Doctor insights on:
Pot Syndrome Mine
There is always a cause for POTS syndrome! Why can't they find mine? It's been two years and they can't find the answer and I am still sick! Help.
Difficult diagnosi: This is a very challenging not only in diagnosis but in finding the right treatment for you. Usual recommendations go from increased fluid, increased salt intake, and midodrine some times which is a vasopressor. WHo is they and are you going to the right doctor? Who has seen you? What tests were ordered? ...Read more
There is always a cause for POTS syndrome! Why can't they find mine? It's been two years and Mayo can't find the answer and I am still sick! Help.
Not always a cause..: We cannot always find the cause of things, and POTS is no exception. Those people at Mayo are awfully good at what they do, especially when it comes to this, and I expect they tried very hard to find the cause. Sometimes the missing ingredient is time. For young people, POTS sometimes goes away. This is mysterious too! ...Read moreSee 1 more doctor answer
I have mild pots syndrome hr ranges from 100-135 when standing. What is a safe hr for mine to get up to when working out, i'm a 21yr old female 130lbs?
85-100%: Maximal heart rate based on your age is 200-210. You should be able to hit that with really strenuous exercise. A good target would be 85% (170-175) for a sustained workout. Your atenolol may prevent you from reaching those targets or make it much harder to achieve them. You can't hurt yourself by exercising to your limit at your age since it isn't possible for you to outstrip the blood supply. ...Read more
Fad: It's the "in-diagnosis" to have now. It's a fad. It's overdiagnosed, IMO. There are many examples of fad diagnoses over the years (that doesn't mean some people don't actually have these) hypoglycemia, chronic fatigue syndrome, mitral valve prolapse, fibromyalgia. Low T (promoted by the drug companies). Now it's POTs. ...Read more
Neurology consult: Postural orthostatic tachycardia syndrome (pots) is livable. A neurologist can evaluate your condition, make suggestions such as elastic compression stockings and/or medications to manage symptoms, and refer to other specialists as appropriate. Do put your feet up above heart level for 10-20 minutes 3 or more times a day. Aerobic exercise promotes healthy blood return to the heart. Good luck! ...Read more
POTS syndrome: POTS syndrome is a difficult condition to treat. Treatments include increased fluid, compression stockings and medications like beta blockers, Florinef (fludrocortisone) etc. one recent study suggests melatonin may help. See: Cardiovasc Ther. 2014 Jun;32(3):105-12. doi: 10.1111/1755-5922.12067. ...Read moreSee 1 more doctor answer
I'm diagnosed with pots syndrome. I want to do a science experiment with this, what could i experiment with pots?
Not a good idea to: Experiment with yourself. See this site for more information on this syndrome. http://www.ninds.nih.gov/disorders/postural_tachycardia_syndrome/postural_tachycardia_syndrome.htm. ...Read more
Developed pots syndrome 8 months ago at the age of 24 is there a chance it will ever go away or no chance because I am not a teen
POTS syndrome: Unfortunately this is a condition about which we do not fully know yet. There are some meds which might help. You should be seen in a university center for any new developments in treatment. ...Read more
If you have pots syndrome is there and underlying cause of something else wrong needing to be investigated? I'm reading everywhere that there is
No: No one knows the cause of pots. It is over-diagnosed and a current fad. Assuming you truly have pots, it should be treated for symptom control only. ...Read more
Can you have both ist and pots syndrome together was diagnosed with ist but wanted pots ruled out first. Then was diagnosed with pots! not sure now?
Dysautonmia: Ist ;pots are both poorly understood conditions - that may indeed overlap . Pure ist - patients are continuously tachycardic - or a sig higher baseline pulse.With simple exertion the heart rate can soar, very challenging to treat - bblockers etc have only modest efficacy . Ablation is sometimes required. Pots is likely a disorder of vascular resistance - measures to increase fluid intake can help. ...Read more
30yr have 4 kids youngest is 6mths have suddenly developed POTS syndrome I'm struggling to get thru each day what can I do? Why do I have it suddenly?
Paragangliomas: Some of the paragangliomas are catecholamine producing extra adrenal tumors, which could cause or worsen pots syndrome. ...Read more
POTS: There are multiple meds tried. If you find a doc who is very experienced in pots you are more likely to get results. ...Read more
Rhr 60 while sitting , when standing it jumps to 80 bpm. Is this a sign of pots Syndrome ? Since it increased by 20
I have POTS syndrome& my baseline catecholamine levels are quite abnormally low & did't respond to the catecholamine injection. Normal with POTS?
Depends: The good news is most people with POTS due well over time. The frustrating part is that it is possibly more than one disorder with similar symptoms. The diagnosis is relatively straightforward & usually done with a tilt table test. What exactly you are referring to as a catecholamine injection could be a variety of things & are rarely done. Confirm diagnosis & see someone specializing in this! ...Read more
I understand it is contraindicated to use alcohol if you have pots syndrome, but i would really to know if i decide to enjoy some drinks will i die?
Not worth the risk: I would just not drink.Get a more detailed answer ›