Doctor insights on:
What Are The Chances Of Having A Second Child With Cystic Fibrosis
What are the chances of a child getting cystic fibrosis among the different racial groups in the u.S.?
Overall 1/3700: Acording to the CF foundation: the overall birth prevalence is 1/3700 . It can occur in any race, however the greatest incidence is in caucasians of northern european descent, being 1/2500. The other major groups affected are hispanics 1/13500, african americans 1/15000. More than 10 million of us carry one part of the defective gene, but to have the disease you must have a copy from both parents. ...Read moreSee 1 more doctor answer
What are the chances my child will be born with chromosomal abnormalities? I was told my unborn child has echogenic bowels, that i tested higher for the risk of Down syndrome and as a carrier of the cystic fibrosis trait
There : There are several ultrasound findings that can suggest down sysndrome, and echogenic bowel is one of them. There could be other explanations for that finding, though. It sound like you will need some testing to find out what's going on. The two tests used most commonly are amniocentesis and chorionic villous sampling. Each has its own risks and benefits, so you should discuss them with your obstetrician. I would suggest that you do this sooner than later, and regardless of whether the outcome might lead you to terminate the pregnancy. ...Read more
Varies considerably: There is considerable variance between children and between institutions for the cost of of hospitalizing a child with cf. Children have variable needs for hospitalization depending on their genotype and adherence to their regimen, and (unfortunately) there is a large amount of variance in practices while hospitalized and costs for these practices. ...Read moreSee 1 more doctor answer
No: Clean helps & dust free helps for any kid.To some extent this ideal is relative and perfection on either point is unrealistic. With a stable hygienic environment, close monitoring by a CF center, & proper nutrition, these kids do well.Your CF center should have guidelines for healthy living they will share with you during your regular followups. ...Read more
Is it important for a child with cystic fibrosis to be in a moderately clean and dust free environment ?
CF Nutrition: High calorie foods have more calories per ounce. For example, a tablespoon of olive oil, an ounce of cheese has more calories than same amount of rice. Adding cheese, olive oil, nuts, dressing to the meal will help boost calories. In addition, supplements are available specifically for CF patients. The cff.Org and prmg respiratory practice (fax 858 259 9689) can provide further information. ...Read moreSee 1 more doctor answer
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