Doctor insights on:
How common is seronegative lupus? I have malar rash, joint/muscle pain, fatigue, tinnitus, fasciculations etc. But all rheum tests neg/normal
Rare: It accounts for about 3% of lupus patients. ...Read more
I have a positive lupus ban test but a negative ANA test. My primary care doctor said I have sero negative lupus and told me not to see a specialist?
See a rheumatologist: A positive lupus band test on a skin biopsy suggests cutaneous lupus but not necessarily systemic lupus. See a rheumatologist. It is presumptuous for a primary care physician to tell you what he/she did. ...Read more
My dsdna double strand reference was 3.45 and very symptomatic. S this a positive for lupus how is it scored?
Possibly: This is one of the many blood tests used to diagnose lupus. You should consult your rheumatologist to have them run a full battery of tests ...Read more
This last 2 weeks feel so run down between p.O.T.S and lupus... I'm 27 I want to feel normal. But I don't think ill ever be "normal" again. :/?
See below: Go the lupus foundation of america's website to find a support group for lupus patients near you. I think you would find this beneficial and you would also learn how other patients cope with the disease. ...Read more
Is it ok for s.l.e lupus patients to take suppliments for gym workouts such as, Karbolyn xr3, stance bcaa, gluamatic
Lupus: Lupus is an autoimmune disease and affects skin, joints, kidneys, heart, lungs, brain, blood and blood vessels. In lupus immune system makes antibodies to healthy cells causing inflammation leading to damage to organ or body system. Lupus is not contagious. It is not a cancer or related to hiv. It is a chronic inflammatory disease with ups and downs. With good care most can lead healthy life. ...Read more
Autoimmunity: Lupus erythematosus is a chronic inflammatory disease of unknown cause. The immune system attacks the patient's own body (autoimmunity) and can inflame the skin, joints, kidneys, nervous system, lungs, mucous membranes, and other internal organs. A red rash is often but not always present hence the term lupus erythematosus meaning "red wolf.". ...Read more
Auto-immune disease: Systemic lupus erythematosis: a complex disease. It is an "auto-immune" disease (production of antibodies attacking the sufferer's own body). Symptoms can include fevers, aches/pains, fatigue, weight loss, kidney disease, rash, easy clotting, many others. Treatment includes suppressing the immune system to reduce the antibodies. Discoid lupus has a rash, not necessarily other symptoms. ...Read more
Autoimmune disease: The immune system causes inflammation in skin (often red cheeks after sun exposure), and/or joints, and sometimes organs like kidney, muscle, liver, blood vessels, brain. Treated with plaquenil, (hydroxychloroquine) antiinflammatories, other meds, and healthy habits like vaccines to prevent infections and exercise to stay fit. ...Read more
Lupus: Hard to explain. Your own body produces antibodies against your own body. Causing multisystem/multiorgan disorders. Mostly affect the joints, skin, kidney, blood, nerves. May be prone to kidney disease, blood clots, and fatigue. Treatment is complex. This is when you really need to kow your doctor well. Females are more affected. Www. Lupus. Org. ...Read more
More than one reason: It is felt the lupus is the result of a combination of things some of which are not known. A combination of genetic wrists, environmental exposures, possible viral infections are all considered. There may be more than one cause of lupus. ...Read more
This answer will change as we know more about lupus. We believe that for a person to get lupus, from the limited genetic information we have now, about 10% is from known genetic causes and remaining 90% unknown genetic causes and environmental causes.
Environmental causes are largely undefined but important. Think about this: only 30% of identical twins develop lupus together. ...Read more
No: Lupus in all its various presentations is treatable but it is not curable nor reversible. In some cases, lupus may go into remission but if it does go into remission, it does so on its own and does not go into remission as a result of treatment. ...Read more
Somewhat hereditary?: Sle (lupus) is an auto-immune disorder in which a person's immune system is reacting strongly against parts of his own body. The inflammation from the immune system reaction leads to symptoms. It is believed to be partly genetic or familial (some people may be genetically more likely to get sle) and partly environmental (something happens in a person's life that sets off the auto-immune reaction). ...Read more
Immune regulation: One's immune system requires a control center (regulatory lymphocytes etc) to keep it in balance. When the regulation is impaired, immune disorders such as allergic and autoimmune disorders develop. There is also a strong genetic and hormonal influences. Females or people with family history of autoimmune or allergic disorders are at a higher risk to develop these diseases. ...Read more
Worsening: Flares are worsening of lupus signs and symptoms. Stress reduction, a healthy diet, routine exercise, and avoidance of excess sun exposure all help to reduce lupus flares. If you smoke, you must stop as it is deadly especially in lupus. Speak to your doctor about which medications to avoid. Also ask if you should be on Plaquenil (hydroxychloroquine) which has very few risks but offers significant protection. ...Read more
Autoimmune: Systemic lupus erythematosus is an auto immune illness. This means people have a immume response against themselves and their own tissues. The hallmark blood test is a positive anti-nuclear antibody or an ana. Depending on what tissue is involved results in the clinical symptoms such as rash, arthritis, kidney disease etc. ...Read more
Varied therapies: It depends on what manifestations of disease you have. Treatments may include anti inflammatory medications, steroids and many other treatments. These really depend on your symptoms with severe nervous system or kidney disease powerful drugs lime Cytoxan (cyclophosphamide) may also be needed. ...Read more
Complicated: If you have lupus, you should see a doctor specializing in careof that disease. The specialist here would be a rheumatologist. You may have a pcp who is very competent in caring for you, however. You may need to be followed by a dermatologist, nephrologist (kidney doctor) and neurologist. Can't give you the whole enchilada in 400 character space. (google a reputable web site). ...Read more
Autoimmune disease: Lupus erythematosus is a chronic inflammatory disease of unknown cause. The immune system attacks the patient's own body (autoimmunity) and can inflame the skin, joints, kidneys, nervous system, lungs, mucous membranes, and other internal organs. A red rash is often but not always present. Thus, it was named lupus erythematosus meaning "red wolf.". ...Read more
Multiple factors: The diagnosis of lupus is made based on a constellation of clinical and laboratory criteria. That is there are a number of pre-determined symptoms, physical signs (things a Dr. Sees when examining you), and findings on bloodwork. A minimum number of these must be present in order for the diagnosis to be made. So, you would need to have a physical exam and have blood work drawn. ...Read more
Meds & prevention: All people with systemic lupus should take Plaquenil (hydroxychloroquine) unless allergic. It helps control flares & prevent organ damage. Also nsaids help pain. Immune suppression drugs may be needed. Preventing infection (vaccines, hand-washing, etc.) and preventing heart disease are important. A rheumatologist is helpful. ...Read more