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Doctor insights on: Sunlight Hurts When It Hits My Skin Have You Heard Of Porphyria

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Sunlight hurts when it hits my skin. Have you heard of porphyria?

Sunlight hurts when it hits my skin. Have you heard of porphyria?

Sun sensitivity: Porphyria is a disease of hemoglobin metabolism where abnormal chemicals are produced in the body that are sensitive to ultraviolet light. In severe forms of porphyria, people get red teeth and lips, and it is believed that count dracula had porphyria, and could only go outdoors at night . It is likely that you have another form of sun sensitivity, so use a sunscreen, and use long sleeve shirts. ...Read more

Dr. Aletha Tippett
91 doctors shared insights

Porphyria (Definition)

Metabolic disorders caused by abnormalities in the synthesis of heme, the portion of hemoglobin which carries the iron inside red blood cells. Symptoms can range from light sensitivity to liver failure to nerve damage to bouts of terrible pain.Special testing is required to ...Read more


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I have Porphyria cutanea tarda. How can you remove milia that grows under my skin (hands). I assume it's milia 'cos they're tiny white cyst like bumps?

I have Porphyria cutanea tarda. How can you remove milia that grows under my skin (hands). I assume it's milia 'cos they're tiny white cyst like bumps?

There are kits: Some brave folks use equipment to remove them in their own, or any senators can do this easily. Since there is often vessel compromise in PCT, ask for a physician's guidance Before you start with your own needle and curette. ...Read more

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Does porgyria suffers from rarest skin disease?

Does porgyria suffers from rarest skin disease?

Progeria: There are a variety of diseases, all genetic and uncommon, in which the person's skin has some features of an older person's from the time of birth. None is true mimic of fast aging. No one knows what the rarest skin disease is, because we discover new ones monthly and the rarest is surely undiscovered. But if you have progeria, it's a challenge and you have my sympathy. ...Read more

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Can porphyria improve with age?

Can porphyria improve with age?

With treatment: Since most forms of porphyria are inherited there is not a cure for them. Depending on the type, treatment can relieve symptoms and improve quality of life. Acquired porphyria can improve with removal of the triggering causes. ...Read more

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Do I need a special diet with porphyria?

Do I need a special diet with porphyria?

Probably not: There are different types of porphyrias and most of them are not affected by dietary manipulation. There is some evidence that a high carbohydrate diet will alleviate some of the acute attacks. All this should be coordinated through a physician who deals with this type of metabolic problem. ...Read more

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Will porphyria affect my thinking and memory? 

Will porphyria affect my thinking and memory? 

Possibly: Porphyria symptoms can include depression, confusion, hallucinations & delusions. These symptoms are most likely to occur during an acute attack. Other symptoms that one may experience during an attack could also affect thinking & memory. For examply, nausea & pain may decrease one's ability to concentrate, thereby affecting memory & attention span. ...Read more

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How can I tell if I have a mild porphyria? Would it be hard to tell?

Not easy !: Porphyria is on of the most difficult diagnosis to make. The tests are quite specialized. Talk to an internist or endocrinologist who has experience with this diagnosis. ...Read more

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What is porphyria? What are the specific problems caused by porphyria?

What is porphyria? What are the specific problems caused by porphyria?

A rare disease: Porphyria is a very rare disease due to a problem is the production of porphoryin which become part of the hem molecule that eventually gets placedinto the hemoglobin to make red blood cells. The disease can cause skin problem abdominalmpain and other problems. ...Read more

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What's porphyria cutanea tarda?

What's porphyria cutanea tarda?

See below: Pct is one of the hepatic porphyrias. Large amounts of porphyrins build up in the liver when the disease is becoming active. The disease becomes active when acquired factors, such as iron, alcohol, hepatitis c virus (hcv), hiv, Estrogens (used, for example, in oral contraceptives and prostate cancer treatment) and possibly smoking, combine to cause a deficiency of urod in the liver. ...Read more

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What is porphyria cutanea tarda?

What is porphyria cutanea tarda?

Blistering disease: It is a disease that causes blistering seen more often in alcoholics because of enzyme defect causing increased porphyrins in blood. See dermatologist for full details and treatment. ...Read more