Doctor insights on:
What Is The Life Expectancy For A Chld With Vacterl Syndrome
Normal: Life expectancy should be normal. There are no effects that affect heart, or other major systems that would reduce life expectancy. ...Read more
This disease has been diagnosed in about 300-500 people and is known as a disease entity only since 2005. Life expectancy is expected to increase like in Marfan's syndrome with improved awareness and medical progress.
Due to the high risk of death from aortic aneurysm rupture, patients should be followed closely.
A valuable resource for this is
http://www. Loeysdietz. Org/index. Ph. ...Read more
No data about this: Life expectancy is generally reduced but there is no data available to tell us how much it is reduced. It depends on the complications of the disease, especially if there are cardiac problems. ...Read more
Normal: If the craniofacial abnormalities are addressed then the life expectancy can be otherwise normal. ...Read more
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Normal: Before neurosurgeons learned how to open prematurely fused skull sutures, patients who went untreated would have severe effects from constricting the brain, since the skull could not enlarge fast enough to accommodate the growing brain. When treated early, the brain is allowed to grow normally. ...Read more
Usually normal: The life expectancy of a person with Treacher Collins Syndrome is normal. The exception is if there are significant jaw malformations which can affect breathing. ...Read more
Unknown: It is not known if FAS affects life expectancy. ...Read more
Haven't seen numbers: Haven't seen any numbers on life expectancy of lennox-gastaut patients. Maybe nobody has collected and published that information. One website reported a 3%-7% mortality in patients over a 9 year period (that sounds like 1/2 % per year). The deaths were often due to accidents. In such disorders, if a person is watched and cared for closely, he can outlive parents, and die of other natural causes. ...Read more
Average > 60 yrs: As long as the initial issues facing these infants are addressed as they would for normal kids (heart defects, abdominal defects, etc) they have a projected lifespan in excess of 60 years. ...Read more
My friend has a mild form of marphan syndrome. She takes her medication. What's her life expectancy?
Normal: These women appear no different from any other and have no special problems. ...Read more
Normal: Why do you ask? If a family member is affected, the parents should have received genetics counseling: If not, they should arrange for it. See TreacherCollins. Org ...Read more
Can be normal: Very tricky question. We know that over 80% of affected children reach beyond age 5 & it's not unusual for them to have normal lifespans. It's also dependent upon the cause of the spasms & whether the underlying reason (s) can be treated. The syndrome itself is not life threatening itself rather related illnesses that tend to complicate things in addition to medication consequences. ...Read moreSee 2 more doctor answers
Genetic disorder: Rare disorder multiple systems involved apearance of face and body demonstrates poor developement. Loss of hearing, diabetes, heart failure, aortic valve abnormalities, high blood pressure, just to name a few issues. Life expectancy depends on early diagnosis and intense treatment and follow up. It can be normal except if there heart defect that is serious. ...Read more
Here are some...: Since West syndrome is a very rare epileptic condition in the infants, most of doctors may not have personal experience in it. But, I found the contents in the link to follow could be helpful; that is http://syndrome. Org/west-syndrome/. Best wish to his health and your family; Happy Holidays 2015. ...Read more
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