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Doctor insights on: Treatments For Marfan Syndrome

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Are there treatment guidelines for ehlers-danlos syndrome?

Are there treatment guidelines for ehlers-danlos syndrome?

Treat symptoms: While there is no cure for this inherited disorder, it is worth determining which of the 6 types the affected person has. This may guide the needs for cardiac evaluation for valvular or vascular problems, eye exams for vision problem such as lens dislocation, or high-risk obstetric care. ...Read more

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Dr. Scott McLean
338 doctors shared insights

Marfan Syndrome (Definition)

An inherited disorder that affects connective tissue where one's body shape is long, with thin arms, hands, and fingers, and when the total arm length is greater ...Read more


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Are there treatments for beckwith wiedemann syndrome?

Are there treatments for beckwith wiedemann syndrome?

It depends: Like most genetic syndromes, there can be few or many symptoms or signs. Treatment depends on the severity, and if treatment is possible. Some people may have ti and never be diagnosed with it because the signs are minor. See https://ghr.nlm.nih.gov/condition/beckwith-wiedemann-syndrome ...Read more

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What treatments/medications are there for someone with Marfan syndrome?

What treatments/medications are there for someone with Marfan syndrome?

For the heart...: From a cardiologist's perspective, we want to make sure that the aorta is not too enlarged and that the blood pressure is well controlled. Classically we use a beta blocker to reduce wear and tear on the aorta, but newer trials are ongoing to see if a class of medicines known as ACE-inhibitors are helpful for this. There are important eye and ligament things to keep track of as well. ...Read more

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What are helpful treatment options for turner's syndrome?

What are helpful treatment options for turner's syndrome?

Proper eval & assist: Turner syndrome patients have specific added needs for early evaluation of the heart, aorta & kidneys to see if asymptomatic defects are present so they can be addressed before they cause problems. Monitor school performance with early assistance when learning issues arise.Assessment in preadolescence by a hormone dr so growth & pubertal features can be assisted. Counseling in teen yrs for pbs. ...Read more

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What are treatment options for people with wiskott-aldrich syndrome?

What are treatment options for people with wiskott-aldrich syndrome?

Depends on symptoms: Treatment depends on what symptoms are occurring. For instance, if there is bacterial infection, antibiotics are needed. If blood platelet counts are low, immunoglobulins &/or steroids are given. The best option is to discuss with your Dr. and find what's best. ...Read more

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Is there treatment for antiphospholipid syndrome?

Is there treatment for antiphospholipid syndrome?

Anticoagulation.: If you get bad blood clots from antiphospholipid syndrome, treatment with Coumadin (warfarin) or another anticoagulant might be recommended. ...Read more

Dr. Sarah Kohl Dr. Kohl
18 doctors agreed:
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Are there treatments for asperger's syndrome?

Dr. Sarah Kohl Dr. Kohl
18 doctors agreed:
Are there treatments for asperger's syndrome?

YES: Children and adults with asperger's struggle with language disorders, poor interpersonal skills, eccentric behaviors and sometimes obsessive interests. Intelligence is usually normal. Therapies center on improving speech, improving social interactions, and limiting over-stimulation. School can be adapted, if needed. Medication may be used if additional problems exist- anxiety, adhd, and odd. ...Read more

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Dr. Alan Ali Dr. Ali
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Any treatment for tourette syndrome?

Dr. Alan Ali Dr. Ali
4 doctors agreed:
Any treatment for tourette syndrome?

Tourette: Most cases are mild & require no medications, can benefit from reassurance & psychobehavioral therapy (cognitive therapy, biofeedback) & education. Medications that are helpful for tics are; clonidine, orap, (pimozide) tenex, and other medications that treat comorbid conditions such as OCD & adhd. ...Read more

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What are current treatments for edwards syndrome?

What are current treatments for edwards syndrome?

Much patience: Treatment for a child with edwards syndrome is very difficult. It calls for a lot of patience as these babies are severely debilitated. ...Read more

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Ayurvedic treatment for behcets syndrome?

Ayurvedic treatment for behcets syndrome?

No: There is no clinical evidence that this approach has any value for behcet's. ...Read more

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Are there treatments for wernicke-korsakoff syndrome?

Are there treatments for wernicke-korsakoff syndrome?

No: In the acute phase, generous administration of thiamine is the key. Once the damage has been done, nothing will reverse it. I knew a korsakoff's victim who was very happy living in a protected environment and telling folks he was vice-president of a steel corporation; he still had friends and shared warmth. If someone you love is so affected, you have my sympathy. Be kind. ...Read more

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How effective is a vitrectomy for treating Marfan syndrome?

How effective is a vitrectomy for treating Marfan syndrome?

Effective: I have attached a study that looked at the success of vitrectomy surgery in people with Marfan's and it had 45 patients with 53 surgeries and listed successful reattachment 86% of the time http://www.ncbi.nlm.nih.gov/pubmed/12172108 ...Read more

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Are there treatment options for ramsay hunt syndrome?

Are there treatment options for ramsay hunt syndrome?

Herpes meds: Ramsay hunt is a variant of herpes facial neuritis. Many cases of bell's palsy are also caused by herpes. The virus lives in the trigeminal ganglion and can be activated to produce severe symptoms. Just facial weakness is bells. Facial weakness with hearing loss vertigo and numbness of face tongue and mouth is ramsay hunt. No cure but may be modified with herpes meds. ...Read more

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What are the treatments for cushings disease/ syndrome?

What are the treatments for cushings disease/ syndrome?

Depends: The treatment options depend on the cause of the cushing's syndrome. If the cause is due to overuse of steroids, then the treatment is to lower the dose. This is the best case scenario. Other treatment options involve: surgery (pros: cure possible, cons: surgery +/- complications), radiation therapy (cons: side effects), medications (cons: usually not a cure, side effects from med)... ...Read more

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How effective is vascular grafting for treating Marfan syndrome?

How effective is vascular grafting for treating Marfan syndrome?

Vascular grafting: should one get an aneurysm related to Marfan, grafting can be very effective, otherwise grafting is rather superfluoius to the diagnosis ...Read more

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Remedies for raynards syndrome?

Depends: Heavy metal toxicity may play a part. See a doctor knowledgable about chelation and see if they can help you. ...Read more

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What are the treatments for reyes syndrome?

What are the treatments for reyes syndrome?

Reye's syndrome: is fortunately a very rare disorder that requires hospital treatment. It is mostly supportive care with IV fluids, glucose, diuretics, antiseizure medicines, etc. There is no cure. It is just supporting the patient through the acute phase and hopefully to recovery. ...Read more

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How effective is eye surgery for treating Marfan syndrome?

How effective is eye surgery for treating Marfan syndrome?

Eye surgery: Eye surgery treats ocular complications of Marfan but not the basic syndrome process ...Read more

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What are some treatments for aspergers syndrome?

What are some treatments for aspergers syndrome?

Many: Some aspies need counseling, academic support or medication, some don't. It's very individual. What you should have is an experienced doctor & counselor to assure the diagnosis and be there for times of help. Social skills training is sometimes useful. See . ...Read more

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I need a specialist for Ehlers Danlos syndrome for adults. Suggestions?

I need a specialist for Ehlers Danlos syndrome for adults. Suggestions?

A few different docs: Medical genetics physician may be helpful in diagnosis if there is concern about an EDS type other than type 3. A physical medicine and rehabilitation physician would be best and helping to coordinate a plan for functional recovery. A rheumatologist would be helpful to look for other causes of joint pain such as an inflammatory disorder. ...Read more

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