Top
10
Doctor insights on: What Type Of Exercise Is Good For People With Marfan Syndrome

Share
1

1
What type of exercise is good for people with Marfan syndrome?

What type of exercise is good for people with Marfan syndrome?

Non-strenguous: Marfan syndrome persons should avoid contact sports. If symptoms are on the moderate to severe side, they can participate in non-contact, non-strenguous activities such as golf, bowling, walking, yoga, or tai-chi. If mild to moderate in severity, they can try non-contact, moderately strenguous activities such as biking or swimming. The national marfan foundation website is helpful. ...Read more

See 1 more doctor answer
Dr. Scott McLean
289 doctors shared insights

Marfan Syndrome (Definition)

Marfan's syndrome is a genetic disorder caused by defects in a protein called fibrillin that, along with collagen, provides most of the structural support of our tissues. Individuals with Marfan's are often tall, lanky, have long arm spans, and are hyperflexible. The most serious complication of Marfan's is caused by defects in the wall of the aorta, the large blood vessel that leaves the heart and supplies the ...Read more


2

2
What type of learning disability do people with Marfan syndrome usually have?

What type of learning disability do people with Marfan syndrome usually have?

Visual disabilities: Marfan syndrome patients, if severe, can have disabilities involving vision, such as reading. Patients can have dislocated lens in the eyes (lens are out of position and cannot focus properly), retinal detachments (retina comes off the inside surface of the eyeballs), early cataracts (lens become cloudy), or early glaucoma (excess pressure inside the eyeballs). ...Read more

See 1 more doctor answer
4

4
I'm looking for a really good orthotic insert for my shoes. Any recommendations? I have terrible flat feet due to Marfan syndrome.

I'm looking for a really good orthotic insert for my shoes. Any recommendations?  I have terrible flat feet due to Marfan syndrome.

Marfan or Marfanoid: flat feet: "Severe hindfoot valgus, also noted as medial deviation of medial malleolus (by clinical finding, not imaging)" is usually present, and treatment may be a matter of personal preference...Orthotics may be useful if pain is present. Custom-made soft orthotics may be needed to assure the proper fit essential for effective treatment." pdf download for orthopedic care found at marfan.org ...Read more

5

5
I have dural ectasia and have constant pain and stiffness I dont have Marfan syndrome what can I do for treatment or type of doctor besides pain meds?

I have dural ectasia and have constant pain and stiffness I dont have Marfan syndrome what can I do for treatment or type of doctor besides pain meds?

Back pain / ectasia: A condition like dural ectasia can be very troublesome. Besides pain medication, people with this condition may respond to physical therapy, surgery, stimulator therapy or muscle relaxant treatment. Recruiting a physiatrist or PMR doctor and a neurosurgeon to your team would be helpful. ...Read more

6

6
Can people with Marfan syndrome live long lives?

Can people with Marfan syndrome live long lives?

Varies by severity: People with mild marfan syndrome symptoms probably live a pretty normal lifespan. Those with severe symptoms can die from heart valve problems, rupture of the aorta, tension pneumothorax, etc..., before they reach old age. Of course, those with moderate symptoms will have a lifespan in between. ...Read more

See 1 more doctor answer
7

7
Can people with Marfan syndrome still fly on planes?

Usually yes: A marfan syndrome person with a current or recent pneumothorax (collapsed lung) should not fly (unless the airplane stays close to his airport's altitude) because the decrease in outside air pressure as the airplane ascends can allow his pneumothorax to enlarge and compress the lungs and heart. ...Read more

See 1 more doctor answer
8

8
Do all people with Marfan syndrome grow more than the average person?

Rarely: Occasionally, a person with marfan syndrome will have normal height, but the majority of people with marfan syndrome tall. Even if people with marfan syndrome who have normal height, there long bones tend to be longer than typical, resulting in longer than typical arms, legs, and fingers. ...Read more

See 1 more doctor answer
9

9
Do people with Marfan Syndrome ever stop growing in height and if so is it about the same time others without the disease stop growing ?

Do people with Marfan Syndrome ever stop growing in height and if so is it about the same time others without the disease stop growing ?

Yes : There are multiple potential. abnormalities associated with marfans, such as scoliosis, for example; but they do typically reach skeletal maturity (stop growing) at a similar age as those without marfans. In general, their height is taller than average and they tend to be slender. ...Read more

10

10
Why do people with Marfan syndrome develop scoliosis?

Loose ligaments: Over half of people with marfan's get scoliosis, but only about a third of these need treatment. It results from loose connective tissue which makes scoliosis more likely. ...Read more

See 1 more doctor answer
Dr. Heidi Fowler
4,969 doctors shared insights

Exercise (Definition)

Exercise is physical activity, such as walking, running, swimming, biking, ...Read more