Doctor insights on:
Sarcoidosis Treatment Guidelines
Hi I was seeing all these checklists and one I didn't see was for sarcoidosis I wonder if any of you doctors had thought about doing one this?
All systems.: A list of common symptoms and systems affected in patients with sarcoidosis is difficult because it can affect every system and be different in each patient. The most commonly affected systems are the skin, the eyes and the lungs. The disease is rarely fatal unless the heart is involved. Treatment depends on which systems are affected and usually by a specialist.
Sarcoidosis: Dear jbennett, sarcoidosis is a disease of unknown etiology which can affect almost any part of a patient's body. It is known for the granulomas it produces--non-caseating--which can form commonly in the lungs. About 50% of the patients are african or hispanic origin, there is also a large % from northern europe. It has been found that a patient's immune response creates the granulomas. ..See 1 more doctor answer
Pulmonologist: Since most sarcoidosis starts or involves the lungs, pulmonary medicine specialists are the most common treating physicians. However, immunologists and rheumatologists can also be effective providers. Since so many organs can be involved by sarcoidosis, many different specialists can be required for management.See 1 more doctor answer
Depends: We would need to know where the sarcoid is and what symptoms you are having and what you have already tried.See 1 more doctor answer
Can't tell: The longevity in these two diseases actually depends on how active they are. Lots of people do well for long since the disease underwent a spontaneous remission or a remission after therapy.
I'm just wondering, if you have lupus and sarcoidosis and you refuse treatment. How long could you live for?
It depends: It depends on the organ involvement. Talk to your rheumatologist who knows your case best and he or she could give you a better estimate.
No: Nothing that I know of is curative. There are several medications to help control it.See 1 more doctor answer
I think I might have sarcoidosis, what should I look for in selecting a doctor or treatment center?
Maybe nothing: Treatment for pulmonary sarcoidosis in the modern era may involve "watchful waiting" instead of treatment with prednisone, or any other immune-suppressing medication. Treating too early with Prednisone may increase one's chances for recurrent disease, causing docs to wait to treat until there is evidence that the function of a vital organ--lungs, heart, brain, eyes, kidney--has become affected.
Yes: This would be fairly common with significant steroid doses but the changes are mild for most patients. The other meds don't tend to affect personality.See 1 more doctor answer
Cure?: No unfortunately not.Get a more detailed answer ›
Pulmonologist: Sarcoidosis is a condition where inflammatory deposits can localize in multiple sites in the body, but most commonly the clinical findings are most prevalent in the lungs (hilar adenopathy, micronodule deposition in lung tissue). Changes in pulmonary function studies, coughing, and dyspnea might occur. In heart, sarcoidosis can result in arrhythmias, and cardiomyopathy.See 2 more doctor answers
I am physical and massage therapist, is sarcoidosis contraindicative to any type therapy or bodywork, that you know of?
I have sarcoidosis & reconversion of my marrow (yellow to red) in my spine and lower skull. Hematologist says sarc. What are the treatments symptoms?
Corticosteroids: The mainstay of treatment for sarcoidosis is steroids - such as prednisone. Side effects of high dose Prednisone include elevation of blood sugar, and sometimes euphoria. Longer term treatment with high doses causes the characteristic "moon face", acne, high blood sugar, and osteoporosis. There are case reports of successful treatment (not cure) with Adalimumab (humira) a monoclonal antibody.
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