Doctor insights on:
What Doctor Do I See For Hematomacrosis
Yes: A good screen for common, easy-to-treat hemochromatosis is the transferrin saturation, the ratio of iron to iron binding capacity in the blood. Liver enzymes will also be drawn. More than 50% in a woman or 60% in a man is suggestive; follow-up may include serum ferritin, a more costly blood test which if much elevated confirms the diagnosis. Liver biopsy for questionable cases. ...Read more
Many: Usually it's picked up as elevated liver enzymes / other labs, but once the hemochromatosis patient is treated by removal of blood / iron, they usually say, "wow! i no longer have the blahs." impotence, arthritis at the thumb base, the gray skin, lots more, all self-heal when it's treated. ...Read more
I told my family members that I had hereditary hemochromatosis and what tests to have done, but they won't listen to me; they say that their own doctors tell them "not to worry". I am worried; what can I do?
Lay out your labs: Sometimes what you say doesn't seem strong enough evidence to someone unlike visual proofs. You may want to show them your bloodwork and even genetic testing results to give them a wake up call. Finally, you can only suggest, you cannot change them if they are not willing to. ...Read moreSee 2 more doctor answers
I have hematomacrosis. And also have low t. My doctor does not believ in giving a script for t. I am 31 and need help. The iron and low t. I feel it!?
I have hematomacrosis and low t. I am look for a doctor in northeat pa to help treat trt. I am 31 and have all the side effects for this. Can anyone h?
Endocrine specialist: Hemochromatosis can result in low testosterone (hypogonadism), typically due to inadequate pituitary function (low FSH and low lh). Studies have shown that control of iron levels can reverse hypogonadism in situations. Alternatively, one can be treated with testosterone replacement via gel, solution, oral troches, pellets, shots, etc. Find an endocrine specialist -- see aace.Com. For local experts. ...Read more
My iron sat increased from 20% to 44% in 2 years. ALT mildly elevated (64, 76)for 6 months and mild hepatomegaly. Doc said it may be hemochromatosis?
Get genetic test: The change in iron saturation suggests disturbance in iron metabolism, which in a young patient like you may be a sign of hereditary hemochromatosis. The rise in ALT suggests mild liver injury. You need a follow-up with genetic testing and more detailed liver and iron profiles ...Read more
My doc says 44% iron saturation is considered elevated and wants to test for hemochromatosis. Had iron studies due to elevated ALT. Is 44% bad?
Not bad: presuming you are talking about Transferrin saturation- 44% would be considered High Normal; Ferritin levels would be more useful There are multiple reasons to have elevated Transferrin saturation- only one of which is Hemochromatosis. Liver dysfunction is one of the others- which may explain elevated ALT. Discuss with ur doctor. Good Luck ...Read moreSee 1 more doctor answer
Iron studies panel was abnormal indicating Hemochromatosis. Doc sent me for genetic blood test to confirm. If this is positive, what is the treatment?
Can the oral contraceptive pill cause iron overloading? And if so, should it be stopped (my doctor has ruled out hemochromatosis)?
Possibly: Women who use oral contraceptives have higher blood iron levels than women who do not. It is thought that this may be due to the decrease in menstrual bleeding that is associated the the pills. However, there is no clear data that this causes iron overload/disease in the liver. ...Read more
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