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Doctor insights on: The Difference Between Porphyria And Fibromyalgia And Lupus

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What's the difference in fibromyalgia and lupus!

What's the difference in fibromyalgia and lupus!

Positive test: Questioner of the difference between fibromyalgia and lupus should regard that there are no known causes or lab test for fibromyalgia. Lupus has lab studies that can confirm the presence and autoimmune nature of lupus, as well as injury to skin, nervous system, and kidneys. ...Read more

Dr. Aletha Tippett
93 Doctors shared insights

Porphyria (Definition)

Metabolic disorders caused by abnormalities in the synthesis of heme, the portion of hemoglobin which carries the iron inside red blood cells. Symptoms can range from light sensitivity to liver failure to nerve damage to bouts of terrible pain. Special testing is required to ...Read more


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What should I worry about with having sjogren's syndrome and fibromyalgia and possibly lupus. Will find out bout lupus one soon.

What should I worry about with having sjogren's syndrome and fibromyalgia and possibly lupus. Will find out bout lupus one soon.

Clarify diagnosis: Out of the diagnoses mentioned, fibromyalgia is most prevalent and increasingly recognized. Fibromyalgia is a central pain syndrome that causes diffuse body pain and fatigue triggered by poor sleep. An autoimmune disease such as sjogren's or lupus can trigger fibromyalgia, however, do not cause fibromyalgia. I would recommend that you see a rheumatologist to clarify diagnosis. ...Read more

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Psa, fibromyalgia, lupus, addisons? How do I find out?

Psa, fibromyalgia, lupus, addisons? How do I find out?

Doctor: You need to establish a relationship with a doctor who will take a thorough history and physical and examine you and then order the appropriate test. Good luck. ...Read more

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I'm on oxycodone and have lupus and fibromyalgia, but am still in pain, what can I do?

I'm on oxycodone and have lupus and fibromyalgia, but am still in pain, what can I do?

Pain Syndrome: With a case as complex as yours, you need a team approach to your therapies. You need a doctor well versed in the treatments of fibromyalgia to help with that disorder. You need a rheumatologist to deal with the lupus. And you need a chronic pain specialists to help with your narcotic pain treatment. These 3 doctors should work together. ...Read more

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Is it true that fibromyalgia can cause lupus?

Is it true that fibromyalgia can cause lupus?

No!: These are completely different diseases. Lupus is an autoimmune rheumatic disease, and fibromyalgia is a central pain amplification disorder. However, systemic lupus patients can have many symptoms of fibromyalgia. ...Read more

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Is it true that fibromyalgia can lead to lupus?

Is it true that fibromyalgia can lead to lupus?

No: Up to about 30% of patients with lupus can also have fibromyalgia but technically fibromyalgia does not cause or lead to lupus. ...Read more

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Can you please tell me how lupus and fibromyalgia differ?

Can you please tell me how lupus and fibromyalgia differ?

Great differences!: Sle is an autoimmune disease that can damage organs in the body when severe, although most patients have mild disease. Fibromyalgia is a pain amplification disorder involving the brain and spinal cord. It is not inflammatory and certainly not autimmune. Treatments for these illnesses are completely different! ...Read more

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I have fibromyalgia with symptoms of lupus is that common?

I have fibromyalgia with symptoms of lupus is that common?

Yes: There are a lot of symptoms of both of these conditions that overlap. Lupus can be ruled out with a few blood tests. ...Read more

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I've been diagnosed with fibromyalgia but am being treated for lupus, how come?

I've been diagnosed with fibromyalgia but am being treated for lupus, how come?

Fibromyalgia: You are probably being treated by a rheumatologist who is more aware of lupus issues. Lupus has some similarities but is not the same disorder. You should see a physician well versed in the evaluation and treatment of fibromyalgia. ...Read more

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I just found out I have lupus and fibromyalgia. Will I die with it or from it?

Lupus: With good followup by endocrinologist & pcp, and with good control of symptoms, you are ok. ...Read more

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Everything I have stated on here they have now diagnosed me from lupus which been treating for 5 yrs to fibromyalgia is that possible?

Everything I have stated on here they have now diagnosed me from lupus which been treating for 5 yrs to fibromyalgia is that possible?

Mimicker: Lupus and fibromyalgia and vitamin c deficiency have very similar symptoms so also make sure you get your vitamin c level checked that would be a fasting blood test. ...Read more

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My mom has lupus and fibromyalgia. What are my chances of getting it?

Small: These meds have a slightly higher risk for you if your mother is affected. However, the risk is relatively small. ...Read more

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I have been diagnosed with fibromyalgia, but have a lot of lupus symptoms. My ANA test came back as "indeterminate". What does this mean?

Better test: Still the better test to determine the difference between lupus and fibromyalgia (fms) is a history and physical exam done by a rheumatologist. Lupus and fms have some similar symptoms but are very different. Lupus - autoimmune disease. Fms - not autoimmune. The ANA is not the deciding factor between the two. The ANA never makes a definite diagnosis. Other blood tests (by rheumatologist) can help. ...Read more

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My wife has lupus and fibromyalgia. Is there a clinic that specializes in these diseases? Or should we just suck em up and be content with present?

My wife has lupus and fibromyalgia. Is there a clinic that specializes in these diseases? Or should we just suck em up and be content with present?

Lupis treatment: The best kind of dr. To address your condition is called a rheumatologist. I would look for someone who is board certified in that specialty. There should be a listing in the yellow pages or you may want to check with your local medical society.
Good luck. ...Read more

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Treated for lupus for 5 years and then changed to fibromyalgia I believe is not possible, since I have medical records saying its lupus. Could my dr just want nothing more to do with me as a patient?

Treated for lupus for 5 years and then changed to fibromyalgia I believe is not possible, since I have medical records saying its lupus. Could my dr just want nothing more to do with me as a patient?

Drastic change.: Lupus is diagnosed based on symptoms and physical exam, lab tests are only secondary. There are no lab tests for fibro, just tender points on exam. A skilled rheumatologist should have no trouble telling one from the other. If your lupus is in remission, your current doctor may only be seeing fibro (having both is common.) ask your doctor. Consider 2nd opinion with different rheumatologist. ...Read more

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I have lupus. My doctor diagnosed me w/ fibromyalgia also. Are the two related?

Lupus and Fibromyalg: Though there is no genetic association between the two illnesses since lupus is specifically an autoimmune disease, it is entirely possible that the fibromyalgia symptoms are simply an associated symptom from the lupus. ...Read more

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I was diagnosed by a rheumatologist as having fibromyalgia, my gp thinks it is either lupus or ms. How will they actually make a diagnosis?

I was diagnosed by a rheumatologist as having fibromyalgia, my gp thinks it is either lupus or ms. How will they actually make a diagnosis?

See below: There are no specific tests for fibromyalgia which is a condition in which there is widespread pain above and below the waist and on both sides of the body. Ms and lupus both have certain lab tests as well as other tests that can establish either of those diagnoses. ...Read more

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What is the best climate for me. I have lupus scleroderma RA fibromyalgia and crest syndrome?

The Mighty Vitamin D: You may do better in warmer climate closer tot he equator for 2 reasons: more vitamin D and more exercise. Receiving more sunlight would naturally raise your vitamin D levels. Adequate vitamin D is essential for fibromyalgia relief, and is a powerful anti-inflammatory. More exercise, especially light walking or yoga on the beach would add to the benefit of vitamin D. ...Read more

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My WBC is low (2.7) & has been dropping. I'm being screened for lupus. Why would WBC be low with auto-immune? I have fibromyalgia and Reynauds.

My WBC is low (2.7) & has been dropping. I'm being screened for lupus. Why would WBC be low with auto-immune? I have fibromyalgia and Reynauds.

Auto-antibody: Auto-antibodies in SLE can react with blood cells an cause leukopenia and also anemia and low platelet counts. Please consult this site for more info on this topic:
http://www. Lupus. Org/answers/entry/how-does-lupus-affect-my-white-blood-cells ...Read more

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I have fibromyalgia and two heart conditions, plus I am B12 and vitamin d and iron deficient, can this be connected with lupus?

I have fibromyalgia and two heart conditions, plus I am B12 and vitamin d and iron deficient, can this be connected with lupus?

No: People with fibromyalgia can have lupus as well, but the conditions are separate and distinct. The heart issue and vitamin deficiencies are also not related. ...Read more

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If I have an elevated CRP and est with a negative ANA what could this indicate? I have type 1 dm and fibromyalgia. They were suspecting lupus

If I have an elevated CRP and est with a negative ANA what could this indicate? I have type 1 dm and fibromyalgia. They were suspecting lupus

The: The ESR and CRP are both markers of inflammation. However, they are very non-specific and can be elevated in a wide variety of conditions including infections, malignancies, and auto-immune diseases. The ANA is the screening test for lupus and similar conditions. It has many false positives but very few false negatives. In your case, the negative ANA most likely means that you elevated ESR and CRP are not due to lupus. ...Read more

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I had corrective surgery for sternal nonunion. A metal plate with wiring was placed. It is 8 weeks after and I am still having pain, is this normal. I have lupus type 1 diabetes, and fibromyalgia.

Complicated: Unfortunately, your additional diagnoses willvtend to slow the healing process, and cansensitize you to pain that in ssomeone without them might find less intense. 8 weeksis still plenty of time to expect at least pain improvement if not rresolution. See yoursurgeon for follow up. ...Read more

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How might you treat leaky gut syndrome with a patient who has lupus, fibromyalgia, and allergic to sulfa drugs and (90/100 foods). Thank you.

How might you treat leaky gut syndrome with a patient who has lupus, fibromyalgia, and allergic to sulfa drugs and (90/100 foods). Thank you.

Start with delayed: food allergy panel (Elisa Antigen testing) to see the whole spectrum of foods/environmental allergens that you are exposed to perhaps unknowingly. So you can begin to do an elimination diet to help repair your gut lining. This would be a start. Then work with an integrative doctor, who can monitor your progress, and medically manage you through this. Correcting your diet is the first step. ...Read more

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Can fibromyalgia or lupus make me feel pain differently? I have a small hiatal hernia I wake with intense pain in this area. Dxgasrtopsrisis&ibs also.

Can fibromyalgia or lupus make me feel pain differently? I have a small hiatal hernia I wake with intense pain in this area. Dxgasrtopsrisis&ibs also.

Generally No: If your hiatal hernia is causing pain, then generally the fibromyalgia doesn't heighten this pain at all. The pains may overlap but the intense pain is usually associated with other pathology and the dull aching pain may be associated with the firbromyalgia. Again this is just all supposition, I would suggest being evaluated by a specialist to see if there is any truth to this. ...Read more

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I have many chronic conditions. Lupus, spinal stenosis, djd, fibromyalgia, degenerative disc disease. My husband doesn't understand my pain. Any ideas?

Go to doc with you: Have your husband attend your appointments with you. Ask the physician, physical therapist, etc. To explain the nature of the conditions to your husband, including the associated pain and toll it takes on you physically and mentally. Seeing a marriage counselor/psychologist could also be helpful. ...Read more

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I have fibromyalgia. I have many symptoms of autoimmune diseases. Lupus & RA test normal. ANA & CRP test are positive and elevated. What does this mean?

Exam: You should see a rheumatologist to undergo a full history and exam. No single test can diagnose a rheumatological disease. ANA alone is not indicative of sle. The titer and type is imp. High CRP again in a non specific sign of inflammation. So should see a rheumatologist and have this a exam. ...Read more

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My viens move and then my right hand hurts where the vein moves. Being tested for lupus and dr thinks I have fibromyalgia.20yr old (f). should I worry?

My viens move and then my right hand hurts where the vein moves. Being tested for lupus and dr thinks I have fibromyalgia.20yr old (f). should I worry?

Don't worry: You are being tested and to the extent possible, you'll be treated. I'm not saying these are not bad conditions but worry will do nothing to help and will make things worse. Take it seriously and find a really good supportive Health Psychologist to guide your understanding of the medical picture as it forms. Also try to keep from touching those veins (moving them). Leave it alone and try to relax. ...Read more

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How can I differentiate symptoms to know if it is fibromyalgia, lupus, or crohns? I have a butterfly rash and positive AnA, lots of IBS symptoms, pain

How can I differentiate symptoms to know if it is fibromyalgia, lupus, or crohns? I have a butterfly rash and positive AnA, lots of IBS symptoms, pain

Diagnosis?: With your considerations, specialist consultation (Rheumatologist, gastroenterologist, infectious disease) and relevant testing should help elucidate a specific cause, or causes. ...Read more

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Doctors have all been rude anymore and will not prescribe me Vicoprofen (hydrocodone and ibuprofen) I've taken many years for my Lupus and Fibromyalgia in TX, what can I do?

Doctors have all been rude anymore and will not prescribe me Vicoprofen (hydrocodone and ibuprofen) I've taken many years for my Lupus and Fibromyalgia in TX, what can I do?

Hydrocodone: Is not recommended for non cancer pain with perhaps the exception of some cases of neuropathy. The American Academy of Neurology just issued a statement to that effect. More people have died from narcotic overdose from prescriptions in the past 10 years than died in the Vietnam War. Fibromyalgia has never been an indication for narcotic use. If you have neuropathy from SLE you may qualify for Tx ...Read more

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How to relieve extreme leg pain possibly caused by lupus, vericose veins, restless leg syndrome, or fibromyalgia?

How to relieve extreme leg pain possibly caused by lupus, vericose veins, restless leg syndrome, or fibromyalgia?

Need more specifics: First you need to see a doctor and get a specific diagnosis then the appropriate treatment can be prescribed. ...Read more

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I'm swelling so bad in my legs that u can press on it and stays. Sleepy all the time hard time urinating. I have RA lupus fibromyalgia. Is it kidny?

I'm swelling so bad in my legs that u can press on it and stays. Sleepy all the time hard time urinating. I have RA lupus fibromyalgia. Is it kidny?

See Dr ASAP!: With those serious conditions and this extreme new symptom, it is very important that you see your doctor ASAP. Of course there's a chance of something involving kidney function, but the important thing is finding a corrective therapy. Don't wait - ask for an urgent appointment or go to urgent care or an ER. Systemic toxins are not good. Nip it in the bud. ...Read more

Dr. Laurence Badgley
1,367 Doctors shared insights

Fibromyalgia (Definition)

Widespread pain and tenderness on palpation of specific muscle points, associated with variety of other symptoms that include fatigue, sleep disturbances, depression, ...Read more