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Von Willebrand Factor Test
What does a low von willebrand factor (vwf) ag: 33 %, low vwf activity: 29 % and factor viii activity: 52 % result mean?
VWD: First of all, these test need to be repeated at least one more time, prederably while you are off all medications. If persistently low, this may mean that you have von willibrand disease (VWD) which is a bleeding disorder. These are several types of VWD and more testing is needed to determine the type. You need to see a hematologist for this. Avoid any surgery and trauma. ...Read more
Do you know of any person that has von willebrand disease and factor five disorder?My dr tells me I am unique. And i can't be treated for either one.
Unique, certainly: These are both fairly commonly inherited disorders. Factor v leiden occurs in about 1/100 people. Von willebrand is also about 1/100 or so. So it is conceivable that this could occur in the same person. There are probably a few like you around. ...Read moreSee 1 more doctor answer
Stimulaton test: Patients with type 1 VWD less vw factor than normal people. However, they store vwf normally in the cells that line their blood vessels. This can be released into the blood by certain drugs; one of these is ddavp. In a DDAVP challenge the vwf level is measured, a dose of DDAVP is given, and the level measured again to see if it goes up significantly. If so, DDAVP can be used to control bleeding. ...Read more
Do you know any person with von willebrand disease and factor five disorder both? I have both and I am told i can have no treatments?
Uncommon problem: Factor v deficiency is really rare, but vw disease is very common, but sometimes overdiagnosed. There are known cases of combined factor v and viii deficiency (i have had 1 patient with this). There is no treatment that would reverse this, but in case of bleeding or anticipated blood loss, we do offer treatment that works very well. ...Read moreSee 1 more doctor answer
My son was diagnosed with Von willebrand disease at age 6. He is now 17 and had test again because of a surgery in his future. We are told now that he does no have Von Willebrands. Is this possible?
Von Willebrand's: Sorry, but there's no way for a forum doctor to help very much. Diagnosing von Willebrand's disease is quite complex, usually including family history, personal history of abnormal bleeding, and several lab tests. This is something to address with his current doctor, or a hematologist, who in turn may need to see the results of the tests 11 years ago, if possible. Good luck! ...Read more
Bleeding history?: Doctors would typically order a test for VWD if the patient had a history of abnormal bruising and/or bleeding that made them suspicious, especially if there was a similar history among other members of the family. You don't mention how old your step-daughter is; the question is probably best directed to your daughter if she is an adult, or to her doctor if she is a child. ...Read moreSee 2 more doctor answers
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