Doctor insights on:
What Is The Rate Of Survival For Carcinoid Syndrome
Carcinoid refers to neuroendocrine tumors originating in gastrointestinal (GI) tract, lungs and appendix. They are usually indolent developing over many years. Aggressive, fast-growing forms such SCLC known as Oat Cell Ca of lung represents neuroendocrine carcinoma that exhibits rapid growth and early spread to distant sites. They are sensitive ...Read more
Depends on stage: Carcinoid syndrome is different than having a carcinoid tumor. The syndrome is caused by the tumor secreting a hormone (serotonin) which can cause flushing, heart palptitations, and diarrhea. Can get carcinoid tumors in the tracheobronchial tree and gastrointestinal ttact. Survival depends on whether the tumor can be removed, and whether it has read to other organs. ...Read more
Quite long usually: Of all the variants of neuroendocrine cancer, carcinoid is usually very slow growing and we measure life expectancy in years to decades of life. This does not however mean that they do not produce quality of life limiting symptoms for patients with carcinoid syndrome. The syndrome can lead to malabsorption and its associated nutritional consequences as well as valvular disease of the heart. ...Read moreSee 1 more doctor answer
Imaging too: If the blood and urine tests suggest carcinoid, a pet scan is the next best test to try to localize the tumor. Octreotide scanning does not have great resolution. There are newer imaging studies available at select centers. These scans use a higher resolution marker to better see small volume disease. This can help us understand extent of disease and symptoms better. ...Read moreSee 1 more doctor answer
Confirm: First you have to confirm the diagnosis. If diagnosis made, then the extent of disease needs to be evaluated. If limited and no symptoms, there is nothing to do. If there is extensive disease, then either systemic therapy alone or along with surgical intervention. Hope this helps. ...Read moreSee 1 more doctor answer
I was getting flushed once a week, then each few days now it's every day. Hot bright dryflush that lasts.Dr wants carcinoid syndrome test. What is it?
Good idea: The usual screen is urinary 5hiaa. Seem chromogranin is a new pricy test. Good luck with this. ...Read more
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