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Doctor insights on: Pot Syndrome Mine

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There is always a cause for POTS syndrome! Why can't they find mine? It's been two years and they can't find the answer and I am still sick! Help.

There is always a cause for POTS syndrome! Why can't they find mine? It's been two years and they can't find the answer and I am still sick! Help.

Difficult diagnosi: This is a very challenging not only in diagnosis but in finding the right treatment for you. Usual recommendations go from increased fluid, increased salt intake, and midodrine some times which is a vasopressor. WHo is they and are you going to the right doctor? Who has seen you? What tests were ordered? ...Read more

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There is always a cause for POTS syndrome! Why can't they find mine? It's been two years and Mayo can't find the answer and I am still sick! Help.

Not always a cause..: We cannot always find the cause of things, and POTS is no exception. Those people at Mayo are awfully good at what they do, especially when it comes to this, and I expect they tried very hard to find the cause. Sometimes the missing ingredient is time. For young people, POTS sometimes goes away. This is mysterious too! ...Read more

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I have mild pots syndrome hr ranges from 100-135 when standing. What is a safe hr for mine to get up to when working out, i'm a 21yr old female 130lbs?

I have mild pots syndrome hr ranges from 100-135 when standing. What is a safe hr for mine to get up to when working out, i'm a 21yr old female 130lbs?

85-100%: Maximal heart rate based on your age is 200-210. You should be able to hit that with really strenuous exercise. A good target would be 85% (170-175) for a sustained workout. Your atenolol may prevent you from reaching those targets or make it much harder to achieve them. You can't hurt yourself by exercising to your limit at your age since it isn't possible for you to outstrip the blood supply. ...Read more

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Do a lot of people here have pot syndrome? How common is this?

Do a lot of people here have pot syndrome? How common is this?

Fad: It's the "in-diagnosis" to have now. It's a fad. It's overdiagnosed, IMO. There are many examples of fad diagnoses over the years (that doesn't mean some people don't actually have these) hypoglycemia, chronic fatigue syndrome, mitral valve prolapse, fibromyalgia. Low T (promoted by the drug companies). Now it's POTs. ...Read more

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I have pots. How can I live normally & continue with this syndrome?

I have pots. How can I live normally & continue with this syndrome?

Neurology consult: Postural orthostatic tachycardia syndrome (pots) is livable. A neurologist can evaluate your condition, make suggestions such as elastic compression stockings and/or medications to manage symptoms, and refer to other specialists as appropriate. Do put your feet up above heart level for 10-20 minutes 3 or more times a day. Aerobic exercise promotes healthy blood return to the heart. Good luck! ...Read more

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Any new study on POTS syndrome? We need help what can be done to heal? Horrible syndrome!

Any new study on POTS syndrome? We need help what can be done to heal? Horrible syndrome!

POTS syndrome: POTS syndrome is a difficult condition to treat. Treatments include increased fluid, compression stockings and medications like beta blockers, Florinef (fludrocortisone) etc. one recent study suggests melatonin may help. See: Cardiovasc Ther. 2014 Jun;32(3):105-12. doi: 10.1111/1755-5922.12067. ...Read more

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I'm diagnosed with pots syndrome. I want to do a science experiment with this, what could i experiment with pots?

Not a good idea to: Experiment with yourself. See this site for more information on this syndrome. http://www.ninds.nih.gov/disorders/postural_tachycardia_syndrome/postural_tachycardia_syndrome.htm. ...Read more

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Developed pots syndrome 8 months ago at the age of 24 is there a chance it will ever go away or no chance because I am not a teen ?

Developed pots syndrome 8 months ago at the age of 24 is there a chance it will ever go away or no chance because I am not a teen
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POTS syndrome: Unfortunately this is a condition about which we do not fully know yet. There are some meds which might help. You should be seen in a university center for any new developments in treatment. ...Read more

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If you have pots syndrome is there and underlying cause of something else wrong needing to be investigated? I'm reading everywhere that there is

No: No one knows the cause of pots. It is over-diagnosed and a current fad. Assuming you truly have pots, it should be treated for symptom control only. ...Read more

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Can you have both ist and pots syndrome together was diagnosed with ist but wanted pots ruled out first. Then was diagnosed with pots! not sure now?

Can you have both ist and pots syndrome together was diagnosed with ist but wanted pots ruled out first. Then was diagnosed with pots! not sure now?

Dysautonmia: Ist ;pots are both poorly understood conditions - that may indeed overlap . Pure ist - patients are continuously tachycardic - or a sig higher baseline pulse.With simple exertion the heart rate can soar, very challenging to treat - bblockers etc have only modest efficacy . Ablation is sometimes required. Pots is likely a disorder of vascular resistance - measures to increase fluid intake can help. ...Read more

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30yr have 4 kids youngest is 6mths have suddenly developed POTS syndrome I'm struggling to get thru each day what can I do? Why do I have it suddenly?

30yr have 4 kids youngest is 6mths have suddenly developed POTS syndrome I'm struggling to get thru each day what can I do? Why do I have it suddenly?

Second opinion: You may want to seek a second opinion both on the diagnosis and therapy being instituted. In general, while the syndrome is somewhat heterogeneous, most patients who are treated do relatively well. Good luck. ...Read more

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Is pots syndrome fatal?

Is pots syndrome fatal?

POTS: Syndrome is a group of symptoms pots, is postural orthostatic and tachycardia, is a dysfunction of blood pressure and heart rate , it is not fatal. ...Read more

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What is the relation of paraganglioma and pots syndrome?

What is the relation of paraganglioma and pots syndrome?

Paragangliomas: Some of the paragangliomas are catecholamine producing extra adrenal tumors, which could cause or worsen pots syndrome. ...Read more

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Is there any other medication besides addreall that works better for pots syndrome?

POTS: There are multiple meds tried. If you find a doc who is very experienced in pots you are more likely to get results. ...Read more

Dr. Ira Katz Dr. Katz
3 doctors agreed:
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I have POTS syndrome& my baseline catecholamine levels are quite abnormally low & did't respond to the catecholamine injection. Normal with POTS?

Dr. Ira Katz Dr. Katz
3 doctors agreed:
I have POTS syndrome& my baseline catecholamine levels are quite abnormally low & did't respond to the catecholamine injection. Normal with POTS?

Depends: The good news is most people with POTS due well over time. The frustrating part is that it is possibly more than one disorder with similar symptoms. The diagnosis is relatively straightforward & usually done with a tilt table test. What exactly you are referring to as a catecholamine injection could be a variety of things & are rarely done. Confirm diagnosis & see someone specializing in this! ...Read more