Doctor insights on:
What Exactly Is Primary Lymphedema
Not an identifiable: Cause. As dr. Rosen said, most lymphedema is secondary, meaning it is due to something like surgery and/or radiation. Primary lymphedema is divided into three categories: congenital lymphedema, lymphedema praecox, and lymphedema tarda. Congenital means you are born with it and a small group of these are hereditary. Praecox develops before age 35 (most have this) and tarda develops after 35. ...Read moreSee 1 more doctor answer
Diagnosed w/ lipedema and severe primary lymphedema from hips down.Took over 15 yrs to be diagnosed correctly.New or experimental studies? Treatments?
Surprisingly common: According to lymphnotes.Com (http://www.Lymphnotes.Com/article.Php/id/401/), in the U.S., just within the medicare age population, the number of persons afflicted with lymphedema, or at risk of developing it, exceeds 6.8 million individuals. That would include all causes of lyphedema both primary (don't know the cause) and secondary ( due to cancer, radiation, surgery, etc.). ...Read moreSee 2 more doctor answers
Surgery+/-Radiation: Anything that disrupts the lymphatic microcirculation of an extremity can cause lymphedema. The most common cause is the surgical removal of lymph nodes (ln) to stage certain cancers (breast and melanoma, most commonly). Breast cancer treatment often includes radiation therapy; if the lns are included in the radiation field, the risks increase. Thankfully, rates are down due to new techniques. ...Read moreSee 2 more doctor answers
Usually clinically: Most diagnoses are made clinically with signs of swelling. Unfortunately, by that time, there is already fibrosis and changes are controllable but not reversible. Phys ther often use tape measurements which can be very variable (location, tightness of tape, dominant vs non-dom arm). Water displacement works well but cumbesome. Bioimpedance is simple and reproducible but insurance won't pay. ...Read moreSee 2 more doctor answers
Rarely: It is impossible to give a specific answer. It would depend on what other conditions coexist with the lymphedema. Severe lymphedema could coexist with cardiovascular disease, diabetes etc. In severe caeses, ulceration , infection can occur and lymphedema can become permanent. ...Read moreSee 2 more doctor answers
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