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What Toys Would Help A Child With Cystic Fibrosis
Cystic fibrosis is a genetic disorder involving lungs & digestive tract, causing recurrent lung infections due to thick inspissated mucus & poor growth in majority of patients due to malabsorption. Treatment involves inhaled respiratory therapies to prevent lung disease & pancreatic enzymes to enable absorption of nutrients. Average life expectancy is near 40 years, ...Read more
Varies considerably: There is considerable variance between children and between institutions for the cost of of hospitalizing a child with cf. Children have variable needs for hospitalization depending on their genotype and adherence to their regimen, and (unfortunately) there is a large amount of variance in practices while hospitalized and costs for these practices. ...Read moreSee 1 more doctor answer
Clinic/online: Your CF clinic should be able to help you and other family members, and direct you towards available help channels, a lot of them online. The clinic's social worker should be a great source for that information. A great source for CF families and good place to start online is the cystic fibrosis foundation website http://www.Cff.Org/livingwithcf/. ...Read moreSee 1 more doctor answer
Is it important for a child with cystic fibrosis to be in a moderately clean and dust free environment ?
No: Clean helps & dust free helps for any kid.To some extent this ideal is relative and perfection on either point is unrealistic. With a stable hygienic environment, close monitoring by a CF center, & proper nutrition, these kids do well.Your CF center should have guidelines for healthy living they will share with you during your regular followups. ...Read more
CF Nutrition: High calorie foods have more calories per ounce. For example, a tablespoon of olive oil, an ounce of cheese has more calories than same amount of rice. Adding cheese, olive oil, nuts, dressing to the meal will help boost calories. In addition, supplements are available specifically for CF patients. The cff.Org and prmg respiratory practice (fax 858 259 9689) can provide further information. ...Read moreSee 1 more doctor answer
Yes: CF is an inherited disorder that requires 2 mutations (1 from mother & 1 from father) to lead to the clinical disease. If you have it, you were born with it. Many states in the U.S. Perform newborn screening that can pick the disease up at birth, but it can go undiagnosed for years in some cases. ...Read moreSee 2 more doctor answers
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