Doctor insights on:
Von Willebrand Factor Disease
Do you know of any person that has von willebrand disease and factor five disorder?My dr tells me I am unique. And i can't be treated for either one.
Unique, certainly: These are both fairly commonly inherited disorders. Factor v leiden occurs in about 1/100 people. Von willebrand is also about 1/100 or so. So it is conceivable that this could occur in the same person. There are probably a few like you around. ...Read moreSee 1 more doctor answer
Do you know any person with von willebrand disease and factor five disorder both? I have both and I am told i can have no treatments?
Uncommon problem: Factor v deficiency is really rare, but vw disease is very common, but sometimes overdiagnosed. There are known cases of combined factor v and viii deficiency (i have had 1 patient with this). There is no treatment that would reverse this, but in case of bleeding or anticipated blood loss, we do offer treatment that works very well. ...Read moreSee 1 more doctor answer
What does a low von willebrand factor (vwf) ag: 33 %, low vwf activity: 29 % and factor viii activity: 52 % result mean?
VWD: First of all, these test need to be repeated at least one more time, prederably while you are off all medications. If persistently low, this may mean that you have von willibrand disease (VWD) which is a bleeding disorder. These are several types of VWD and more testing is needed to determine the type. You need to see a hematologist for this. Avoid any surgery and trauma. ...Read more
I have type 2 von willebrands, severe, unknown subtype. I only respond to humate p (factor viii and von willebrand factor). Is there anything else i can take to help with minor bleeds. ?
There are options: There are two other possibiliries that are approved "non-replacement" therapies for the treatment of VWD type 2a, in addition to humamte p there is Alphanate sd/ht. The other is called Koate dvi (factor viii) but this one is used in an off lable fasion for vwd. Read starting at page 50 here for more information. Only your hematologist should make any changes. http://www.nhlbi.nih.gov/guidelines/vwd/vwd.pdf. ...Read more
Interesting.: Von willebrand disease is a difficult disease to diagnose. The most typical form is type 1, generating low levels of protein. However, your body can make this protein, and usually the treatment is a medication that "stresses" the body, causing release of von willebrand protein. I have known of several people who have low levels during childhood and the levels normalize later in life. ...Read moreSee 1 more doctor answer
- Talk to a doctor live online for free
- Von willebrand factor test
- Von willebrand factor number
- Von willebrand factor
- Ask a doctor a question free online
- Von willebrand factor cba
- Von willebrand factor activity
- Types of von willebrand disease
- History of von willebrand disease
- Talk to a hematologist online for free