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Doctor insights on: What Toys Would Help A Child With Cystic Fibrosis

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What toys would help a child with cystic fibrosis?

What toys would help a child with cystic fibrosis?

Fun ones: Toys they like are the best for them... Kids with CF are all different, so find out what they want. ...Read more

Dr. William Walsh
992 Doctors shared insights

Cystic Fibrosis (Definition)

A genetic disorder of the lungs and digestive tract. It causes recurrent lung infections and inhibits growth in patients and average life expectancy of patients with cystic fibrosis ...Read more


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What is done for a child with cystic fibrosis?

What is done for a child with cystic fibrosis?

Supportive care: CF patients benefit from active coordinated care involving their pcp and a regional cystic fibrosis care center. These are usually part of a children's hospital and involve pediatric pulmonologists and other respiratory care specialists. ...Read more

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What are the chances of having a second child with cystic fibrosis?

1 in 4 or 25%: Genetic counseling prior to pregnancy is very important if there is a family history of cystic fibrosis. There are many options available to parents who have already had a child with cystic fibrosis. ...Read more

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How can I cope with a child with cystic fibrosis?

How can I cope with a child with cystic fibrosis?

Support: Go to your local CF treatment center, they will have oodles of resources for you and your child. The CF foundation has a list of approved centers. ...Read more

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What are the annual hospitalization costs of having a child with cystic fibrosis?

What are the annual hospitalization costs of having a child with cystic fibrosis?

Varies considerably: There is considerable variance between children and between institutions for the cost of of hospitalizing a child with cf. Children have variable needs for hospitalization depending on their genotype and adherence to their regimen, and (unfortunately) there is a large amount of variance in practices while hospitalized and costs for these practices. ...Read more

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Does a child with cystic fibrosis have to live in a clean and dust free environment?

Does a child with cystic fibrosis have to live in a clean and dust free environment?

No: Clean helps & dust free helps for any kid. To some extent this ideal is relative and perfection on either point is unrealistic. With a stable hygienic environment, close monitoring by a CF center, & proper nutrition, these kids do well. Your CF center should have guidelines for healthy living they will share with you during your regular followups. ...Read more

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Is it important for a child with cystic fibrosis to be in a moderately clean and dust free environment?

Yes: Avoiding respiratory irritants is a good rule for a child with cf, but kids with this disease should not be restricted from living a life as normal as possible. ...Read more

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What are healthy high calorie foods for a child with cystic fibrosis?

What are healthy high calorie foods for a child with cystic fibrosis?

CF Nutrition: High calorie foods have more calories per ounce. For example, a tablespoon of olive oil, an ounce of cheese has more calories than same amount of rice. Adding cheese, olive oil, nuts, dressing to the meal will help boost calories. In addition, supplements are available specifically for CF patients. The cff. Org and prmg respiratory practice (fax 858 259 9689) can provide further information. ...Read more

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What are the chances of a child getting cystic fibrosis among the different racial groups in the u.S.?

What are the chances of a child getting cystic fibrosis among the different racial groups in the u.S.?

Overall 1/3700: Acording to the CF foundation: the overall birth prevalence is 1/3700. It can occur in any race, however the greatest incidence is in caucasians of northern european descent, being 1/2500. The other major groups affected are hispanics 1/13500, african americans 1/15000.
More than 10 million of us carry one part of the defective gene, but to have the disease you must have a copy from both parents. ...Read more

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What happens that makes a child be born with cystic fibrosis?

Genetic disorder: CF is an autosomal recessive genetic disorder. The infant must inherit a CF gene from both parents (who are CF gene carriers) to be born with this disorder. This disorder occurs in one out of every 3, 500 white births and one out of every 20, 000 black births. All 50 states now have newborn screening programs to identify infants born with cf. ...Read more

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What is the name of the child's test for cystic fibrosis?

What is the name of the child's test for cystic fibrosis?

Sweat Chloride Test: There are several tests including newborn screening. The sweat test is considered the most common screening test for children. It is highly accurate if performed correctly and if there is adequate sweat collected. ...Read more

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Can a child have nasal pollups and not have cystic fibrosis?

Can a child have nasal pollups and not have cystic fibrosis?

Yes: There are also allergy related and other forms of polyps that are not uncommon. ...Read more

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If a child had cystic fibrosis, you would find out at birth, right?

CF: Cystic fibrosis is a genetic disease and can be detected at birth by newborn screening tests. If the initial testing is negative and the child's symptoms are indicative of possible cf, then a sweat test should be performed. ...Read more

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Can a child of 13 with cystic fibrosis play vollyball without struggling?

Can a child of 13 with cystic fibrosis play vollyball without struggling?

PFTs with albuterol: An additional comment:
children with CF can participate in sports if they are able to do so. Obtaining a lung function test with and without a bronchodilator to determine whether there is treatable reactivity of the airway may be useful. This can be discussed with your doctor. ...Read more

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If only one parent is a carrier of cystic fibrosis, how likely is the child to be a carrier?

If only one parent is a carrier of cystic fibrosis, how likely is the child to be a carrier?

50%: A carrier parent has 2 possible genes to pass along. There is a fifty % chance a child could get either the normal or CF gene. If they did, they would be a carrier, like the parent. ...Read more

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Me and my partner both carry cystic fibrosis genes. How do we be sure to have a child without cystic fibrosis?

Prenatal testing: Testing of your fetus and or placenta is available. However, there us a risk of pregnancy loss associated with these procedures. Talk with our obstetrician and genetic counselor about risks and the best procedure for your situation. ...Read more

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My child has cystic fibrosis and I am concerned about his grandfather who has cardiac failure and is often sick. Should he wear a mask?

My child has cystic fibrosis and I am concerned about his grandfather who has cardiac failure and is often sick. Should he wear a mask?

CF infections: A child with CF may experience flare ups of their symptoms during viral illness or community acquired bacterial illness. It is best to stay at least 6 feet away to avoid inhaling any infected material. In addition, good hand washing, use of hand sanitizer and not touching your nose or face will help avoid infections. I hope that his grandfather feels better. ...Read more

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How do I tell my employer I think her child has cystic fibrosis?

How do I tell my employer I think her child has cystic fibrosis?

Cystic fibrosis: It is very hard to diagnose cystic fibrosis without evidence of cystic fibrosis like sweat chloride test or the genetic testing. You can tell him/ her that based of what you are suspecting, you might need to ask the doctor about cystic fibrosis. ...Read more

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If you were a carrier of cystic fibrosis, how do you test to see if your unborn child has inherited it?

CF: First you need to determine if the father of the baby is also a carrier of the disease as CF is a recessive disease. Therefore both parents need to be carriers and even then there is only a 25% chance the baby is affected. Doing either cvs or amnio can determine if the fetus is affected by cf. If only one parent is a carrier. Screening post natal is recommended. ...Read more

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Say I have the gene of cystic fibrosis, can my child have it?

Say I have the gene of cystic fibrosis, can my child have it?

CFF: Both the mother and father have to be carriers. It is a genetic disease and genetic counseling is available. The CF foundation also has information about CF transmission. ...Read more

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Do both parents have to be cystic fibrosis carriers for a child to get it?

Do both parents have to be cystic fibrosis carriers for a child to get it?

Yes: Cystic fibrosis is an autosomal recessive disease which means that a person needs to inherit 2 abnormal genes in order to have the disease. Those 2 abnormal copies come one each from the 2 parents, so both parents need to be at least carriers. ...Read more

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My child as cystic fibrosis, how likely will he get pseudomonas aeruginosa?

Later in life: Patients with cystic fibrosis often get these bacteria in their airways by adulthood. The vast majority of adult CF patients have airways colonized with pseudomonas aeruginosa (pa). Younger patients (kids) tend not to have pa in their airways, but that can vary. ...Read more

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Is it possible for one child to have cystic fibrosis while another, from the same parents, be completely normal?

Yes: The child would need to inherit an abnormal gene from both parents. So, the chance of the child having CF is 25%. ...Read more

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What are symptoms of cystic fibrosis and could a 19 year old be diagnosed with it or would they have been screened as a child in 1993?

CF: The symptoms of CF vary and there are many mutations associated with this genetic disorder. Some of the symptoms include, chronic cough, production of sputum, chronic pneumonia, digestive problems, especially with fat intake, sinusitis, diabetes.
One negative screening test may not have adequately ruled out cf. If you suspect cf, a screening sweat test should be performed. ...Read more

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Could a child under 2 be diagnosed with cystic fibrosis?

Yes: CF is an inherited disorder that requires 2 mutations (1 from mother & 1 from father) to lead to the clinical disease. If you have it, you were born with it. Many states in the U.S. Perform newborn screening that can pick the disease up at birth, but it can go undiagnosed for years in some cases. ...Read more

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What are the options available to us so we can be sure to have a child without cystic fibrosis?

What are the options available to us so we can be sure to have a child without cystic fibrosis?

Screening: If two parents are both potential carriers, screening will reveal your risk. The only way for two carriers to avoid having a child is an elective abortion after an amniocentesis and genetic screening of the fetus. Children with cf, however, are children that can live full lives, and there are promising treatments on the horizon. ...Read more

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If your child has cystic fibrosis would it definitely show up on the heel prick test?

If your child has cystic fibrosis would it definitely show up on the heel prick test?

CF screening: The test performed at birth is a screening test and may miss some cases of cf. If your child develops symptoms of the disease or if there is a family history of cf, a follow up test may be ordered by your physician. ...Read more

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Does a child have to inherit the same mutation from both parents in order to have cystic fibrosis?

NO: Over 2, 000 mutations in the cftr gene are known which may cause cystic fibrosis. A child must inherit one mutation from each parent to have cystic fibrosis. ...Read more

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Do both parents have to be cystic fibrosis carriers in order for their child to be born with this disease?

Yes: Both parents have to be carriers and then their child has 25% chance of having the disease, 50% chance of being a carrier and 25% of not even being a carrier. The most common mutation causing cystic fibrosis is Δf508. But there are over 1500 mutations identified so far. ...Read more

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Does my child have to inherit the same exact mutation from both parents in order to develop cystic fibrosis?

No: You need 2 mutations to inherit cf, but they can be, and often are, 2 different mutations. The type of mutation can have an impact on the severity of the disease and the child's prognosis. ...Read more

Toys (Definition)

Toys is a topic that includes recommendations for choices of toys, and for avoiding choking or injuries when playing with toys. A toy is any object created for a person to play ...Read more