Doctor insights on:
Treatments For Inclusion Body Myositis
What are the very latest and cutting edge treatments for inclusion body myositis (ibm)? Any good trials out there?
Yes,see list below: First need to have the proper diagnosis.So far no single treament have been found to produce cure.They are several new drugs on trial such as etanercep9tumor necrosis factor)alemtuzumab(t-celldepleting monoclonal antibody)follistatin(antagonist of myostatin pathway)arimoclomol(heat shock protein conducer)lithium(inhibitor of the glycogen synthase kinase enzyme)needless to say you need a physician. ...Read moreSee 1 more doctor answer
Myopathy type: Ibm is atype of inflammatory myositis. It tends to affect people older than 50. People with ibm often have weakness of their upper and lower arms and legs. Sometimes the muscles look smaller known as atrophy. Unfortunately there are no treatments that are proven to help. However, patients are sometimes tried on a short course of steroids, ivig, etc. Phys therapy is extremely important. ...Read moreSee 1 more doctor answer
With a stick maybe?: No definitive treatment has proved effective for the sporadic form of the disease. A militaristic tough-as-nails let's-hard-nose-this-one-out how-to-beat-it when-the-going-gets-tough-the-tough-get-going attitude toward this disease will only cause greater feelings of failure and frustration down the line. Most proactive thing is to try to get into a clinical trial, see clinicaltrials.gov. ...Read moreSee 1 more doctor answer
Is there any exercise or/and diet that would be helpful in slowing down the progress of INCLUSION BODY MYOSITIS ?
No: This illness is refractory to treatment. Try to stay as physically active as you can for as long as you can. See if you can get enrolled in a clinical trial. As much as I'd like to be able to recommend something, and as eager as others will be to offer ideas that will not be helpful, I must be up front with you -- do not expect any intervention to be more effective than a placebo. ...Read more
Ck emyograph biopsy: Ten fold increase creatine kinase enzyme,electromyography, muscle biopsy sent to neuropathologists, or human leucocyte gene assays using gene sequencing or similar tests will Narrow this down to sporadic type but this is a disease that begs more discoveries. Of course your doc needs to determine if your symptoms are those of IBM. ...Read moreSee 1 more doctor answer
Different diseases: Both are muscle diseases that are difficult to treat, polymyositis tending to affect shoulders and hips, inclusion body mysoitis the forearms. Polymyositis is the more treatable, but the more likely to become very serious, we know something of its cause unlike inclusion body myositis. Under the microscope they look different. Both are difficult and i wish you good luck and courage. ...Read more
A wide spectrum Pts.: This is an inflammatory muscle disease, with slowly progressive weakness and wasting of both distal and proximal muscles, most notably of the arms and legs. Because this randomly affects different people in different ways and at different rates, there is no "textbook case." there are two kinds, sporadic and hereditary. The hereditary case does not have inflammation and is thus not myositis. ...Read more
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