Doctor insights on:
When To Stop Phlebotomy For Hemochromatosis
is hemochromatosis reversible through phlebotomy or must a patient undergo phlebotomy on a regular basis for the rest of his life? Does phlebotomy eventually ease the symptom so that this treatment may stop?
Depends: Hi. Hemochromatosis can be a hereditary disease from mutations in the HFE gene, or it can be from transfusion dependency (e.g., for various alpha and beta- thalassemias). You can only treat the hereditary hemochromatosis with phlebotomy...you can't phlebotomize transfusion-dependant patients! Clarify what your friend has, and if he is in fact iron-overloaded. Phlebotomy is easy and very effective ...Read moreSee 2 more doctor answers
I have hemochromatosis and had my first phlebotomy yesterday. I was to get 300cc out. My blood was so thick it took 1.5hrs to get 200. Why is my blood like that and the risks?
Iron overload: This disease, if advanced, causes increased red blood cells, increased iron, and "thick blood". You may not be well hydrated. Are you on an aspirin? You need to see a hematologist or a GI doctor who deals with this illness & have a good treatment area with experienced phlebotomists . Drink lots of water the day of and be patient. You may have to go every 1-2 weeks for a while & follow closely. ...Read moreSee 2 more doctor answers
In some cases.: Phlebotomy is the first-line treatment for primary hemochromatosis, a genetic defect that makes a person absorb too much iron(hereditary hemochromatosis). It can prolong life expectancy, prevent complications, and relieve some but not all symptoms. Secondary hemochromatosis, which results from repeated blood transfusions, some anemias, or excessive iron therapy, is usually treated w/ iron chelators. ...Read moreSee 2 more doctor answers
I have been doing phlebotomy for hemochromatosis. i got my ferritin down to 50 then it went back up to 300! why?! do not drink low iron diet
Iron accumulates: In Hemochromatosis, your body absorbs too much iron. Even if your diet is low iron, as it should be, you can still over time accumulate iron in your tissues again since the underlying problem with iron metabolism is ever present. Ferritin is also a marker of inflammation, and often rises during infection etc. If you have had any such issues lately, it could be a result of that as well. ...Read more
I have genetic hemochromatosis my ferritin level before last phlebotomy was 318 hemoglobin 187 my wbc 11 and my platelet count 454. I'm so confused!
Talk about it: The key is that you're getting treated. Your physician will try to keep your ferritin fairly low. That platelet count is fine. The white count has little to do with your hemochromatosis status. I'm really glad this got picked up. If it's missed, it's slow, miserable and deadly. Of all the very-very-serious diseases, it's the easiest to manage. Best wishes. ...Read more
I have hemachromatosis. What is the highest level my ferritin should be before getting a phlebotomy? Please state a number for max.
One: Thousand, if the diagnosis is established and there have been several levels to confrim. ...Read more
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