Top
10
Doctor insights on: Wegeners Disease

Share
1

1
How can I live with wegeners disease?

How can I live with wegeners disease?

Vasculitis : Wegeners granulomatosis now known as granulomatosis with polyangiitis is incurable vasculitis that effects the nose , lungs , and kidneys. It requires life long immunosupressant. With treatment five year survival is 87%. ...Read more

See 1 more doctor answer
2

2
How can someone live and cope with having wegeners disease?

Living with Wegeners: I am sorry about your diagnosis. Wegener's disease is hard. Incurable, the five-year survival is up to 87%. Since this is an average number, some will live longer. The treatment is immunosupression, which is life saving, but it does also have some toxicity which, sadly can also be fatal. Happily, there are many people who are currently living quite normal lives of 30 years or more on treatment. ...Read more

4

4
Has anyone ever heard of the disease wegeners granulamatosis?

Has anyone ever heard of the disease wegeners granulamatosis?

Yes: Wegener's granulomatosis with polyangiitis is an incurable form of vasculitis (inflammation of blood vessels) that affects the lungs, kidneys, and other organs. Due to its organ damage, it is life-threatening and requires long-term immunosuppression. Five-year survival is up to 87%, with some of the mortality due to toxicity of treatment. Since that is an average figure, some will live longer. ...Read more

5

5
What is the disease wegeners granulamatosis in kids?

What is the disease wegeners granulamatosis in kids?

WG: Wegener’s granulomatosis (WG) is a rare disease that causes the walls of blood vessels to become inflamed (called vasculitis). This limits blood flow to tissues and can affect any organ. WG is a type of autoimmune disease. This means the body’s immune system attacks its own tissues. Its cause is unknown. ...Read more

6

6
Wegeners desease how long will you survive this illness?

Survival: Wegener's granulomatosis with polyangiitis is an incurable form of vasculitis (inflammation of blood vessels) that affects the lungs, kidneys, and other organs. Due to its organ damage, it is life-threatening and requires long-term immunosuppression. Five-year survival is up to 87%, with some of the mortality due to toxicity of treatment. Since that is an average figure, some will live longer. ...Read more

See 1 more doctor answer
7

7
What is wegeners?

What is wegeners?

Wegener's: Granulomatosis is an incurable form of vasculitis (inflammation of blood vessels) that affects the nose, lungs, kidneys, and other organs. ...Read more

See 1 more doctor answer
8

8
Could you give me information on wegeners ?

Autoimmunity rarity: Wegener's granulomatosis is a rare autoimmune condition that causes inflammation of blood vessels and tissues, usually the nose, mouth, ears, lungs, or kidneys. Untreated it was usually fatal in the past but new treatments have been developed that make this disease treatable. The doctor to see is a rheumatologist. See http://www.mayoclinic.org/diseases-conditions/wegeners-granulomatosis/basics/. ...Read more

See 1 more doctor answer
9

9
How long can wegeners go undiagnosed? Can a patirnt have vague symptoms (still be able to funcion) for months before a diagnosis is made?

How long can wegeners go undiagnosed?  Can a patirnt have vague symptoms (still be able to funcion) for months before a diagnosis is made?

Yes!: Delayed diagnosis can be caused by "vague" symptoms; mild disease at onset; the fact that wegener's is quite uncommon for an autoimmune disease. This rheumatic immune problem is best dealt with by a specialist in rheumatology. ...Read more

See 1 more doctor answer
10

10
Wegeners significance of + anca?

Wegeners significance of + anca?

Most are ANCA+!: Wegener's granulomatosis is part of a larger group of vasculitic syndromes, all of which feature an autoimmune attack by an abnormal type of circulating antibody termed ancas (antineutrophil cytoplasmic antibodies) against small and medium-size blood vessels.Apart from wegener's, this category includes churg–strauss syndrome and microscopic polyangiitis. ...Read more

See 1 more doctor answer