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Doctor insights on: Treatments For Inclusion Body Myositis

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What are the very latest and cutting edge treatments for inclusion body myositis (ibm)? Any good trials out there?

What are the very latest and cutting edge treatments for inclusion body myositis (ibm)? Any good trials out there?

Yes,see list below: First need to have the proper diagnosis.So far no single treament have been found to produce cure.They are several new drugs on trial such as etanercep9tumor necrosis factor)alemtuzumab(t-celldepleting monoclonal antibody)follistatin(antagonist of myostatin pathway)arimoclomol(heat shock protein conducer)lithium(inhibitor of the glycogen synthase kinase enzyme)needless to say you need a physician. ...Read more

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Dr. Charles Glueck
337 doctors shared insights

Myositis (Definition)

Inflammation of the muscles that you use to move the body. Symptoms of myositis may include fatigue after walking or standing, tripping or falling, ...Read more


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Who has inclusion body myositis?

Who has inclusion body myositis?

A wide spectrum Pts.: This is an inflammatory muscle disease, with slowly progressive weakness and wasting of both distal and proximal muscles, most notably of the arms and legs. Because this randomly affects different people in different ways and at different rates, there is no "textbook case." there are two kinds, sporadic and hereditary. The hereditary case does not have inflammation and is thus not myositis. ...Read more

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How to beat inclusion body myositis?

With a stick maybe?: No definitive treatment has proved effective for the sporadic form of the disease. A militaristic tough-as-nails let's-hard-nose-this-one-out how-to-beat-it when-the-going-gets-tough-the-tough-get-going attitude toward this disease will only cause greater feelings of failure and frustration down the line. Most proactive thing is to try to get into a clinical trial, see clinicaltrials.gov. ...Read more

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What is inclusion body myositis (ibm)?

Genetic disorder: Ibm is a genetic disease in the group of diseases called inflammatory myopathies. It is progressive and leads to muscle weakness and wasting away of muscle. There is no cure but there are therapies that can help with symptoms. ...Read more

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What is inclusion body myositis?

What is inclusion body myositis?

Myopathy type: Ibm is atype of inflammatory myositis. It tends to affect people older than 50. People with ibm often have weakness of their upper and lower arms and legs. Sometimes the muscles look smaller known as atrophy. Unfortunately there are no treatments that are proven to help. However, patients are sometimes tried on a short course of steroids, ivig, etc. Phys therapy is extremely important. ...Read more

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What are the diagnostic tests for inclusion body myositis?

Ck emyograph biopsy: Ten fold increase creatine kinase enzyme,electromyography, muscle biopsy sent to neuropathologists, or human leucocyte gene assays using gene sequencing or similar tests will Narrow this down to sporadic type but this is a disease that begs more discoveries. Of course your doc needs to determine if your symptoms are those of IBM. ...Read more

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What defining difference exists between polymyositis and inclusion body myositis?

What defining difference exists between polymyositis and inclusion body myositis?

Different diseases: Both are muscle diseases that are difficult to treat, polymyositis tending to affect shoulders and hips, inclusion body mysoitis the forearms. Polymyositis is the more treatable, but the more likely to become very serious, we know something of its cause unlike inclusion body myositis. Under the microscope they look different. Both are difficult and i wish you good luck and courage. ...Read more

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What are dermatomyositis, polymyositis and inclusion body myositis?

Separate myosotis : Each is a specific type of inflammatory muscle disease. We call this myositis because the muscles can show information. When you have this you need an extensive evaluation looking for other associated issues. Therapy will be different for each of these. ...Read more

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How does 'inclusion body myositis' affect a person's lifestyle?

Weakness.: Weakness is the main symptom of inclusion body myositis. This is usually most severe in the distal upper extremities (hands) and proximal lower extremities (hips). Physical therapy and regular physical activity are important to optimize function. ...Read more

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Is there any exercise or/and diet that would be helpful in slowing down the progress of INCLUSION BODY MYOSITIS ?

Is there any exercise or/and diet that would be helpful in slowing down the progress of INCLUSION BODY MYOSITIS ?

No: This illness is refractory to treatment. Try to stay as physically active as you can for as long as you can. See if you can get enrolled in a clinical trial. As much as I'd like to be able to recommend something, and as eager as others will be to offer ideas that will not be helpful, I must be up front with you -- do not expect any intervention to be more effective than a placebo. ...Read more