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What Type Of Exercise Is Good For People With Marfan Syndrome
Non-strenguous: Marfan syndrome persons should avoid contact sports. If symptoms are on the moderate to severe side, they can participate in non-contact, non-strenguous activities such as golf, bowling, walking, yoga, or tai-chi. If mild to moderate in severity, they can try non-contact, moderately strenguous activities such as biking or swimming. The national marfan foundation website is helpful. ...Read moreSee 1 more doctor answer
Marfan's syndrome is a genetic disorder caused by defects in a protein called fibrillin that, along with collagen, provides most of the structural support of our tissues. Individuals with Marfan's are often tall, lanky, have long arm spans, and are hyperflexible. The most serious complication of Marfan's is caused by defects in the wall of the aorta, the large blood vessel that leaves the heart and supplies the ...Read more
Visual disabilities: Marfan syndrome patients, if severe, can have disabilities involving vision, such as reading. Patients can have dislocated lens in the eyes (lens are out of position and cannot focus properly), retinal detachments (retina comes off the inside surface of the eyeballs), early cataracts (lens become cloudy), or early glaucoma (excess pressure inside the eyeballs). ...Read moreSee 1 more doctor answer
Maybe: Having Marfan syndrome by itself does not mean you cannot be a pilot, but having the condition does increase your risk of specific heart and aortic conditions , a few of which could be life-threatening without immediate medical assistance. A cardiologist (heart Doctor) can run some tests to help you determine your risk. ...Read more
I'm looking for a really good orthotic insert for my shoes. Any recommendations? I have terrible flat feet due to Marfan syndrome.
Marfan or Marfanoid: flat feet: "Severe hindfoot valgus, also noted as medial deviation of medial malleolus (by clinical finding, not imaging)" is usually present, and treatment may be a matter of personal preference...Orthotics may be useful if pain is present. Custom-made soft orthotics may be needed to assure the proper fit essential for effective treatment." pdf download for orthopedic care found at marfan.org ...Read more
I have dural ectasia and have constant pain and stiffness I dont have Marfan syndrome what can I do for treatment or type of doctor besides pain meds?
Back pain / ectasia: A condition like dural ectasia can be very troublesome. Besides pain medication, people with this condition may respond to physical therapy, surgery, stimulator therapy or muscle relaxant treatment. Recruiting a physiatrist or PMR doctor and a neurosurgeon to your team would be helpful. ...Read more
Varies by severity: People with mild marfan syndrome symptoms probably live a pretty normal lifespan. Those with severe symptoms can die from heart valve problems, rupture of the aorta, tension pneumothorax, etc..., before they reach old age. Of course, those with moderate symptoms will have a lifespan in between. ...Read moreSee 1 more doctor answer
Usually yes: A marfan syndrome person with a current or recent pneumothorax (collapsed lung) should not fly (unless the airplane stays close to his airport's altitude) because the decrease in outside air pressure as the airplane ascends can allow his pneumothorax to enlarge and compress the lungs and heart. ...Read moreSee 1 more doctor answer
Rarely: Occasionally, a person with marfan syndrome will have normal height, but the majority of people with marfan syndrome tall. Even if people with marfan syndrome who have normal height, there long bones tend to be longer than typical, resulting in longer than typical arms, legs, and fingers. ...Read moreSee 1 more doctor answer
Do people with Marfan Syndrome ever stop growing in height and if so is it about the same time others without the disease stop growing ?
Yes : There are multiple potential. abnormalities associated with marfans, such as scoliosis, for example; but they do typically reach skeletal maturity (stop growing) at a similar age as those without marfans. In general, their height is taller than average and they tend to be slender. ...Read more
Exercise Or Physical Activity (Definition)
Exercise is a physical activity that is completed to maintain or improve health. Benefits of exercise include weight maintenance, improving mood, increasing energy, preventing or controlling chronic diseases, promoting better sleeping, and improving sex life and libido. ...Read more
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