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Doctor insights on: Tegretol Neuralgia Making Pain Worse

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Could the tegretol I'm taking for trigeminal neuralgia be making the pain worse?

Could the tegretol I'm taking for trigeminal neuralgia be making the pain worse?

Probably not: Tegretol reduces tn pain in about 70% of patients. It is possible it doesn't work. Make sure the diagnosis is correct. It is rare that tegretol would make tn pain worse. ...Read more

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Dr. Jeffrey Cohen
1,915 Doctors shared insights

Neuralgia (Definition)

Can also be described as neuropathic pain or "nerve pain" which can occur anywhere in the body. It can also be due to many disorders such as direct nerve damage, diabetes, ...Read more


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My mum was diagnosed with tegminal neuralgia on 2014 she has been on tegretol 1200g and she is still in pain what should be done to manage the pain?

My mum was diagnosed with tegminal neuralgia on 2014 she has been on tegretol 1200g and she is still in pain what should be done to manage the pain?

Med adjustment: Well, the truth is trigeminal neuralgia can be challenging to treat and often times it's not possible to pick the "perfect" medication to start with so there are several "tweaks" that are usually made before finding something that really works. If you'd like to schedule an appointment we can discuss options for her: www. Healthtap. Com/drsaghafi Use Key Code: PDXFNR to make calendar appointment. ...Read more

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If carbamazepine isn't working to treat my trigeminal neuralgia, what is a good drug to try next?

Trileptal: Is reported to be effective for trigeminal neuralgia. Some clinicians now prefer to use oxcarbazepine (Trileptal) as their first line drug for trigeminal neuralgia because of its reduced side effect profile. Unfortunately, about half of TN sufferers eventually become dissatisfied with medical therapy, explore surgical options. ...Read more

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I am 48, male. I suffer from trigeminal neuralgia since 2001.600mg tegretol XR /day helps. But pain/frequency worsen during rainy season_ why?

Change in temp.?: Something similar occur with arthritic pains and cold temperature. May be rain changes in the environment loke humidity or even the local tempertaure triggering change in the autonomic or peripheral nervous system. ...Read more

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On tegretol XR twice a day, what's the best way to deal with breakthrough or triggered (cold/touch/chewing/wind/etc) pain from trigeminal neuralgia?

On tegretol XR twice a day, what's the best way to deal with breakthrough or triggered (cold/touch/chewing/wind/etc) pain from trigeminal neuralgia?

Depends on dose: Depending upon the dose of carbamazepine you are on it may be possible to increase the dose to avoid painful breakthrough events. Sometimes, a combination of carbamzepine and gabapentin can be helpful to patients. Please speak with your prescribing physician. ...Read more

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Is there any other medicine besides carbamazepine for trigeminal neuralgia because this medicine is not effective anymore! Plz suggest any other med..

Oxcarbazepine: Oxcarbazepine (Trileptal), the keto-analogue of carbamazepine, is reported to be as effective as carbamazepine for trigeminal neuralgia and is considered a first line drug by some clinicians. Several neurosurgical procedures (MVD) are available to treat TN. ...Read more

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I'm on carbamazepine for about a week or so and I don't like it. I'm taking it for Trigeminal Neuralgia, can I stop taking it since I haven't been on?

I'm on carbamazepine for about a week or so and I don't like it. I'm taking it for Trigeminal Neuralgia, can I stop taking it since I haven't been on?

Careful: Hi, Thank you for your question. You haven't been on it too long to build a physical dependence but you should still discuss with your PCP this decision. They can start you on another medication at the same time. Hope that helps. Contact me if you have any other questions :-) Dr. M ...Read more

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Had a clear MRI after a diagnosis of Trigeminal Neuralgia. What could this mean? Tegretol XR 400mg twice a day has significantly reduced pain flares.

Had a clear MRI after a diagnosis of Trigeminal Neuralgia. What could this mean? Tegretol XR 400mg twice a day has significantly reduced pain flares.

DX=Trigeminal Neural: A clean MRI (with contrast) simply means there is no obvious INTRACRANIAL explanation to your diagnosis of TN. But there are certain assumptions being here such as if you for sure HAVE neuralgia and not NEUROPATHY which can sometimes be mistaken. Have you had a neurological examination? If not, that should be your next step. Want to chat about it? Www. Healthtap. Com/drsaghafi Key Code: PDXFNR ...Read more

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Just diagnosed with trigeminal neuralgia. Following the schedule for increasing the tegretol XR per neuro. How can I reduce impact on my job as a mgr?

Just diagnosed with trigeminal neuralgia. Following the schedule for increasing the tegretol XR per neuro. How can I reduce impact on my job as a mgr?

Triennial neuralgia: Treament with carbamazepine does not usually require a titration (yes you will be a bit dizzy for 2 days) start with 300 twice a day and go up to 400 twice a day as needed. Do not use brand name Tegretol XR as there are dose failures (medicine does not pass through tiny hole in capsule) Use carbitrol instead. Most cannot work until symptoms abate ...Read more

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I'm on carbamazepine (300 mg) for the treatment of trigeminal neuralgia can it lead to elevated GGT level?

Not conclusive: First of all, a single blood test in isolation do not provide enough information to form any definitive conclusions. A number of tests must be performed to have any meaning. Carbamazepine may cause an elevated GGT level, but also NSAIDs OTC may. Talk to your treating physician to find out what the test could mean for you. Carbamazepine 300mg for TN is a very small dose. ...Read more

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Trigeminal neuralgia 6 mth. On carbamazepine 300mg tds. Still on&off symptoms. Does switching to lyrica (pregabalin) or oxcarbazepine help? Or decompression surgery?

Go higher: Carbamazepine (tegretol) is still the drug of choice. If no side effects and blood tests (cbc, liver functions) are within normal limits, increase Carbamazepine up to 1200mg/day or higher. Before switching to oxcarb try another option by gradually adding up to 10 mg of Baclofen tid. Rec:do not self-medicate. Always consult with your physician before changing any protocol. ...Read more

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Get intermittent nerve pain on dorsal side, outer edge of left hand, along right side of knuckle. 61 female, on tegratol and lamictal for epilepsy.?

Get intermittent nerve pain on dorsal side, outer edge of left hand, along right side of knuckle. 61 female, on tegratol and lamictal for epilepsy.?

Hand pain: Sometimes this can be associated with the epilepsy, but if it is more like a problem perhaps from the elbow down to the outside border of the hand, called cubical tunnel syndrome, or compression of the ulnar nerve on the inside of the elbow. Especially is your arm/elbow is laying down a lot, or you have this symptom at night and wakes u up... That's probably it... Go see ur doc to have it tested. ...Read more

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Can glossopharyngeal neuralgia make bppv worse?

It Depends: There are intimate connectivity between the glossopharyngeal nerve and the vestibular cochlear nerve. Are there any associations between your neuralgia pain and your vertigo? Perhaps keeping a pain and vertigo diary might be useful. ...Read more

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Just been diagnosed with trigeminal neuralgia, and started on a treatment course, will the pain still get worse over time? Will my anxiety decrease?

Just been diagnosed with trigeminal neuralgia, and started on a treatment course, will the pain still get worse over time? Will my anxiety decrease?

No: trigeminal neuralgia, although it can be very painful, can be treated. There is no reason it should get worse over time, especially if you find the right treatment. Once you are no longer in pain, your anxiety might decrease. ...Read more

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On perc for l excruciating neck, arm and l head neuralgia. Pain worsening. Neurontin (gabapentin) no help. Can't move w/out help.? Isn't pain responding?

Don't give up hope: There are a variety of other things to be considered based upon the postulated cause of your pain. Physical therapy? Might benefit from muscle relaxant, non steroidal, antiepileptic (for potential nerve pain) or maybe even an injection or trial of nerve stimulation, etc. Hard to tell from across the country. If your primary doc can't help you maybe a do / chiropractor or pain clini. C. ...Read more

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It's normal when having occipital neuralgia that the stabbing pain of right part of my head to get worse when bending forward, I get dizzy also.

It's normal when having occipital neuralgia that the stabbing pain of right part of my head to get worse when bending forward, I get dizzy also.

Occipital pain: It sounds like you're informing us of some symptoms you're experiencing. . . But you haven't asked a specific question. If I were in your place, I would see my physician for an evaluation asap. ...Read more

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Can trigeminal neuralgia happen on both sides of the face? Or switch from right to left? Getiing progressively worse. Low grade fever. Lost 90lbs in6mo

Can trigeminal neuralgia happen on both sides of the face? Or switch from right to left? Getiing progressively worse. Low grade fever. Lost 90lbs in6mo

Unlikely: The pain of idiopathic Trigeminal Neuralgia occurs unilaterally in the distribution of one or more divisions of the trigeminal nerve. TN rarely occurs bilaterally; when it does, it is usually secondary to multiple sclerosis. TN never crosses the midline but on rare occasions, may switch to the opposite side in different attack periods. See orofacial pain specialist for proper diagnosis. ...Read more

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Dr. Mohamad Mikati
433 Doctors shared insights

Carbamazepine (Definition)

This drug was once the breakthrough product to treat trigeminal neuralgia, and later various forms of epilepsy, and even psychiatric uses ...Read more


Dr. Milton Alvis Jr
842 Doctors shared insights

Nerve Pain (Definition)

Neuralgia is a sharp, shocking pain that follows the path of a nerve and is due to irritation or ...Read more