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Doctor insights on: What Are Some Of The Gastrointestinal Issues That Eds Patients May Deal With

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Dr. Mark Pack
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Gastrointestinal (Definition)

Definition: anything pertaining to ...Read more


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Do some eds patients suffer with sleep problems?

Do some eds patients suffer with sleep problems?

EDS: Can you specify what eds stands for? Some abbreviations mean different things to different people. ...Read more

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Do gastrointestinal issues/problems occur with eds?

Do gastrointestinal issues/problems occur with eds?

Not common: It depends on the subtype of ehlors-danlos syndrome, but not a common feature except in the most severe subtypes with excessive tissue tears without much trauma. Speak with york physician to see if you have any of those subtypes. ...Read more

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How come many patients with clinical eds diagnoses do not test positive yet have vascular issues?

How come many patients with clinical eds diagnoses do not test positive yet have vascular issues?

No simple test: Eds in one form (vascular eds) can cause weakness of the blood vessels. If the vessel ruptures seriousl consequences can occur. Eds causes a weakness or loss of elasticity which can lead to stretching, ballooning out and eventual rupture. Probably easiest way to diagnose is with ultrasound or ct with contrast. ...Read more

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Should eds patients not have chemical induced stress tests?

Should eds patients not have chemical induced stress tests?

Not Sure: I don't know of any specific contraindication to Adenosine stress test but you should convey your concerns to the doctor performing or ordering the test. ...Read more

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Are there drugs that vascular eds patients should avoid? What is the best pain reliever for kids?

Are there drugs that vascular eds patients should avoid? What is the best pain reliever for kids?

Nitrates/tylenol: Eds pts should avoid nitrates when using eds drugs such as viagra. Children are usually given tylenol (acetaminophen) based on safety over many years. However all forms of analgesics can be use in children depending on the circumstance. All doses will need adjustment. ...Read more

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What is the best way to find a good pain management physician? I am not looking to just take meds. want holistic care. complicated patient EDS & CMT

What is the best way to find a good pain management physician? I am not looking to just take meds. want holistic care. complicated patient EDS & CMT

University Hospital: Go to a reputable university hospital where pain doctors can collaborate with many specialists in the care of complex pain patients. ...Read more

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What impact does ehlers danlos type 3 have on lumbar fusion surgeries, and is ther a type of fusion that would be better for an eds patient?

What impact does ehlers danlos type 3 have on lumbar fusion surgeries, and is ther a type of fusion that would be better for an eds patient?

EDS has surgery risk: Ehlers danlos syndrome (eds) is a connective tissue disorder that has many subtypes. In type 3 eds, joint overextensibility can cause serious orthopedic issues.In eds of any type, anesthetic & surgical complications, while rare, are more common than in someone without eds, including blood vessel rupture, hemorrhage, and airway and neck damage.Type of lumbar fusion doesn't seem to affect these issues. ...Read more

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How common is bilateral hip dysplasia in EDS patients. Both hips dislocate when ever I relax my gluteus muscles. I am in severe pain. ?

How common is bilateral hip dysplasia in EDS patients. Both hips dislocate when ever I relax my gluteus muscles. I am in severe pain. ?

Not that uncommon: EDS I autosomal dom includes marked skin involvement (hyperextensibility,generalized joint hypermobility and complications (dislocations, subluxations, pes planus), muscular hypotonia, and delayed motor development. arthrochalasic type 7 autos dom characterized by severe generalized joint hypermobility with recurrent subluxations and congenital hip dislocation. Short stature due to kyphoscoliosis ...Read more

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Are intravenous iron infusions contraindicated or riskier for patients with vascular ehlers danlos syndrome?

Are intravenous iron infusions contraindicated or riskier for patients with vascular ehlers danlos syndrome?

YES!!: Most of the time, if you indeed iron deficient, you can take foods which are rich in iron. If that's not for you you can take either tablets or liquids. To get an IV infusion of an iron preparation is running a big risk of very serious side effects. Why do you want to take such risks with your body?? You can get intramuscular shots if you have a masochistic personality which you want to satisfy! ...Read more

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Should a patient stop ssris if develop a chronic gastrointestinal problem?

Should a patient stop ssris if develop a chronic gastrointestinal problem?

Taper: Make sure you talk to your doctors. These meds have to be tapered off. You cannot abruptly stop them. ...Read more

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Why do some with clinical eds diagnoses test negative for veds, but have vascular events?

Why do some with clinical eds diagnoses test negative for veds, but have vascular events?

Older testing: If a comprehensive evaluation is done the people with vascular risk can be determined. The incidence of vascular complications reflects available testing about 15 years ago. With improved testing techniques unanticipated vascular complications are rare without additional risk factors to include smoking. ...Read more

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Some fellow p.O.T.S friends tell me i could have eds. Im only hypermobile in elbows and thumbs...I use to be a gymnast but not that flexable anymore..

Some fellow p.O.T.S friends tell me i could have eds. Im only hypermobile in elbows and thumbs...I use to be a gymnast but not that flexable anymore..

Only way to: Know for sure is by careful history and physical examination, along with some tests. Can't tell you any more here. Get to a doctor to make sure. ...Read more

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What are the nutritional needs for general surgery patients and after gastrointestinal surgery?

What are the nutritional needs for general surgery patients and after gastrointestinal surgery?

Protein,vit&minerals: Surgery is a significant stress on the body and recovering from surgery requires the body to have adequate protein, vitamins, minerals and essential oils. It is best to have good body stores prior to surgery.After surgery particular nutrients may speed recovery.I advise a well-rounded high-quality multivit./mineral supplement with additional vit. C (2000 mg 2x/day) & zinc (30-50mg/day) see comment:. ...Read more

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Can you tell me the nutritional needs for general surgery patients and after gastrointestinal surgery?

Can you tell me the nutritional needs for general surgery patients and after gastrointestinal surgery?

Healthy : All patients are preferably eating a healthy diet with proper amounts of calories to maintain their body weight. When someone has GI surgery this can affect their ability to eat. If they are not going to be able to eat within 5 days they need IV nutrition to keep them from falling behind. If you get behind in nutrition then you don't heal like you should and there can be complications. ...Read more

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I have EDS and bleeding issues associated with the faulty collagen would surgical or medical abortion be a safer approach?

I have EDS and bleeding issues associated with the faulty collagen would surgical or medical abortion be a safer approach?

Medical abortion: With EDS you should work closely with the physician managing the EDS. If you have bleeding disorder - i.e.bleed more easily - then medical abortion is somewhat safer. Avoiding the need for the collagen function, in order to repair tissue after surgery would be wise in your case. However, medical abortions have risk of bleeding as well. Please work with an EDS experienced physician. ...Read more

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How do you get eds?

How do you get eds?

Genetic!: You are born with it. It (several variants) are genetically acquired and in the patient's dna. It not acquired! treatments are symptomatic. There are no cures. ...Read more

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