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Doctor insights on: Wegeners Granulomatosis And Lupus Coexisting

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Causes of wegeners granulomatosis and treatment?

Causes of wegeners granulomatosis and treatment?

Autoimmune disease: Like all autoimmune diseases, the cause is not really known, but likely a combination of genetic factors and environmental exposures (e.g., infections, chemicals, pollutants). Treatment depends on how severe disease it is. Typically steroids (e.g. Prednisone) and if severe, Cytoxan or rituxan (rituximab). If limited disease (just nasal/upper airway involvement), Methotrexate may be sufficient. ...Read more

Dr. Lois Freisleben-Cook
32 Doctors shared insights

Wegener's Granulomatosis (Definition)

Wegener's granulomatosis (Granulomatosis with polyangiitis) causes vasculitis (inflammation blood vessels of nose, sinuses, throat, lungs & kidneys). ...Read more


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Has anyone ever heard of the disease wegeners granulamatosis?

Has anyone ever heard of the disease wegeners granulamatosis?

Yes: Wegener's granulomatosis with polyangiitis is an incurable form of vasculitis (inflammation of blood vessels) that affects the lungs, kidneys, and other organs. Due to its organ damage, it is life-threatening and requires long-term immunosuppression. Five-year survival is up to 87%, with some of the mortality due to toxicity of treatment. Since that is an average figure, some will live longer. ...Read more

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What is the disease wegeners granulamatosis in kids?

What is the disease wegeners granulamatosis in kids?

WG: Wegener’s granulomatosis (WG) is a rare disease that causes the walls of blood vessels to become inflamed (called vasculitis). This limits blood flow to tissues and can affect any organ. WG is a type of autoimmune disease. This means the body’s immune system attacks its own tissues. Its cause is unknown. ...Read more

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I developed p.O.T.S and lupus post pregnancy, my BP also drops when standing, is there ever a chance of it getting better?

I developed p.O.T.S and lupus post pregnancy, my BP also drops when standing, is there ever a chance of it getting better?

P.O.T. S: P.O.T.S and lupus post pregnancy needs thorough evaluation and management due to associated symptoms of dizziness, near syncope, palpitations to name a few with changes in posture. Lupus by itself needs careful evaluation and management by a rheumatologist due to its multi system involvement. With full understanding and proper management symptoms of p.O.T.S has better prognosis in younger pts. ...Read more

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2 IgA results of low 50's I have lupus, I experience swollen painful lymph nodes, painful breathing etc can low IgA cause symptoms, what should I do?

2 IgA results of low 50's I have lupus, I experience swollen painful lymph nodes, painful breathing etc can low IgA cause symptoms, what should I do?

No: This would not have accounted for your symptoms. Make sure you get a lung function test to find out whether asthma is the only cause for your breathing impairment. Another remote possibility is a drug reaction from the many drugs you have been taking to control your autoimmune disorder. If your rheumatologist can't help you, get a 2nd opinion. ...Read more

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How come I can jog 2.5 miles without any issue or shortness breath but I walk a flight of stairs and feel out of breath, I have P.O.T.S and MILD lupus

How come I can jog 2.5 miles without any issue or shortness breath but I walk a flight of stairs and feel out of breath, I have P.O.T.S and MILD lupus

Mgt/ workup: From your history, your symptoms warrant further evaluation. This may include imaging of your chest, pulmonary function testing and a cardiac evaluation.
Exercise at an incline consumes more oxygen than exercising on a flat surface. ...Read more

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What;s the best pain medicine for lupus patients?

What;s the best pain medicine for lupus patients?

Acetaminophen NSAIDS: For symptom relief of pain you can use Acetaminophen or NSAIDs like Ibuprofen or o Naprooxen or Cox 2 Celebrex
Along wih Antimalarials (Hydroxychlroquin) and low dose steroids ...Read more

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How to tell if I have t1 diabetes, lupus and m.S at age 17?

How to tell if I have t1 diabetes, lupus and m.S at age 17?

Not likely: Why worry about 3 disorders, as you likely possess one unifying diagnosis to explain your problems. A good place to start is with an endocrinologist to deal with diabetes and the complications secondary to this. Focus on these issues, and later, if things seem peculiar look into co-morbities. Lastly, if you possess diabetes and lupus, doubt you have ms in addition. ...Read more

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Is it ok for s.l.e lupus patients to take suppliments for gym workouts such as, Karbolyn xr3, stance bcaa, gluamatic

Is it ok for s.l.e lupus patients to take suppliments for gym workouts such as, Karbolyn xr3, stance bcaa, gluamatic

Not sure, I don't: Think anyone knows for sure if its okay for sure. No study has been done on those supplement with SLE. I would recommend stay simple supplement with multivitamin, Vit D, B complex. At the most, protein shake for post work out. ...Read more

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My hemoglobin is always slightly low (in the 10's all the time) my RDW is always high, every other lab normal- is this related to lupus?

May be: Lupus is reaponsible for several types of anemia. Chronic disease, iron deficiencymhemolysisn. Your dr needsnto study the type of anemia you have and givebthe proper therapynor find out what isbthe reason fornthe anemiantomunderstand what is going on. ...Read more

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Why do I have a lupus flare during my menstrual cycle most of the time? Also my p.O.T.S symptoms worsen during this time how can I help this?

Why do I have a lupus flare during my menstrual cycle most of the time? Also my p.O.T.S symptoms worsen during this time how can I help this?

Inflammation: Lupus and the pre-menstrual phase of the cycle are both known for being states of increased inflammation, so it makes sense that you might have this and notice it during your menstrual cycle. I would speak with your rheumatologist regarding medications that are safe to take to diminish the flare symptoms, as some anti-inflammatories are harmful for kidneys. Best of luck. ...Read more

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Iam an S.l.e Lupus patient, & I want to try suppliments, With my workouts such as, Karbolyn xr3, stance bcaa, gluamatic. Will it cause harm to my body?

Not worth it: There is no scientific proof that these supplements are beneficial for your SLE but there are unknown risks which may be harmful. I'd advise against taking this step. ...Read more

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I hate my life and how I have to be afraid of my medical illness's at 27. Lupus. P.O.T.S. Now maybe lung disease! Yes u can see im anxious w/ my questions but I just want to be ok for once. Just ok.

I hate my life and how I have to be afraid of my medical illness's at 27. Lupus. P.O.T.S. Now maybe lung disease! Yes u can see im anxious w/ my questions but I just want to be ok for once. Just ok.

Find a therapist: Having chronic illness can put a lot of strain on a person and cause depression and anxiety. Feeling like you are always having some medical issue is very frustrating. Talk with your doctor about a referral to a good therapist. Finding better ways to manage your stress can help you manage your illness better as well. It won't make your disease go away, but may help you feel better! ...Read more

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How do people treat lupus?

Meds & prevention: All people with systemic lupus should take Plaquenil (hydroxychloroquine) unless allergic. It helps control flares & prevent organ damage. Also nsaids help pain. Immune suppression drugs may be needed. Preventing infection (vaccines, hand-washing, etc.) and preventing heart disease are important. A rheumatologist is helpful. ...Read more

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Can you tell me about lupus?

Can you tell me about lupus?

A complex autoimmune: Lupus is a very complex disease where a patient's own immune system is attacking your own body. Every patient has a different presentation and you would do best discussing lupus with your doctor and an experienced rheumatologist. ...Read more

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Can Lupus affect your speech?

Yes: Systemic lupus erythematosus (SLE) is a multisystem autoimmune connective tissue disorder with various clinical presentations. SLE affects many organ systems, including the central and peripheral nervous systems and muscles. Speech may be affected, although not a common manifestation of SLE. You may need a spinal tap to examine the fluid for evidence of white cells, protein and antibody. ...Read more

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What other diseases mimic lupus?

Fibromyalgia: Lupus can cause almost any symptom so it often mimics other diseases. It is diagnosed by a list of clinical and lab criterea. It is best diagnosed by a rheumatologist with experience in this disease. It is most commonly confused with other autoimmune diseases and other types of arthritis. It is also often missed in fibromyalgia which occurs with it. I hope this is the information you ...Read more

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What things can make lupus worse?

Immune system: Other things like stress and other medical conditions can worsen lupus. Vitamin d is seeing more as an important part of immune and other issues. ...Read more

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What can you tell me about lupus?

What can you tell me about lupus?

Many types: There are many types of lupus and this depends on the types discussed.

This is skin lupus, kidney lupus, lung lupus, neurologic lupus, blood count changes. Each of these have many different sub-types. You can discuss this with your physicians. ...Read more

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How bad is lupus? & how bad does it get?

Everyone is different: Everybody with lupus is different. Some people could have a very mild lupus. Others can have very serious involvement of many organs. The purpose of our therapy is to control it the best we can and help stamp it out. ...Read more

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How can I tell if I have systemic lupus?

How can I tell if I have systemic lupus?

Not a simple answer: Currently the diagnosis of sle is based on 11 criteria that the patient may have at once or over a period of time. To have a diagnosis, 4 of them must be met. Some criteria are clinical and others are from lab tests. See your physician if you are concerned about it. ...Read more

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How do you get lupus and can it be cured?

How do you get lupus and can it be cured?

Unknown cause: Lupus (systemic lupus erythematosus)is an autoimmune disease that can affect almost any organ system of the body. Although we know that changes in some genes may put someone at increased risk for lupus, we can't predict who will develop this since it involves an immune system that was at risk that was then hit with unknown environmental trigger (s).It cannot be cured but it can be put into remission. ...Read more

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What kinds of medications can cause lupus?

Numerous: Numerous meds can cause a drug induced lupus. Google the term and you can find the complete list. ...Read more

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If I have lupus will I pass it on to my baby?

If I have lupus will I pass it on to my baby?

Pregnancy and lupus: Chances of baby developing lupus are very small. Neonatal lupus is a condition in which mothers ant-ro or anti-la antibodies temporarily pass through the placenta to baby and can cause rash or rarely heart block needing a pacemaker. Chances of a childhood lupus born to a lupus mother is less than 10% in females and 2% in males and chance of autoimmune disease in their life lime is 15-20% range. ...Read more

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Will I really need a final diagnosis for lupus?

Yes!: I have many patients with "chemical lupus, " that is mild tests are positive, usually with low-titer ds-dna positive and no clinical disease whatsoever. Do they have sle? This is not a rhetorical question, since my diagnosis will worry the heck out of many, and can be a disability issue. In my opinion, you do not have lupus unless you have clinical disease. I treat with ho-q at 6mg/kg anyway! ...Read more

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What causes lupus to flare other then sunlight?

See details: Infection, stress and tobacco use. Often it flares without an obvious cause. ...Read more

Dr. Thomas Fiala
44 Doctors shared insights

Granulomatosis (Definition)

A process associated with a tissue reacton involving monocytes and tissue macrophages. Clasically this was seen in infections, like tuberculosis and some fungal processes. It is also seen and inflammatory and reactive ...Read more