ...Read more

12

12
What doctor should a lupus patient see? 

A rheumatologist: Several doctors will likely help take care of a lupus patient: a primary care doctor to coordinate referrals to specialists, and to take care of non-lupus issues; a rheumatologist to take care of general lupus problems; and then other specialists to help take care of problems with certain organ systems (such as nephrologists to treat kidney failure, or ophthalmologists to treat eye problems). ...Read more

13

13
Need doctor's help! could lupus cause lymphodema?

Need doctor's help! could lupus cause lymphodema?

Unlikely: While any disease that causes impairment of lymphatic drainage can cause lymphedema, i could find no reports of this association. ...Read more

14

14
Is lupus an abbreviation, or is it named for a famous doctor or scientist?

Latin for wolf: Lupus is latin for "wolf" because wolves have marks on their faces that resemble the facial rash seen in lupus. ...Read more

15

15
What do doctors do with discoid lupus?

What do doctors do with discoid lupus?

Several Rx's!: Discoid in some patients is easy to manage and in others hard. One thing the pt. Can do is avoid uv light. I typically put pts on Hydroxychloroquine @ 6mg/kg of body weight, and use Methotrexate subcutaneous 20-25mg/wk. I occasional add ridaura. Some patients do well with azathioprine. Others do well with cellcept (mycophenolate mofetil). Topical steroids and oral steroids are always options. ...Read more

16

16
Will I need to see a special doctor for my lupus?

Will I need to see a special doctor for my lupus?

Yes: Several doctors will likely help take care of a lupus patient: a primary care doctor to coordinate referrals to specialists, and to take care of non-lupus issues; a rheumatologist to take care of general lupus problems; and then other specialists to help take care of problems with certain organ systems (such as nephrologists to treat kidney failure, or ophthalmologists to treat eye problems). ...Read more

17

17
Need doctor's help! could lupus lead to leukemia?

Maybe: There is an increased risk of cancer if you have sle. This is especially true for lymphoma. ...Read more

18

18
What type of doctor treats lupus nephritis?

What type of doctor treats lupus nephritis?

Nephrologist: A kidney doctor should primarily treat a lupus patient who has kidney involvement. In certain situations, a rheumatologist can treat this condition. ...Read more

19

19
Why do some doctors say lupus sle is a terminal disease?

SLE: All diseases are terminal....In fact, life is terminal. Whichever doctor tells you that lupus is a terminal disease.....Well, i would get a new doctor. ...Read more

20

20
Need doctor's help! will lupus be certified for disability?

Need doctor's help! will lupus be certified for disability?

Uncertain: Whether a medical condition is considered a disability depends on many factors. First is the condition optimally treated and stable? What is the long-term prognosis? What are the essential duties of your job? Are there accommodations or can the job be modified? It's a good idea to discuss all of this with your treating doctor. ...Read more

21

21
What does a full lupus work up means? How does a doctor perform a lupus work up?

Lots of blood tests: Your Family Doc can order lab tests to check for lupus & other rheumatologic maladies. Check out http://www.lupus.org/answers/entry/lupus-tests and http://www.mayoclinic.org/diseases-conditions/lupus/basics/tests-diagnosis/con-20019676 ...Read more

23

23
Hi, I have been diagnosed with fibro 8 years but have have a few friends (with the condition) say I my have lupus. How do I ask my doc to check?

Just ask: Lupus is usually easily to screen out with a couple of blood tests. Raise the subject with your doctor to find out if such tests should be considered. ...Read more

24

24
I think I might have lupus and I'm pretty sure a flare just ended. Should I wait to go to the doctor until next flare up? Flares have lupus symptoms.

See doctor: You need to see your doctor now for a thorough exam and evaluation the arthritic family of diseases is best diagnosed clinically. In other words from your history and exam ...Read more

25

25
I have lupus and I've bewn diagnosed for almost 2 years a i don't feel like im getting any better and im not comfortable with my doctor what should I do?

I have lupus and I've bewn diagnosed for almost 2 years a i don't feel like im getting any better and im not comfortable with my doctor what should I do?

See below: You do not have plaquenil/hydroxychloroquine listed as a medication---it makes a world of difference for lupus patient if you can tolerate it and it is a maintenance drug for lupus. If this has not been prescribed without a good reason, you might want to seek a second opinion. ...Read more

26

26
Why was I diagnosed and then undiagnosed with lupus? Is my doctor incompetent?

Why was I diagnosed and then undiagnosed with lupus? Is my doctor incompetent?

See details: How can anyone possibly answer that question without knowing your entire history and having access to all of your lab results.See a rheumatologist if you have not done so already. If you are concerned, get a second opinion. ...Read more

27

27
Can the doctor estimate your remaining lifespan after diagnosing you as having lupus ?

See below: The average lifespan for lupus has improved over the years with newer medications.

However, the more aggressive involvement and the presence of other conditions such as diabetes, kidney disease, and heart disease can shorten your lifespan. Your rheumatologist who knows you could give you a better idea in regards to this compared to us. ...Read more

28

28
Is CRP level of 1.9 high? Doctor checking me for Lupus. Thank you very much

Is CRP level of 1.9 high? Doctor checking me for Lupus. Thank you very much

Units of measure: All laboratory results need to be interpreted in the clinical context and the doctor who ordered the tests is usually in the best position to do that. Talk to the doctor who ordered the tests. Having said that, If the value is 1.8 mg/dL, it is slightly high and indicative of inflammation.
You may visit this site for info. (Note that this site gives values on mg/L which would give a value 10 times higher than if it is measured in dL.)
https://www.mayomedicallaboratories.com/test-catalog/Clinical+and+Interpretive/9731 ...Read more

29

29
I have discoid lupus. Oxycodone fixes all of my ailments but doctors wont prescribe w?

I have discoid lupus.  Oxycodone fixes all of my ailments but doctors wont prescribe w?

Not a lupus med: Opioid narcotics such as oxycodone do not affect the underlying disease process of discoid lupus (dle), which is an autoimmune reaction against the skin. Opioids are associated with significant risks including dependence and overdose. Since they do not affect the actual process causing dle, your doctors are protecting you from potential risks of unnecessary medications. Dle needs other treatments. ...Read more

30

30
Can I ask my doctor to test my 4 year old for lupus?

Of course!: You can ask your doctor for specific testing but be prepared with a family history or symptoms of concern that warrant any specific test. Your doctor will take this information and combine it with physical findings to decide if the testing is warranted. ...Read more