Top
20
Doctor insights on: Primary Progressive Multiple Sclerosis Life Expectancy

Share
1

1
A friend of mine was recently diagnosed with primary progressive multiple sclerosis. Is this a fatal disease?

A friend of mine was recently diagnosed with primary progressive multiple sclerosis. Is this a fatal disease?

Cannot predict: Primary progressive ms is typically without rapid relapses, but also, without remission. Does not seem to respond well to meds employed in relapsing/remitting form. Most active therapy is symptomatic. However, research is ongoing with Gilenya (fingolimod) for ppms. Other drugs not yet on the market are being studied. Best bet is to get into one of these studies. Contact local medical school. Stay positive. ...Read more

Dr. Herman Hammerstead
3 doctors shared insights

Sclerosis (Definition)

We neurologists employ the term to describe localized damage involving the central nervous system, and sclerosis means scarring. If in many areas, might be multiple sclerosis. If affecting the motor nerve cell, ...Read more


2

2
I have a primary progressive multiple sclerosis and for the last three months I have had uncontrollable frustrating itchingtopical cream's prescribed ?

I have a primary progressive multiple sclerosis and for the last three months I have had uncontrollable frustrating itchingtopical cream's prescribed ?

Itching not MS: Need to evaluate what medications you are taking, and even whether you have a contact dermatitis due to detergent or fabric. MS doesn't cause itching or rashes, but allergies, chemicals, and medications do cause such items. ...Read more

See 1 more doctor answer
3

3
What do you consider primary symptoms of multiple sclerosis?

What do you consider primary symptoms of multiple sclerosis?

Classical: Loss of vision unilaterally, loss of balance and coordination, weakness of both legs, or focal arm/leg weakness, electrical shock sensation from neck downwards, unexplained fatigue or cognitive loss, problems with bladder control. All of this varies greatly from patient to patient as NO MS pt is similar to another. ...Read more

See 1 more doctor answer
4

4
Is primary progessive multiple sclerosis always fatal?

Not necessarily : Ms has been said to shorten life span, and untreated this is correct, but several studies have supported normal life if appropriate potent meds are employed. Primary progressive ms does not respond well to the usual meds, and mostly symptomatic interventions are used. There are many research projects nowadays, and best to contact a medical school and get involved. ...Read more

5

5
Treatment of multiple sclerosis is for life or temporary taking s.c injection of betaferon?

Treatment of multiple sclerosis is for life or temporary taking s.c injection of betaferon?

Need chronically: Some advice, there are pills available, but where you live, might be tough to get. Nonetheless, do not miss your injections, and add Vitamin D-3 about 5000-10000 units per day. We do not have a clear idea when to stop the MS meds, and in those older patients who I have stopped, a few have had relapses. Stay tuned, drugs to be used differently are on the horizon. (even Lemtrada) ...Read more

6

6
Can person with multiple sclerosis leave a normal or healthier life as common people. Is there any cure for multiple sclerosis.

Can person with multiple sclerosis leave a normal or healthier life as common people. Is there any cure for multiple sclerosis.

MS presents in: A variety of ways and there are lots of treatments but no cure at present. The covering of nerves erodes and communication between nerves can be come erratic, i.e., movement issues, vision issues, etc. Your doc and other health professionals can help you maximize your health. We all have limitations, some more obvious than others. Peace and good health. ...Read more

See 1 more doctor answer
7

7
Is there a relation between later-life dementia and multiple sclerosis?

Is there a relation between later-life dementia and multiple sclerosis?

Dementia and MS: Some people with MS may have a large burden of lesions, either because they did not find a helpful treatment, or because they did not use treatment. There are times when MS can cause symptoms of dementia, although it is normally referred to as MS.

This is becoming less common with the greater number of treatments that are available. More than thirty years ago, this was more common. ...Read more

See 1 more doctor answer
8

8
Is there a relation between later life dementia and multiple sclerosis?

Is there a relation between later life dementia and multiple sclerosis?

Dementia and MS: Sometimes a long history of aggressive or poorly-managed MS can result in symptoms like dementia. Perhaps this could be called "MS dementia".

There is no association of MS and Alzheimers disease or other illnesses that are considered causes of dementia. These are distinct illnesses. ...Read more

See 1 more doctor answer
9

9
Is multiple sclerosis progressive and fatal?

Prog.disease: There is a variant form of MS that is very aggressive that can lead to coma or death. However most of the other forms do not have such a grave prognosis. If left untreated >30 % of patients will develop significant disability within 20->25 years after onset. Life expectancy is shortened only slightly, death usually results from secondary complications. ...Read more

See 1 more doctor answer
10

10
What are the dangers, if any, of taking cycles or "gear" for bodybuilding if that person had multiple sclerosis? I'm just curious.

What are the dangers, if any, of taking cycles or "gear" for bodybuilding if that person had multiple sclerosis? I'm just curious.

Not simple: Bodily temperature elevation, from vigorous exercise, may result in a pseudo exacerbation, with amplification of prior symptoms which can reverse with cooling. But exercise is of value for ms patients, just needs to be paced. Also, depending upon the patients debility, exercise should be designed to prevent harm secondary to weakness, or imbalance/incoordination. ...Read more

See 1 more doctor answer
11

11
Why are "family doctors" answering multiple sclerosis questions?! I have spotted inaccurate info being given. Only a neuro answer? 's

Why are "family doctors" answering multiple sclerosis questions?! I have spotted inaccurate info being given. Only a neuro answer? 's

Part of a team: Your family doctor is usually the doc who makes the referrals and is often the one who helps treat complications, such as urinary tract infections, fatigue, associated injuries, medication reactions, and he/she keeps open the communication lines between different specialties. Coordination of medical care is critcal these days. ...Read more

See 1 more doctor answer
12

12
What causes progressive Multiple sclerosis too start moving rapidly?

What causes progressive Multiple sclerosis too start moving rapidly?

Complex: We now classify progressive disease as active or non-active, and an aggressive transformation can well be indicative of new superimposed systemic or local inflammation. Specific medication intervention might well help, but you need an experienced MS specialist, which is available in Las Vegas at Lou Ruvo Center of Cleveland Clinic. ...Read more

13

13
I'm scared I have multiple sclerosis?

Need to know more: Will really need to know more about what your symptoms are. Initially, you should discuss your concerns with your primary care physician. Then an appropriate a referral to a neurologist will allow a more definitive diagnosis for you.Multiple sclerosis is treatable at the present time with multiple medications and ensure an excellany quality of life. ...Read more

See 1 more doctor answer
14

14
What are the odds that I'm going to develop multiple sclerosis? How common is this?

Variable.: If you have identical twin with MS, about 30%, but if no relative and you live north of latitudes 39-42, could be as high as 1 in 545 in the general population. About 450,000 cases thought to be in USA, in a population over 300,000,000. ...Read more

15

15
I recently diagnosed by multiple sclerosis, and I don't know what to do I'm afraid to take medication.

I recently diagnosed by multiple sclerosis, and I don't know what to do I'm afraid to take medication.

Multiple sclerosis : First, I wish you will get better and get over this disease, and that can't be achieved without specialists supervision, neurologists and other physicians, and taking medications prescribed according to your stage / severity of the disease, if questioning the diagnosis, get a second opnion. If really anxious / depressed seek psychiatric help, but don't just stay put, good luck ...Read more

See 1 more doctor answer
16

16
I've had numerous test done. Outcome sign of Multiple Sclerosis not active I'm 50 will it become active?

Yes it is possible: Disease can go into remission and then flare up. You have to look for the cause. We propose to treat causes of such chronic ailment. To learn more about how to treat the cause Please visit us www.ehacstl.com ...Read more

17

17
All test Negative. No multiple Sclerosis! Who or where can I go to find out why I'm having problems bending my leg. NO PAIN!!! ?

All test Negative. No multiple Sclerosis! Who or where can I go to find out why I'm having problems bending my leg. NO PAIN!!!
?

Painless leg problem: I'm a bit confused. You state "No multiple Sclerosis!" but in your Clinical Findings: Conditions, you list "Multiple sclerosis". You also didn't describe where you're having painless difficulty bending your leg: hip? knee? ankle? My suggestion is to have your Family Doc refer you to Sports Med specialist, Rheumatologist, Orthopedic surgeon & even Neurologist esp if MS. Have u had EMG/NCV? Biopsy? ...Read more

18

18
I have multiple sclerosis & the symptoms of diabetes are so similar how do I know if i'm a diabetic? My dr. Refers everything to multiple sclerosis.

I have multiple sclerosis & the symptoms of diabetes are so similar how do I know if i'm a diabetic? My dr. Refers everything to multiple sclerosis.

Easy: The test for diabetes is simple - it is just a blood test. It is important not to attribute everything you experience to ms. However, it is possible your doctor has already done some additional testing and has ruled-out diabetes. Many patients are not aware of all the tests that are run when they go to the lab and have blood drawn. Just ask your doctor. ...Read more

See 1 more doctor answer
19

19
What's the most effective medication for secondary progressive multiple sclerosis? My dr has me on copaxone (glatiramer) for almost a year now and it's not helping

What's the most effective medication for secondary progressive multiple sclerosis? My dr has me on copaxone (glatiramer) for almost a year now and it's not helping

Multiple sclerosis: With the exception of Novantrone (mitoxantrone) and steroids there is no other approved therapy for secondary progressive ms. The new oral therapies and old injectable platform therapies are only effective in relapsing ms (slow down number of relapses over time) not effective in progressive ms. Physical therapy, ampyra, (dalfampridine) muscle relaxer and other medications could be used to improve symptoms of ms. ...Read more

See 1 more doctor answer
20

20
How does one get multiple sclerosis?

No one really knows: Ms is thought to be caused when the immune system attacks the neurons in the body, specifically the cells that make white matter. There are many theories of why the body does this but no agreement. ...Read more

See 1 more doctor answer
Dr. Bennett Machanic
1,447 doctors shared insights

Multiple Sclerosis (Definition)

A progressive disease that interferes with the functioning of the central nervous system and brain. Symptoms include numbness, impairment of speech and of muscular coordination, blurred ...Read more