Doctor insights on:
Where In The Us Provides The Best Climate For Cf Patients
Climate & CF: The best outcomes for CF related lung disease are with regular use of airway clearance therapies & inhaled medications, maintaining good nutritional status & closely monitoring for CF related complications at an accredited CF center. Climate will not make any significant difference if you are not doing your prescribed treatments & therapies. Good compliance with therapies will ensure best results. ...Read more
Could pulmozyme (dornase alfa) use result in increased respiratory rate in non-cf patient with a tracheostomy?
Maybe: Side effects with Pulmozyme (dornase alfa) are various and can include irritation of the throat, nose and voice changes. It can also cause hoarseness. I use a fair amount in my patients and have not seen it increase respiratory rate. I guess if it was irritating the airway you could breath faster due to pain/discomfort. I don't think that increased resp rate is very common on this drug. ...Read more
Operations difficult: Several more recent studies comparing CF patients with pleurodesis and no pleurodesis did not seem to show significant difference in outcome. It was originally though that greater adhesions or fibrosis from pleurodesis would cause excessive bleeding. All patients with CF have some degree of pleural adhesions. Operations can be difficult either way. ...Read more
Increased infection: I am not a pulmonary or infectious specialist so I would defer the definitive answer to those specialty physicians. My understanding is that cystic fibrosis patients have increased risk of pulmonary infection. Placing two individuals with the same increased risk together would increase their risk even more. ...Read more
The caloric needs of a CF patient can be 20-30% higher or more than someone without cf. The use of calories for example in respiratory effort uses calories that would otherwise not be expended.
Eating a high protein high calorie diet along with CF nutritional supplements will help boost caloric intake.
I hope that this helps. ...Read more
Many ways: This is a chronic disease that can cause a variety of consequences to the patient and their family. This is a very complicated question to be answered briefly here. ...Read more
Can you explain what exactly happens in the body of a cystic fibrosis patient (in detail please)?
Too complicated: This is a massive topic to be explained here (in detail) ...Read more
Cystic fibrosis: CF is a genetic defect and at this time, it cannot be repaired. Companies such as sangamo pharmaceuticals are working on cures for mono-genetic diseases, and maybe someday a cure could become available. ...Read more
Depends on overall pulmonary and GI status:
if pancreatic insufficient:
-mucolytics such as pulmozyme
-chest physiotherapy to clear secretions
-nebulized antibiotics if chronic psuedomonas
-azithromycin if chronic pseudomonas
there are also other medications based on disease state. ...Read more
Thick: The secretions in cystic fibrosis are more viscous (thicker) than normal and interfere with normal drainage resulting in blockages of the bronchial tubes of the lung with resultant pneumonia and lung injury. Similar issues involve the pancreas. Newborns with the disease frequently have difficulty passing their bowel movements. ...Read more
Would it be possible for someone to donate a lung to a cystic fibrosis patient when you are a smoker?
Depends: If your pulmonary function tests show both lungs to have adequate capacity and no significant emphysema then it could be possible. Bear in mind that you both have to be able to live relatively normal lives on the single remaining lung. Both you and the recipient should avoid being in the same room with a cigarette! ...Read more
Can you tell me in disinfectants. It causes infections in cystic fibrosis patients. It is a gramof female crabs and shrimp?
Not sure: What the question is asking. Can you rephrase it more clearly? ...Read more
Is CBAVD sensitive for Cystic Fibrosis? In other words, if a male patient has both vas deferens, can it be assumed they do not have cystic fibrosis?
So far not at all: Trying to replace the faulty gene has been a failure so far. The new science of epigenetics tells us that our genes (even "bad" ones) are changed by diet and life style. I havegiven children with CF vitamin supplements. They help greatly but there is no cure. Find a physician who uses nutrient treatment. ...Read more
Not high fat: One of the problems folks with CF have is that their pancreatic duct gets blocked. This means that the fat-digesting enzymes from their pancreas can't get to their gut and break down the fat they eat. A high-fat diet would be very bad in this situation. You need to have conversations with your CF doc to optimize your diet. You should have both a pulmonologist and a GI doc on your team. ...Read more
It should: Cystic fibrosis is a genetic condition causing significant lung dysfunction. A double lung transplantation replaces the native lungs with supposedly normal lungs, eliminating the problem, but replacing it with problems directly related to transplanted lungs, i.e. Chronic rejection or bronchiolitis obliterans. ...Read more
Does a successful lung transplant completely get rid of the lung problems for cystic fibrosis patients?
It may: Or you could trade one set of problems for another - even successful lung transplants eventually develop obliterative bronchiolitis after a period of time. Be sure that you meet some post transplant patients who are successful, and compare your quality of life to theirs - if your treatment regimen is oppressive and your lung function is bad enough, you may be better of after a transplant. ...Read more
That depends...: I have seen CF patients carry pregnancy to full term. The risk is the same as for anyone with impaired lung function and/or malnutrition (very common problems in CF patients). You should discuss pregnancy with your CF provider, usually a lung doctor, and maybe also a specialist in high risk ob. They can discuss the the risks of pregnancy based on your specific health status. Good luck. ...Read more
Cystic fibrosis: This condition is inherited in an autosomal recessive pattern, which means both copies of the gene in each cell have mutations. The parents of an individual with an autosomal recessive condition each carry one copy of the mutated gene, but they typically do not show signs and symptoms of the condition. ...Read more
Depends: Cystic fibrosis (CF) can affect many organs. The pancreas and lungs are the most commonly and severely affected. It is a rare disease that requires treatment by specialized doctors, ideally through a cystic fibrosis foundation accredited care center. For more info, link to www. Cff. Org. ...Read more
There are many lung transplantation centers in the U.S. Among the busiest centers, texas children/s hospital performs many lung transplantations per year. The international society for heart and lung transplantation provides statistical information at ishlt. Org.
It is also important to consider that you will have many follow up visits, so living close to a center may be important as well. ...Read more
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