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Doctor insights on: Von Hippel Lindau Disease

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Dr. Kamran Ahrar
104 doctors shared insights

Von Hippel Lindau Disease (Overview)

Von Hippel-Lindau disease is a genetic condition in which a person has hemangiomas (abnormal clusters of blood vessels) inside the eyes and in the back of the brain. There can also be cysts (fluid-filled lumps) or tumors in the kidneys and other organs.


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What are the tests for von hippel-lindau disease?

What are the tests for von hippel-lindau disease?

Diagnosis: Clinical diagnosis of vhl is based on the presence of two characteristic tumors or, in the presence of a family history of vhl, occurrence of one characteristic tumor. However, a family history is often difficult to recognize due to the variability in clinical presentation of vhl both between and within affected families. ...Read more

Dr. Kamran Ahrar
104 doctors shared insights

Von Hippel Lindau Disease (Overview)

Von Hippel-Lindau disease is a genetic condition in which a person has hemangiomas (abnormal clusters of blood vessels) inside the eyes and in the back of the brain. There can also be cysts (fluid-filled lumps) or tumors in the kidneys and other organs.


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What are the common presenting symptoms of von hippel-lindau disease?

What are the common presenting symptoms of von hippel-lindau disease?

Autosomal dom: Hereditary disorder associated with presence of hemangioblastomas, and secondary headaches, incoordination and imbalance, with loss of vision. Big problem is association with retinal lesions, kidney cancer, and pheochromocytomas. ...Read more

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Treating Pelvic Inflammatory Disease (Checklist)

Ask for STD testing
Once
Have your partner get STD testing
Once
Take all of your medication exactly as prescribed
Once
Use condoms when having intercourse to prevent STD transmission
Once
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I have just been told I have von hippel-lindau disease. What? Why? How did I get it?

Von Hippel-Lindau: Von hippel-lindau syndrome is an inherited disorder characterized by the formation of tumors and fluid-filled sacs (cysts) in many different parts of the body. Tumors may be either noncancerous or cancerous and usually appear during young adulthood; however, the signs and symptoms of von hippel-lindau syndrome can occur throughout life. ...Read more

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I have a genetics question about cause of von hippel-lindau disease?

I have a genetics question about cause of von hippel-lindau disease?

Von Hippel-Lindau: Von hippel-lindau syndrome is an inherited disorder characterized by the formation of tumors and fluid-filled sacs (cysts) in many different parts of the body. Tumors may be either noncancerous or cancerous and usually appear during young adulthood; however, the signs and symptoms of von hippel-lindau syndrome can occur throughout life. ...Read more

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Living with Coronary Artery Disease (Checklist)

Take meds as prescribed
Once
Exercise daily as recommended by your doctor or trainer
daily
Limit meat, dairy, and fats as much as possible
Once
Eat whole grains only - not white bread
Once
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What is the treatment for von hippel-lindau disease?

Von Hippel-Lindau: Von hippel-lindau syndrome is an inherited disorder characterized by the formation of tumors and fluid-filled sacs (cysts) in many different parts of the body. Tumors may be either noncancerous or cancerous and usually appear during young adulthood; however, the signs and symptoms of von hippel-lindau syndrome can occur throughout life. ...Read more

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How do I get rid of lines disease?

How do I get rid of lines disease?

Lyme Disease: Oral antibiotics are the standard treatment for early-stage lyme disease. These usually include Doxycycline for adults and children older than 8, or Amoxicillin or Cefuroxime for adults, younger children, and pregnant or breast-feeding women. These drugs often clear the infection and prevent complications. A 14- to 21-day course of antibiotics is usually recommended. ...Read more

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Living with Sickle Cell Disease (Checklist)

Keep doctor's appointments
Once
Go to lab appointments
Once
Keep oxygen up by maintaining low weight, no smoking
Once
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I have a genetics question about von hippel-lindau disease?

I have a genetics question about von hippel-lindau disease?

Von Hippel-Lindau: Von hippel-lindau syndrome is an inherited disorder characterized by the formation of tumors and fluid-filled sacs (cysts) in many different parts of the body. Tumors may be either noncancerous or cancerous and usually appear during young adulthood; however, the signs and symptoms of von hippel-lindau syndrome can occur throughout life. ...Read more

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