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Von Willebrand Factor Test
What does a low von willebrand factor (vwf) ag: 33 %, low vwf activity: 29 % and factor viii activity: 52 % result mean?
VWD: First of all, these test need to be repeated at least one more time, prederably while you are off all medications. If persistently low, this may mean that you have von willibrand disease (VWD) which is a bleeding disorder. These are several types of VWD and more testing is needed to determine the type. You need to see a hematologist for this. Avoid any surgery and trauma. ...Read more
I have type 2 von willebrands, severe, unknown subtype. I only respond to humate p (factor viii and von willebrand factor). Is there anything else i can take to help with minor bleeds. ?
There are options: There are two other possibiliries that are approved "non-replacement" therapies for the treatment of VWD type 2a, in addition to humamte p there is Alphanate sd/ht. The other is called Koate dvi (factor viii) but this one is used in an off lable fasion for vwd. Read starting at page 50 here for more information. Only your hematologist should make any changes. http://www.nhlbi.nih.gov/guidelines/vwd/vwd.pdf. ...Read more
My son was diagnosed with Von willebrand disease at age 6. He is now 17 and had test again because of a surgery in his future. We are told now that he does no have Von Willebrands. Is this possible?
Von Willebrand's: Sorry, but there's no way for a forum doctor to help very much. Diagnosing von Willebrand's disease is quite complex, usually including family history, personal history of abnormal bleeding, and several lab tests. This is something to address with his current doctor, or a hematologist, who in turn may need to see the results of the tests 11 years ago, if possible. Good luck! ...Read more
Stimulaton test: Patients with type 1 VWD less vw factor than normal people. However, they store vwf normally in the cells that line their blood vessels. This can be released into the blood by certain drugs; one of these is ddavp (desmopressin). In a DDAVP (desmopressin) challenge the vwf level is measured, a dose of DDAVP (desmopressin) is given, and the level measured again to see if it goes up significantly. If so, DDAVP (desmopressin) can be used to control bleeding. ...Read more
Do you know of any person that has von willebrand disease and factor five disorder?My dr tells me I am unique. And i can't be treated for either one.
Unique, certainly: These are both fairly commonly inherited disorders. Factor v leiden occurs in about 1/100 people. Von willebrand is also about 1/100 or so. So it is conceivable that this could occur in the same person. There are probably a few like you around. ...Read moreSee 1 more doctor answer
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