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Doctor insights on: Von Willebrand Disease Emedicine

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What is von willebrand disease?

What is von willebrand disease?

Bleeding disorder: Vwd is the most common inherited bleeding disorder. Von wiilebrand factor is a clotting protein that helps stabilize clots by helping to bind platelets together and also helps carry factor viii in the blood. In vwd, vw factor is either decreased or does not function appropriately. Clots will form but they are not stable, can easily fall apart/ dissolve, and bleeding will then occur. ...Read more

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Dr. Joseph Torkildson
45 doctors shared insights

Von Willebrand (Definition)

Von Willebrand disease is caused by a deficiency of von Willebrand factor. Von Willebrand factor helps blood platelets clump together and stick to the blood vessel wall, which is necessary for normal blood clotting. There are several types ...Read more


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What are the symptoms of von willebrand disease?

What are the symptoms of von willebrand disease?

Bleeding: Von willebrand disease is a bleeding disorder. There are several types, but the most common type involves nosebleeds or heavy periods. It can also cause significant bleeding after a tooth extraction or tonsillectomy or other surgical procedure. ...Read more

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How do you get tested for von willebrand disease?

How do you get tested for  von willebrand disease?

VWD testing: Primary care doctors can relatively easily obtain screening blood tests for von willebrand's disease (vwd). These include testing for levels of the von willebrand's disease protein, its activity, and a factor viii level. If these tests come back normal and VWD is still a concern, more specialized tests can be performed. ...Read more

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Is von willebrand disease considered risky for women?

Is von willebrand disease considered risky for women?

Not necessarily: "risky" is hard to define. Because menstrual bleeding is one of the more common problems women with VWD have, it is considered "riskier" for women than men. It is very possible to manage menstrual bleeding, as well as bleeding with childbirth very effectively, however. Once that happens, VWD is no riskier for women than it is for men. ...Read more

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What happens if my girlfriend has von willebrand disease and I don't what's the chances of our children getting it?

50% in most cases: an overwhelming majority of von Willebrand Disease (VWD) is dominant, meaning that if you carry one gene, you have VWD. Supposing that your girl friend has one VWD on one chromosone, and the other is normal, the chance of her passing that VWD gene to your offspring would be 50%. Most patients with VWD have type 1 disease which is fully compatible with normal life span. ...Read more

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Can you tell me if my girlfriend has von willebrand disease and i don't what's the chances of our children getting it?

More info needed: Some von Willebrand is transmitted genetically and some is acquired by a medication or other factor. What type does your girlfriend have? Her doctor can tell her and then a discussion of potential transmission to offspring can occur. ...Read more

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Do you know of any person that has von willebrand disease and factor five disorder?My dr tells me I am unique. And i can't be treated for either one.

Do you know of any person that has von willebrand disease and factor five disorder?My  dr tells me I am unique. And i can't be treated for either one.

Unique, certainly: These are both fairly commonly inherited disorders. Factor v leiden occurs in about 1/100 people. Von willebrand is also about 1/100 or so. So it is conceivable that this could occur in the same person. There are probably a few like you around. ...Read more

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As a child, doctors thought I might have von willebrand disease.

As a child, doctors thought I might have von willebrand disease.

Interesting.: Von willebrand disease is a difficult disease to diagnose. The most typical form is type 1, generating low levels of protein. However, your body can make this protein, and usually the treatment is a medication that "stresses" the body, causing release of von willebrand protein. I have known of several people who have low levels during childhood and the levels normalize later in life. ...Read more

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Is it safe for someone with von willebrand disease donate their organs when they die?

Is it safe for  someone with von willebrand disease donate their organs when they die?

Yes! : Von willebrand disease is a blood disorder; it has no adverse effect on your organs. Persons with von willebrand disease can certainly donate their organs if they so desire. ...Read more

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My son was diagnosed with Von willebrand disease at age 6. He is now 17 and had test again because of a surgery in his future. We are told now that he does no have Von Willebrands. Is this possible?

My son was diagnosed with Von willebrand disease at age 6. He is now 17 and had test again because of a surgery in his future. We are told now that he does no have Von Willebrands. Is this possible?

Von Willebrand's: Sorry, but there's no way for a forum doctor to help very much. Diagnosing von Willebrand's disease is quite complex, usually including family history, personal history of abnormal bleeding, and several lab tests. This is something to address with his current doctor, or a hematologist, who in turn may need to see the results of the tests 11 years ago, if possible. Good luck! ...Read more