Doctor insights on:
What Do Doctors Not Know About Desmoid Tumors
Behavior/testing: There are a variety of tumors under this umbrella name. Some of them occur in young while others in older age groups. Some are frankly cancerous, others not. We are still learning better ways to diagnose, predict behavior and find better ways to treat some of the more aggressive ones and ones that occur in uncommon areas like the brain. ...Read moreSee 1 more doctor answer
Your Doc advice??: The doctor who diagnosed you to have desmoid tumnor must have given you some advice! What did he ask you to do???. Please tell us the full story, then we can guide you further. Desmoid Tumor is a low grade cancer, so removal of the tumor is the best choice to be able to control it.. ...Read more
Soft tissue tumor: A desmoid is a rare soft-tissue tumor that looks like scar tissue. Desmoids do not spread throughout the body like other types of tumor, and aren't really considered "cancerous". They are lumps that continue to grow in one place, destroying the tissue around them. They can occur inside or outside the body. Go to www.Dtrf.Org for more information. ...Read moreSee 1 more doctor answer
FAP and pregnancy: The exact cause of desmoid tumors is unknown but they appear intrabdominally in about 20-30% of people who have a genetic condition called fap (familial adenomatous polyposis). Sporadically, they can occur in the abdominal wall or extremities during or following pregnancy or sometimes following trauma or surgery. These tumors rarely spread but can be locally aggressive causing pain or obstruction. ...Read moreSee 1 more doctor answer
Confidence : You must have complete confidence in your surgeon. Desmoids are generally benign. ...Read more
Antiestogens: Desmoid tumors are low grade fibrous tumors that occur on the abdominal wall or extra abdominally. Surgical resection with margins indicated. Pharmacologic therapy with antiestrogens (tamoxifen) and prostaglandin inhibitors may also be used. In cases of recurrent extra-abdominal desmoid tumors a chemotherapeutic regimen of doxorubicin, dacarbazine, and carboplatin may be effective ...Read more
Very Rare: Desmoid tumors do not arise directly in the brain, however, these tumors can rarely occur intracranially, meaning inside the skull. This has been reported most often in children with an inherited condition called fap (familial adenomatous polyposis). Desmoids in location mag be impossible to remove and can gtow back after surgery so treatment usually includes chemotherapy and/or radiation ...Read moreSee 1 more doctor answer
NOT USUALLY: These types of tumors are rare, and I have limited experience, but of those I have seen, were located within shoulder and brachial plexus (very gadolinium positive). Am unaware of this type of tumor involving brain intrinsically or extrinsically, and the vast majority of primary brain tumors are derived from basic brain cellular components. ...Read more
Oval lump upper right quadrant can only feel when standing, ultrasound and MRI revealed nothing conclusive, doctor said desmoid but no follow up?
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