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Doctor insights on: Rigid East And Lupus Films

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Living with lupus can be hard. How can I cope?

Support group: The lupus foundation with local groups can be very helpful. If necessary a psychologist or even a good friend or spouse can be a sounding board just as with any potentially chronic disease. ...Read more

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What to do if I have lupus and I was wondering if nursing would be hard?

Talk to your dr: If you are planning on nursing, talk to doctor beforehand to make sure that you are not any medications that may affect your baby. ...Read more

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I have lupus. When im in horrible pain and its hard to walk. Is that a luous flare?

I have lupus. When im in horrible pain and its hard to walk. Is that a luous flare?

Possibly: It certainly could be...Would definitely discuss with your doctor. Especially if the pain involves joint stiffness as well as pain. ...Read more

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I have lupus and POTs. When one is doing going, I struggle with the other. It's hard to keep up with friends. How to explain? I can't make every event

I have lupus and POTs. When one is doing going, I struggle with the other. It's hard to keep up with friends. How to explain? I can't make every event

I would be candid.: I would explain how much these people mean to you but advise them that your health some times limits what you can do with them and the time that you spend together. ...Read more

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Help please? How hard is it to live with lupus?

Under: Good guidance and care, now a days treatments are quite effective. Stick to treatments, precautions and labs. Good luck! ...Read more

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Living with someone with lupus can be hard. How can I cope?

Living with someone with lupus can be hard. How can I cope?

Difficult world....: When someone close is sick, communication between the healthy person and the sick person becomes strained, because the well-person feels the sick person is overburdened. The best answer is to sit down and have a straight discussion over feelings. Do not the sick person take you on a guilt trip, for which you are not responsible. ...Read more

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What do you suggest if I had come up positive. I share some of the symptoms of lupus. How hard will my life be if I have lupus?

Not enough info: What came up positive? What symptoms do you have? Have you seen a rheumatologist? It is impossible to answer a question such as this when no specifics are given. ...Read more

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Would you please cite some references of books etc on the subject of coping with chronic illness? I have lupus and it is hard to deal with.

Would you please cite some references of books etc on the subject of coping with chronic illness? I have lupus and it is hard to deal with.

Books on Coping: There are many books on coping with chronic illness. I hope you have already found them! Rather than simply coping, I also like to find books that give me perspective and insight. Dr. Remen's "kitchen table wisdom" is a classic, as is arthur frank's "at the will of the body." for couples, kivowitz and weisman's "in sickness as in health" is also packed with info and wisdom. ...Read more

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Lupus are the flu its hard to tell when yoy have lupus?

Lupus are the flu its hard to tell when yoy have lupus?

No no no: No lupous is not flu (virus) it is an autoimmune disease local or systemic, if kidney not invoved the 1st time and then they are not. Bad immune system is active its like wolf skin as connective tissue is involved. Immunologist and rheumatologist work hand in hand. ...Read more

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I thought I had lupus, is it hard to find? I had a butterfly polkadotted rash on my inner thighs is it possible to have the rash there?

I thought I had lupus, is it hard to find? I had a butterfly polkadotted rash on my inner thighs is it possible to have the rash there?

Probably not.: "butterfly rash" refers to a rash shaped like a butterfly on the central face. A spotty rash on the inner thighs is most commonly a ringworm or yeast infection, but there are many other (less common) causes. Very unlikely to be lupus. Check with your doctor or a dermatologist and find out what it really is. ...Read more

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Miss 1-2 days of work every month due to lupus. I'm an very hard worker but disease kicks me down. Have fmla but fear getting fired or angering boss.

Miss 1-2 days of work every month due to lupus. I'm an very hard worker but disease kicks me down. Have fmla but fear getting fired or angering boss.

You're not alone: I wish I had a more complete answer for you, but perhaps it will help you just a little but if I tell you that I have heard of this type of situation a hundred times. Perhaps the best thing is to have an honest talk with your boss. ...Read more

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Since lupus, even when I 'm great &normal labs, I get hit hard w/ fatigue out of nowhere in aftternoon/early eve & I have to drop everything & sleep.

Since lupus, even when I 'm great &normal labs, I get hit hard w/ fatigue out of nowhere in aftternoon/early eve & I have to drop everything & sleep.

This happens.: Fatigue is common in lupus. I published a study showing Modafinil alleviated this in sjogren's syndrome, and I use it in many sle patients with good results. Talk too your doc. ...Read more

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Can someone with lupus or an autoimmune disease drink beer or hard liquor?

Can someone with lupus or an autoimmune disease drink beer or hard liquor?

See below: You can consume alcohol so long you are not medication that could cause liver damage if you drink alcohol. When in doubt it is always good to call and ask your physician to see if it would okay to consume alcohol with the medications prescribed. ...Read more

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Have a bug bite it is now inflammed red hard and warm to touch. Very itchy and painful should I be worried. I have a history of lupus & cellulitis?

Have a bug bite it is now inflammed red hard and warm to touch. Very itchy and painful should I be worried. I have a history of lupus & cellulitis?

Norma/Concerning: When our skin sustains an injury, immediate response is inflammation (red, hot, tender swelling) for about 48-72 hours. This is the body increasing blood flow to the area to bring healing factors and is normal healing. If it gets worse over time (increase in pain, fevers, chills, more redness), then it may be infected or the lupus may be reacting. If so, then seeing the doc may be your best bet. ...Read more

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I have lupus and I feel burning on my stomach. My stomach is big and hard looks like I am five months pregnant. Should I go to a doctor?

I have lupus and I feel burning on my stomach. My stomach is big and hard looks like I am five months pregnant. Should I go to a doctor?

Burning stomach: Hello there, do you have any burning type feeling on the palm of your hands and on the soles of your feet as well? Is the stomach burning deep inside or on the surface of the skin?

thank you ...Read more

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Sle cause muscle spasms? Have sle & severe pain + hard muscle/tissue in back/butt. Dr says spastic muscle, but is lupus causing it or? Ana 1:640, +rnp

Probably not: As lupus affects mostly certain compartments while in flare, like joints, skin, brain, lung, kidneys. Stretching and therapy may help. If pain persist, have imaging studies. Good luck. ...Read more

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Yellow tinged hard palate- im on klonopin, wellbutrin (bupropion).Nadolol, and prebiotics in powder form, have possible lupus and have pots could the meds be why?

Yellow tinged hard palate- im on klonopin, wellbutrin (bupropion).Nadolol, and prebiotics in powder form, have possible lupus and have pots could the meds be why?

Good question....: First see your dentist for an evaluation. You should also discuss side effects of all your medications with the physician who is prescribing them for you, along with your known and possible medical conditions. ...Read more

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I'm swelling so bad in my legs that u can press on it and stays. Sleepy all the time hard time urinating. I have RA lupus fibromyalgia. Is it kidny?

I'm swelling so bad in my legs that u can press on it and stays. Sleepy all the time hard time urinating. I have RA lupus fibromyalgia. Is it kidny?

See Dr ASAP!: With those serious conditions and this extreme new symptom, it is very important that you see your doctor ASAP. Of course there's a chance of something involving kidney function, but the important thing is finding a corrective therapy. Don't wait - ask for an urgent appointment or go to urgent care or an ER. Systemic toxins are not good. Nip it in the bud. ...Read more

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My dsdna double strand reference was 3.45 and very symptomatic. S this a positive for lupus how is it scored?

Possibly: This is one of the many blood tests used to diagnose lupus. You should consult your rheumatologist to have them run a full battery of tests ...Read more

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This last 2 weeks feel so run down between p.O.T.S and lupus... I'm 27 I want to feel normal. But I don't think ill ever be "normal" again. :/?

See below: Go the lupus foundation of america's website to find a support group for lupus patients near you. I think you would find this beneficial and you would also learn how other patients cope with the disease. ...Read more

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What;s the best pain medicine for lupus patients?

What;s the best pain medicine for lupus patients?

Acetaminophen NSAIDS: For symptom relief of pain you can use Acetaminophen or NSAIDs like Ibuprofen or o Naprooxen or Cox 2 Celebrex
Along wih Antimalarials (Hydroxychlroquin) and low dose steroids ...Read more

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Is it ok for s.l.e lupus patients to take suppliments for gym workouts such as, Karbolyn xr3, stance bcaa, gluamatic

Is it ok for s.l.e lupus patients to take suppliments for gym workouts such as, Karbolyn xr3, stance bcaa, gluamatic

Not sure, I don't: Think anyone knows for sure if its okay for sure. No study has been done on those supplement with SLE. I would recommend stay simple supplement with multivitamin, Vit D, B complex. At the most, protein shake for post work out. ...Read more

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How to tell if I have t1 diabetes, lupus and m.S at age 17?

How to tell if I have t1 diabetes, lupus and m.S at age 17?

Not likely: Why worry about 3 disorders, as you likely possess one unifying diagnosis to explain your problems. A good place to start is with an endocrinologist to deal with diabetes and the complications secondary to this. Focus on these issues, and later, if things seem peculiar look into co-morbities. Lastly, if you possess diabetes and lupus, doubt you have ms in addition. ...Read more

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Both my mom and aunt have been diagnosed with lupus, should I get checked for it as well? Since I know it’s hereditary

Both my mom and aunt have been diagnosed with lupus, should I get checked for it as well? Since I know it’s hereditary

Rheumatologic issues: The specific diagnosis of lupus wouldn't run in families as much as the tendency towards rheumatologic conditions in general - that tendency runs in families - lupus, rheumatoid arthritis, Sjögren's syndrome, scleroderma. Can find all of these in family lineages. Have a good history/physical exam/blood testing coordinated by Rheumatologist. ...Read more