Doctor insights on:
What Toys Would Help A Child With Cystic Fibrosis
Fun ones: Toys they like are the best for them... Kids with CF are all different, so find out what they want. ...Read more
Varies considerably: There is considerable variance between children and between institutions for the cost of of hospitalizing a child with cf. Children have variable needs for hospitalization depending on their genotype and adherence to their regimen, and (unfortunately) there is a large amount of variance in practices while hospitalized and costs for these practices. ...Read more
No: Clean helps & dust free helps for any kid. To some extent this ideal is relative and perfection on either point is unrealistic. With a stable hygienic environment, close monitoring by a CF center, & proper nutrition, these kids do well. Your CF center should have guidelines for healthy living they will share with you during your regular followups. ...Read more
CF Nutrition: High calorie foods have more calories per ounce. For example, a tablespoon of olive oil, an ounce of cheese has more calories than same amount of rice. Adding cheese, olive oil, nuts, dressing to the meal will help boost calories. In addition, supplements are available specifically for CF patients. The cff. Org and prmg respiratory practice (fax 858 259 9689) can provide further information. ...Read more
What are the chances of a child getting cystic fibrosis among the different racial groups in the u.S.?
Acording to the CF foundation: the overall birth prevalence is 1/3700. It can occur in any race, however the greatest incidence is in caucasians of northern european descent, being 1/2500. The other major groups affected are hispanics 1/13500, african americans 1/15000.
More than 10 million of us carry one part of the defective gene, but to have the disease you must have a copy from both parents. ...Read more
Genetic disorder: CF is an autosomal recessive genetic disorder. The infant must inherit a CF gene from both parents (who are CF gene carriers) to be born with this disorder. This disorder occurs in one out of every 3, 500 white births and one out of every 20, 000 black births. All 50 states now have newborn screening programs to identify infants born with cf. ...Read more
Yes: There are also allergy related and other forms of polyps that are not uncommon. ...Read more
PFTs with albuterol:
An additional comment:
children with CF can participate in sports if they are able to do so. Obtaining a lung function test with and without a bronchodilator to determine whether there is treatable reactivity of the airway may be useful. This can be discussed with your doctor. ...Read more
Me and my partner both carry cystic fibrosis genes. How do we be sure to have a child without cystic fibrosis?
My child has cystic fibrosis and I am concerned about his grandfather who has cardiac failure and is often sick. Should he wear a mask?
CF infections: A child with CF may experience flare ups of their symptoms during viral illness or community acquired bacterial illness. It is best to stay at least 6 feet away to avoid inhaling any infected material. In addition, good hand washing, use of hand sanitizer and not touching your nose or face will help avoid infections. I hope that his grandfather feels better. ...Read more
If you were a carrier of cystic fibrosis, how do you test to see if your unborn child has inherited it?
CF: First you need to determine if the father of the baby is also a carrier of the disease as CF is a recessive disease. Therefore both parents need to be carriers and even then there is only a 25% chance the baby is affected. Doing either cvs or amnio can determine if the fetus is affected by cf. If only one parent is a carrier. Screening post natal is recommended. ...Read more
Is it possible for one child to have cystic fibrosis while another, from the same parents, be completely normal?
What are symptoms of cystic fibrosis and could a 19 year old be diagnosed with it or would they have been screened as a child in 1993?
The symptoms of CF vary and there are many mutations associated with this genetic disorder. Some of the symptoms include, chronic cough, production of sputum, chronic pneumonia, digestive problems, especially with fat intake, sinusitis, diabetes.
One negative screening test may not have adequately ruled out cf. If you suspect cf, a screening sweat test should be performed. ...Read more
Yes: CF is an inherited disorder that requires 2 mutations (1 from mother & 1 from father) to lead to the clinical disease. If you have it, you were born with it. Many states in the U.S. Perform newborn screening that can pick the disease up at birth, but it can go undiagnosed for years in some cases. ...Read more
Screening: If two parents are both potential carriers, screening will reveal your risk. The only way for two carriers to avoid having a child is an elective abortion after an amniocentesis and genetic screening of the fetus. Children with cf, however, are children that can live full lives, and there are promising treatments on the horizon. ...Read more
Does a child have to inherit the same mutation from both parents in order to have cystic fibrosis?
Does my child have to inherit the same exact mutation from both parents in order to develop cystic fibrosis?
No: You need 2 mutations to inherit cf, but they can be, and often are, 2 different mutations. The type of mutation can have an impact on the severity of the disease and the child's prognosis. ...Read more