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Doctor insights on: Treatments For Epidermolysis Bullosa Acquisita

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Can epidermolysis bullosa be totally cured?

Can epidermolysis bullosa be totally cured?

Unfortunately no: Eb can not be cured as it is a genetic condition. Several trials do occur that are looking at stem cell transplants as a method of increasing skin resistant to shearing forces and have shown promising results. http://www.debra.org/research-trials. ...Read more

Dr. Brad Goldenberg
34 doctors shared insights

Epidermolysis Bullosa (Definition)

There are many different types some with blisters some with severe scarring and almost ...Read more


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Epidermolysis bullosa-simplex.Can anybody tell me about?

Epidermolysis bullosa-simplex.Can anybody tell me about?

Happy to.: Epidermolysis bullosa is a group of genetic conditions that cause the skin to be very fragile and to blister easily. There are 4 major types of eb simplex. It is an inherited condition. Blistering is present from birth and tends to improve with age. There is also abnormal nail growth and thickening of the palms and soles. As with most inherited diseases there is no definitive treatment. ...Read more

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What is Epidermolysis bullosa? How to cure it for a newborn? I read a new from Vietnam& see a new born hurting from it. Please help and suggest ?

What is Epidermolysis bullosa? How to cure it for a newborn? I read a new from Vietnam& see a new born hurting from it. Please help and suggest ?

EB: This is a group of genetically determined disorders of the skin. The type that presents at birth is transmitted by two unaffected parents that carry the gene. Those affected are treated with supportive care, but there is no cure.Most die of complications in the first year.Other forms onset later, are less aggressive & have differing genetic patterns. ...Read more

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Is there SSI help with epidermolysis bullosa?

Is there SSI help with epidermolysis bullosa?

Yes: Epidermolysis bullosa has several different types and they differ in their severity. (ebs - eb simplex is the most common). These are all genetic skin fragility syndromes and will require life long wound care which is very expensive. I have some patients with this condition and have helped all of them get ssi assistance for their disease. Good luck. You should not have too much difficulty. ...Read more

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What is epidermolysis bullosa (eb)? What causes it?

Skin disease: It's a congenital skin disease. The skin has two layers the epidermis and the dermis below. In this disease the proteins that anchor the two don't work well so they don't adhere well and detach easily. This results in blistering and chronic erosions. There are different types some more serious than others. Here is a link to learn more: http://www.ebkids.org ...Read more

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What is the definition or description of: epidermolysis bullosa?

Much: There are many different types some with blisters some with severe scarring and almost all types are inherited. ...Read more

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Does epidermolysis bullosa affect the nervous system?

Does epidermolysis bullosa affect the nervous system?

No: Epidermilysis bullosa is an inherited connective tissue disorder that affects connections or stickiness between the three layers of skin. It does not affect the nervous system and is restricted to skin of body and mucous membranes in your mouth and nose. ...Read more

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How do the doctors make the diagnosis for epidermolysis bullosa?

How do the doctors make the diagnosis for epidermolysis bullosa?

Clinical appearance.: Epidermolysis bullosa is a group of genetic conditions that cause the skin to be very fragile and to blister easily. There are 4 major types of eb simplex. It is an inherited condition. Blistering is present from birth and tends to improve with age. There is also abnormal nail growth and thickening of the palms and soles. As with most inherited diseases there is no definitive treatment. ...Read more

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Anyone familiar with revertant mosaicism and epidermolysis bullosa?

Revertant Mosaiciam: Revertant mosaicism or natural gene therapy is the somatic reversion of an inherited mutation, thereby partially or completely restoring the phenotype. In eb this phenomenon is visible as clinically healthy patches, surrounded by affected skin. The underlying mechanism of reversion has been investigated in a cohort of nine patients. ...Read more