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Doctor insights on: Types Of Ed Associated With Chronic Pain

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What types of eds are associated with pain and/or chronic pain?

What types of eds are associated with pain and/or chronic pain?

? Ehlers-Danlos Syn.: The most common pain associated with eds comes from the fact that the connective tissue supporting the joints becomes lax and allows chronic joint dislocations. These people frequently notice they are "double-jointed" but later experience the chronic dislocations. A more serious kind involves blood vessels where they can spontaneously rupture. Eds can also be a limited to the skin. ...Read more

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What are the types of eds?

What are the types of eds?

EDS types: There are 6 major types of eds, they are inherited disorders marked by loose joints, hyper elastic skin that bruises easily, easily enlarged blood vessels. They are called types 1 through 6. A variety of genetic mutations cause problems with collagen, the material that provides strength to soft tissue structures and bone. Collagen typing and gene mutation testing can determine the eds type. ...Read more

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Can you explain why there are crossovers (overlaps) among the different types of eds?

Can you explain why there are crossovers (overlaps) among the different types of eds?

Complicated : There are a number of types of eds and they are slightly diiferent diseases based on their individual genetic abnormalities. ...Read more

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Can you explain why there are "crossovers" of characteristics among the different types of eds?

Can you explain why there are "crossovers" of characteristics among the different types of eds?

Collagen: Eds has many different types. In most of its forms, the defect involves some aspect of collagen. Collagen is one of the basic building blocks of connective tissue which is found in all organs, joints and blood vessels. Depending on the exact type of genetic defect, and becasue collagen is found everywhere, there is cross-over in the types of eds with similar manifestations. ...Read more

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Is it possible for people with eds type 4 (vascular) to live normal lives?

Is it possible for people with eds type 4 (vascular) to live normal lives?

Very difficult: True Ehler-Danlos type 4 is characterized by facial changes, translucent skin through which vessels can be seen , easy bruising, and uterine and cardiac problems related to medium and large artery damage. Each event is treatable to some degree, pregnancy is advised against, and some problems require emergency treatment. It is autosomal dominant. With good care one may live long but not normally. ...Read more

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Are there any base-line protocols for testing that are recommended for all types of eds?

Are there any base-line protocols for testing that are recommended for all types of eds?

Yes.: Both clinical exam and genetic testing needed.. A good pediatrician or geneticist are most likely to diagnose this, since presentation is early. I personally would see a geneticist if this diagnosis is in question. The hypermobility of joints leads to accelerated arthritis, ie. Osteoarthritis, and sprains. ...Read more

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Is hypermobility syndrome different from the EDS hypermobility type? is so, how?

Is hypermobility syndrome different from the EDS hypermobility type? is so, how?

Hyper mobility: Yes there is a large difference as hyper mobile joints is just about flexibility where EDS is a genetic problem of connective tissue so involves several organs. ...Read more

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In EDS: Are cigarette-paper-scar only typical of classic type or can you also have them with hypermobility type?

Not w/ hypermobility: Hypermobility or being "double-jointed" is very common in the population and is not itself associated with the cigarette-paper scars seen in EDS.However, many people with EDS have the most extreme cases of hypermobility. There are no particular mutations in collagen genes in people with common hypermobility but there are such mutations with EDS. Joint hypermobility can be a cause of joint pain. ...Read more

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Lumbar nerve root irritation and eds type 3... 5 months later still in pain and using crutches. Will i ever recover?

Lumbar nerve root irritation and eds type 3... 5 months later still in pain and using crutches. Will i ever recover?

Discuss with: Your orthopedic doctor who has been treating you and knows your history. If you have not seen a back orthopedic doctor you nee to see one. ...Read more

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I have suspected EDS hyper type (no UK doctor available to diagnose via NHS) and I'm wondering if it could be linked to the pain I get with that? It's worse at night I can't sleep for feeling that there are insects crawling over me in my bed, tickling and

Not the explanation: Ehlers-Danlos is not worth diagnosing with special labs as you're not going to do anything different given the data. Vascular Ehlers-Danlos is diagnosable on history and physical; the others aren't life-shorteners and it's up to you to figure whether they limit what you can do. You also describe "formication", the feeling of bugs; it has a variety of causes you can read about, EDS is not one. ...Read more

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Could I have type 3 (hypermobility) ehlers danlos syndrome or hypermobility syndrome? My parents don't have eds.

Unlikely.: Ehlers danlos is an inherited condition, so if it doesn't run in your family, it's very unlikely that you have it. If your joints are unusually flexible you may just be more limber than normal. But if you are worried about it, see your doctor and find out for sure. ...Read more

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What impact does ehlers danlos type 3 have on lumbar fusion surgeries, and is ther a type of fusion that would be better for an eds patient?

What impact does ehlers danlos type 3 have on lumbar fusion surgeries, and is ther a type of fusion that would be better for an eds patient?

EDS has surgery risk: Ehlers danlos syndrome (eds) is a connective tissue disorder that has many subtypes. In type 3 eds, joint overextensibility can cause serious orthopedic issues.In eds of any type, anesthetic & surgical complications, while rare, are more common than in someone without eds, including blood vessel rupture, hemorrhage, and airway and neck damage.Type of lumbar fusion doesn't seem to affect these issues. ...Read more

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I have Fibro, Chiari, Psoriatic Arthritis, poss. EDS, Adrenal innsufficiency. Fatigued, chronic pain, chest pain, elevated CRP, what could this mean?

I have Fibro, Chiari, Psoriatic Arthritis, poss. EDS, Adrenal innsufficiency. Fatigued, chronic pain, chest pain, elevated CRP, what could this mean?

See holistic doc: This means you have multiple chronic health problems best addressed by a holistic doc who can explore underlying causes. Odds are good you have a leaky gut, food sensitivities, thyroid imbalances, nutrient deficiencies, chronic infections (probable intestinal candidiasis, possibly Lyme), heavy metal (esp. mercury) toxicity etc. See http://bit.ly/19PetTQ & http://amzn.to/1kqfyZc and my comment: ...Read more