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Doctor insights on: What Exactly Is Primary Lymphedema

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What exactly is primary lymphedema?

What exactly is primary lymphedema?

Not an identifiable: Cause. As dr. Rosen said, most lymphedema is secondary, meaning it is due to something like surgery and/or radiation. Primary lymphedema is divided into three categories: congenital lymphedema, lymphedema praecox, and lymphedema tarda. Congenital means you are born with it and a small group of these are hereditary. Praecox develops before age 35 (most have this) and tarda develops after 35. ...Read more

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Dr. Ted King
414 doctors shared insights

Lymphedema (Definition)

Lymphedema is a medical condition in which the tiny amount fluid and protein that normally seeps out of blood vessels as it flows by cells cannot be returned to the blood vessels due to abnormalities in the lymph system, or the collecting ducts ...Read more


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Diagnosed w/ lipedema and severe primary lymphedema from hips down.Took over 15 yrs to be diagnosed correctly.New or experimental studies? Treatments?

Diagnosed w/ lipedema and severe primary lymphedema from hips down.Took over 15 yrs to be diagnosed correctly.New or experimental studies? Treatments?

Lymphedema : Treatments are based on the exam. Also what is fluid and what is not. Options can include removal of tissue, reduction of fatty component and lymph node transfer. ...Read more

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How common is lymphedema?

Surprisingly common: According to lymphnotes.Com (http://www.Lymphnotes.Com/article.Php/id/401/), in the U.S., just within the medicare age population, the number of persons afflicted with lymphedema, or at risk of developing it, exceeds 6.8 million individuals. That would include all causes of lyphedema both primary (don't know the cause) and secondary ( due to cancer, radiation, surgery, etc.). ...Read more

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Who is at risk for lymphedema?

Who is at risk for lymphedema?

Surgery+/-Radiation: Anything that disrupts the lymphatic microcirculation of an extremity can cause lymphedema. The most common cause is the surgical removal of lymph nodes (ln) to stage certain cancers (breast and melanoma, most commonly). Breast cancer treatment often includes radiation therapy; if the lns are included in the radiation field, the risks increase. Thankfully, rates are down due to new techniques. ...Read more

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Lymphedema bandages alternative?

Lymphedema bandages alternative?

Compression Pump: There are a couple of compression pump systems that are in use today approved by the fda for lymphedema. All you need is an rx from your doctor to have a pump prescribed for you and the inflation bags fitted appropriately. ...Read more

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What can I do if I have lymphedema?

What can I do if I have lymphedema?

Therapy: There is physical therapy directed to improve this and also sleeves you can wear find a lymphedem clinic in your area. www.drlugo.com. ...Read more

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How is lymphedema diagnosed in women?

How is lymphedema diagnosed in women?

Usually clinically: Most diagnoses are made clinically with signs of swelling. Unfortunately, by that time, there is already fibrosis and changes are controllable but not reversible. Phys ther often use tape measurements which can be very variable (location, tightness of tape, dominant vs non-dom arm). Water displacement works well but cumbesome. Bioimpedance is simple and reproducible but insurance won't pay. ...Read more

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Can lymphedema be fatal?

Rarely: It is impossible to give a specific answer. It would depend on what other conditions coexist with the lymphedema. Severe lymphedema could coexist with cardiovascular disease, diabetes etc. In severe caeses, ulceration , infection can occur and lymphedema can become permanent. ...Read more

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