Doctor insights on:
Tonsillar Ectopia Symptoms
Huh?: What symptoms and pain is this causing? I suggest you see your neurologist or neurosurgeon to discuss. ...Read more
A recent mri showed cerebellar tonsillar ectopia up to 12 mm, does this along with having a lot of the symptoms of chiari mean that chiari is likely?
Meets Chiari I def: Tonsilar ectopia greater than 5-6mm below the foramen magnum is considered a Chiari I malformation. Whether symptoms are associated is more individual, but usually at 12mm and greater, most are found to have associated symptoms. ...Read more
Tonsillar ectopia: The cerebellum is at the lower back of your brain, and is mainly responsible for motor coordination. The tonsils are at the midline of your cerebellum and sometimes they can extend a bit lower than normal. That's called tonsillar ectopia. They may be asymptomatic, or they could cause symptoms like headache, pain, and other neurologic symptoms. ...Read more
3 cm or 3 mm?: It depends. If it is 3 cm as you state, that is severe (30 mm) and you should be concerned. If instead you mean 3 mm, then it depends if you have a syrinx. If you do not have a syrinx, there is no concern. ...Read more
The definition for chiari malformation is the presence of cerbellar ectopia of greater than 3 mm below the foramen magnum. Thus you fulfill at least part of the criteria for chiari 1 malformation.
The key is the presence of symptoms. If present, then phase-contrast mr flow studieshave a role in determining whether symptomatic chairi malformation patients may benefit from surgical intervention. ...Read more
Chiari 1: Tonsillar ectopia, slight descent of the cerebellar tonsils and Chiari I malformations, disorders observed in older children and adults and are believed to be an acquired form of the Chiari malformations. This entity is different from the other Chiari malformations in that hydrocephalus plays no role in its evolution ...Read more
What does a 6mm descending cerebellar tonsillar on the foramen magnum, suggestive cerebellar tonsillar ectopia mean?
Cerebellar ectopic: It means you need to discuss with your local health care team. Not someone who does not see you. ...Read more
Diagnosed with mild cerebellar tonsillar ectopia, I am experiencing headaches while excercising. Should I be concerned?
Co-morbidity: Unlikely that your headaches are caused by the ectopia, and other causes, such as dental/jaw, sinus/nasal, cervical, thyroid, could all be considered. But, may well be migraines which are exercise triggered. ...Read more
Possible Chiari: This statement means that a portion of your cerebellum (the cerebellar tonsils) is sitting lower down than is normal. If your cerebellar tonsils are low lying they can sit in an opening in your skull and get pushed on by your skull. This condition is called a Chiari I malformation. It can also cause compression on the brainstem. People whose cerebellar tonsils sit 12 mm low tend to have symptoms. ...Read more
I just had an MRI done and one impression says borderline cerebellar tonsillar ectopia. Do I need to be concerned?
No: It's a normal variation. No worriesGet a more detailed answer ›
19 years of daily headaches, scan show left ventricle larger than right and benign tonsillar ectopia with midline shift. Is a midline shift ever normal?
What does it mean? My report says the report says there is mild cerebellar tonsillar ectopia with tonsils extending 5mm through the foramen magnum
Chiari Malformation: Well at least one of the features is present. Low lying cerebellar tonsils are dipping into the foramen magnum which is the big hole at the base of the skull that allows the spinal cord to pass up to the brain. It means no more trampolines, bungee cord jumping or roller coaster rides for you. You don't want the cerebellar tonsils to be forced down further. Look up arnold chiari malformation, . ...Read more
When an MRI reads borderline cerebellar tonsillar ectopia, is there a possibility of it going down some more? Any physical activity restriction needed
Low cerebellar tonsi: Borderline cerebellar tonsillar ectopia (low lying) is very common and has no clinical significance. There is no activity restriction. It should not progress unless transiently after a spinal tap. You should let your doctor know if you are going for a spinal tap. ...Read more
My fiancé just got diagnosed with Bilateral cerebellar tonsillar ectopia. Our doctor did not say much, but im extremely worried and don't know what to?
Here is an article by the National Organization for Rare Disorders: https://rarediseases. Org/rare-diseases/chiari-malformations/
Take care ...Read more
I have mild cerebellar tonsillar ectopia less than 5mm. I do have various things wrong that could be conected. But gp is not sure. What is my prognose?
Chiari: This sounds like a "borderline" chiari malformation. These are generally not serious as long as there are not other brain abnormalities or spinal abnormalities. Thus further imaging is likely needed. However, if this is normal then your prognosis is good and you will not likely need further treatment. ...Read more
Mri says small focal signal hypersensitivity in the wm around the r occ horn & mild cerebellar tonsillar ectopia at the upper limits of normal. Worry?
No worries: Not really. These findings font explain your symptoms, they are incidental ...Read more
FOR MY MOM INFERIOR CEREBELLAR TONSILLAR ECTOPIA 1.2CM BELOW FORAMEN MAGNUM. THERE IS A ASYMETRIC HERNIATION OF CEREBELLAR TONSILS RIGHT-1.2CM LEFT-8MM?
Chiari malformation: Arnold chiari malformation type 1 is defined by cerebellar tonsils that extend below the foramen magnum. The symptoms range from none to headaches, numbness, pain and weakness. The condition can become life threatening when cerebrospinal fluid is blocked. It is important to see a neurosurgeon with experience treating this disorder to discuss the therapeutic options. ...Read more
I have a 4mm left cerabellar tonsillar ectopia w out evidence of chari I. I have indention & head pain, unsteady balance, ear ringing
I doubt it is this.: This is something that you had all of your life. If the symptoms you are having our new, it is not related to this. You may just have a middle ear infection, or vestibular neuronitis. ...Read more
Mild Cerebellar tonsillar ectopia 4mm, but been diagnosed w/ pseudotumor cerebri for over a year. My mother also has Chari, do I??
Yes mild form: You will need to be followed by a good neurologist. Symptoms may never appear if all remains stable. ...Read more
A recent brain mri showed that I have cerebellar tonsillar ectopia but did not show a syrinx. Is it possible that it could show on a different mri?
Need help reading mri results: inferior cerebellar tonsillar ectopia up to 12mm and a few scattered patchy white matter t2/flair hyperintense lesions?
My 9 yr old son was diagnosis with chiari malformation 1. What does "8 mm of cerebellar tonsillar ectopia with tonsillar deformity" mean? Dr wants surgery
A recent MRI for headaches and neck pain stated minimal tonsillar ectopia not in range of chiari I malformation. Flow voids were normal/maintained I a?
Low lying cerebellum: The cerebellar lobes in the back of the brain are extending slightly into the spinal canal, which is associated with something called chiari I malformation when it's more severe. If they extend far down into the spinal canal, they can compress the spinal cord and the blood vessels feeding the "back" of the brain, as well as interrupt the flow of CSF between the brain and spinal canal. ...Read more
Daughter is experiencing headache (front, back, down neck and back). She was diagnosed last month with a 4mm mild cerebellar tonsillar ectopia. Last week she had 2 lumbar punctures done with 59ml of spinal fluid removed. Is this related? Cause? Fix?
Be seen: Rather than use HealthTap, you should go back to the neurologist who has been evaluating and/or doing the lumbar punctures. That health care provider has the context on why the LPs were performed, why imaging was done, and the potential other aspects historically that are relevant. Good luck. ...Read more
Having constant headaches, dizziness, nausea, eye pain for 3-4 weeks. Ct last week showed cerebellar tonsillar ectopia of 5mm. Pcm says no immediate action needed at this time. How long must I suffer?
See a neurologist: Your symptoms may or may not be related to the ct finding. A neurologist should be able to tell the difference. ...Read more
Not tonsils: The cerebellar tonsils are not tonsils, just part of your cerebellum. Sometimes when patients are dizzy it is due to pressure from a portion of the cerebellum resting low in the skull, around the foramen magnum. If a radiologist noted the cerebellar tonsils ride a little low, they might mention it in a report. It would not be that uncommon of a finding on a normal MRI or ct of the brain. ...Read more
Borderline inferior cerebellar ectopia present, the cerebellar tonsils demonstrate mild inferior herniation, measuring 4 mm sagittal sequence, means?
It most likely: Doesn't mean anything. If that is the only finding, and the tonsils are otherwise normally shaped, some use less than 5mm as the normal range, so by that criteria 4mm would be normal. Others call 3-5mm benign tonsillar ectopia, an incidental asymptomatic finding. Most consider greater than 5mm to be abnormal (Chiari 1 malformation). The measurement is from the skull base to the tonsil tip. ...Read more
Mri stated "there are some what low lying cerebellar tonsils along the inferior margin of the foreman magnum, no tonsil ectopia." Should I be worried?
No need to worry: What you are describing sounds like a normal variant. No tonsil ectopia means that there is no damage to the cerebellum. However, I would discuss this with the ordering physician ...Read more
If my cerebellar tonsils extend 4 to 5 mm below the foramem magnum and my CSF flow is normal, do I have Chiari or benign cerebellar ectopia?
Probably ectopia. Tonsils usually greater than 5mm below magnum for chiari. However would make sure your images were read by a neuroradiologist. Morphology/shape of the tonsils also important. Have seen borderline/mild cases missed.
I suggest caution, there are other reasons why tonsils could be low such as CSF leak etc. ...Read more
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