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Doctor insights on: Von Hippel Lindau Disease

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Dr. Kamran Ahrar
104 doctors shared insights

Von Hippel Lindau Disease (Overview)

Von Hippel Lindau disease is angiomatosis of retina and cerebellum ,it is associated with an increased incidence of hypernephroma, pheochromocytoma , and epandymoma.


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What are the tests for von hippel-lindau disease?

What are the tests for von hippel-lindau disease?

Diagnosis: Clinical diagnosis of vhl is based on the presence of two characteristic tumors or, in the presence of a family history of vhl, occurrence of one characteristic tumor. However, a family history is often difficult to recognize due to the variability in clinical presentation of vhl both between and within affected families. ...Read more

Dr. Kamran Ahrar
104 doctors shared insights

Von Hippel Lindau Disease (Overview)

Von Hippel Lindau disease is angiomatosis of retina and cerebellum ,it is associated with an increased incidence of hypernephroma, pheochromocytoma , and epandymoma.


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What are the common presenting symptoms of von hippel-lindau disease?

What are the common presenting symptoms of von hippel-lindau disease?

Autosomal dom: Hereditary disorder associated with presence of hemangioblastomas, and secondary headaches, incoordination and imbalance, with loss of vision. Big problem is association with retinal lesions, kidney cancer, and pheochromocytomas. ...Read more

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Treating Pelvic Inflammatory Disease (Checklist)

Ask for STD testing
Once
Have your partner get STD testing
Once
Take all of your medication exactly as prescribed
Once
Use condoms when having intercourse to prevent STD transmission
Once
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I have just been told I have von hippel-lindau disease. What? Why? How did I get it?

Von Hippel-Lindau: Von hippel-lindau syndrome is an inherited disorder characterized by the formation of tumors and fluid-filled sacs (cysts) in many different parts of the body. Tumors may be either noncancerous or cancerous and usually appear during young adulthood; however, the signs and symptoms of von hippel-lindau syndrome can occur throughout life. ...Read more

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I have a genetics question about cause of von hippel-lindau disease?

I have a genetics question about cause of von hippel-lindau disease?

Von Hippel-Lindau: Von hippel-lindau syndrome is an inherited disorder characterized by the formation of tumors and fluid-filled sacs (cysts) in many different parts of the body. Tumors may be either noncancerous or cancerous and usually appear during young adulthood; however, the signs and symptoms of von hippel-lindau syndrome can occur throughout life. ...Read more

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Living with Coronary Artery Disease (Checklist)

Take meds as prescribed
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Exercise daily as recommended by your doctor or trainer
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Limit meat, dairy, and fats as much as possible
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Eat whole grains only - not white bread
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What is the treatment for von hippel-lindau disease?

Von Hippel-Lindau: Von hippel-lindau syndrome is an inherited disorder characterized by the formation of tumors and fluid-filled sacs (cysts) in many different parts of the body. Tumors may be either noncancerous or cancerous and usually appear during young adulthood; however, the signs and symptoms of von hippel-lindau syndrome can occur throughout life. ...Read more

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How do I get rid of lines disease?

How do I get rid of lines disease?

Lyme Disease: Oral antibiotics are the standard treatment for early-stage lyme disease. These usually include Doxycycline for adults and children older than 8, or Amoxicillin or Cefuroxime for adults, younger children, and pregnant or breast-feeding women. These drugs often clear the infection and prevent complications. A 14- to 21-day course of antibiotics is usually recommended. ...Read more

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Living with Sickle Cell Disease (Checklist)

Keep doctor's appointments
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Go to lab appointments
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Keep oxygen up by maintaining low weight, no smoking
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I have a genetics question about von hippel-lindau disease?

I have a genetics question about von hippel-lindau disease?

Von Hippel-Lindau: Von hippel-lindau syndrome is an inherited disorder characterized by the formation of tumors and fluid-filled sacs (cysts) in many different parts of the body. Tumors may be either noncancerous or cancerous and usually appear during young adulthood; however, the signs and symptoms of von hippel-lindau syndrome can occur throughout life. ...Read more

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How common is von hippel-lindau disease?

How common is von hippel-lindau disease?

Von Hippel-Lindau: Von hippel-lindau syndrome is an inherited disorder characterized by the formation of tumors and fluid-filled sacs (cysts) in many different parts of the body. Tumors may be either noncancerous or cancerous and usually appear during young adulthood; however, the signs and symptoms of von hippel-lindau syndrome can occur throughout life. ...Read more

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Living with Celiac Disease (Checklist)

Schedule a visit with a dietitian
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When eating out, inform your waitstaff you are intolerant of gluten
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What are the tests for von hippel-lindau disease?

Diagnosis: Clinical diagnosis of vhl is based on the presence of two characteristic tumors or, in the presence of a family history of vhl, occurrence of one characteristic tumor. However, a family history is often difficult to recognize due to the variability in clinical presentation of vhl both between and within affected families. ...Read more

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Living with Crohn's Disease (Checklist)

Find a gastroenterologist and follow their treatment regiment
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Stop smoking
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I would like more information on von hippel lindau disease?

RENAL CYSTIC D.: It is one of the malformation syndromes with congenital renal cysts.There are angioma proliferation in the retina, brain, spinal cord and adrenal glands.Disorders include oral, facial, digital sysdrome. ...Read more

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What can I do to find out if I have von hippel lindau disease?

What can I do to find out if I have von hippel lindau disease?

Do I have VHLD?: Best to make an appointment to speak with your physician . In advance try to gather as much of your family medical history as possible. I suspect you have your own reasons for worrying about this rare genetic disease. Good luck. ...Read more

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What is the definition or description of: Von Hippel Lindau disease?

Angiomatosis: Von Hippel Lindau disease is angiomatosis of retina and cerebellum ,it is associated with an increased incidence of hypernephroma, pheochromocytoma , and epandymoma. ...Read more