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Doctor insights on: Positive Support For Polands Syndrome

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What's the focus of support groups for edward's syndrome?

What's the focus of support groups for edward's syndrome?

Trisomy 18 Support: Edward's syndrome is the result of a chromosome abnormality, namely trisomy 18. Support groups include resources and emotional support. Visit the trisomy 18 foundation for assistance. ...Read more

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How can I find a tourette syndrome support group in los angeles?

How can I find a tourette syndrome support group in los angeles?

National Tourette gp: There are several ways to get information. There may be a local grpoup that can be found by the internet. The naational tourette syndrome society is located at 40-42 bell boulevard in new york. It is a central information source of information. Joining the tourette syndrome society will provide yoiu with information about treatement, research and informational meetings. ...Read more

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Received a positive screening from Harmony for Downs Syndrome. Freaking out. What is chance of false positive? 14wks 5days and AMA of 41. No history

Answer is online: I searched google for: "harmony down's syndrome screening false positive rate" and the first result is the frequently asked questions list at the company who make the harmony test: http://www.ariosadx.com/expecting-parents/faqs/ You can read more about the test's accuracy at that page. Best wishes. ...Read more

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What are ther any support groups in israel for fragile x syndrome?

What are ther any support groups in israel for fragile x syndrome?

קבוצת תמיכה : Check for contacts in Israel on these pages: http://www.fragilexawareness.com/international-fragilex-websites *AND* http://www.fragilex.org/community/international-family-support-network-clinics ...Read more

Dr. Sue Hall Dr. Hall
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What kind of support is there for families whose infants have down syndrome?

Dr. Sue Hall Dr. Hall
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What kind of support is there for families whose infants have down syndrome?

Many support groups: Internet resources for parents of children with down syndrome include the national association for down syndrome, at www.Nads.Org, a social networking site for parents of down syndrome children at www.Downsyndrome.Com, and sids network, a world of information and support, found at http://sids-network.Org. These groups have local chapters also. March of dimes is another place to seek support. ...Read more

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What are the long-term health effects for a child with patau syndrome?

What are the long-term health effects for a child with patau syndrome?

Confusing question: This syndrome results when an egg with a pair of chromosome 13 (instead of 1) joins with the male's 13 at conception leading to a trisomy 13.This distorts the information in each cell of the body so many complex organs do not form properly (heart,brain defects,etc.).It cannot be fixed.These kids do not live very long. ...Read more

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Are support group hepful for people with painful bladder syndrome?

Are support group hepful  for people with painful bladder syndrome?

YES: Try search for interstitial cystitis (ic) support group in your local area. I strongly recommend it. There many different way to deal with the symptoms. You may get one from the others just working for yourself. ...Read more

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Can you tell me of a website for online support for families w/ children that has a congenital heart defect?

Can you tell me of a website for online support for families w/ children that has a congenital heart defect?

A few: https://www.littlehearts.org http://www.Tchin.Org http://mendedlittlehearts.Org/mlh.Htm there are several others, too. ...Read more

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What's the prognosis for people with munchausen syndrome?

What's the prognosis for people with munchausen syndrome?

Very poor: Munchausen syndrome is a chronic condition that can be very difficult to treat. Most people with munchausen syndrome deny they are faking symptoms and will not seek or follow treatment. Even with treatment, it is more realistic to work toward managing the disorder rather than to try curing it. ...Read more

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Is a plasma exchange the best treatment for neuromytonia (isaacs syndrome)?

Is a plasma exchange the best treatment for neuromytonia (isaacs syndrome)?

Not usually: The inherited forms do not typically respond to plasma exchange. If you are the only person in the family who has the disorder, you may benefit from plasma exchange. Symptoms usually come back not long after the intervention. ...Read more

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What is the long-term outlook for those with guillain-barre syndrome?

What is the long-term outlook for those with guillain-barre syndrome?

Very Good: Around 80% of people who contract guillain-barre will go on to make a full-recovery and live a normal life. About 10% will have some sort of long-term disability, such as motor or sensory nerve damage or recurrent episodes. Those with recurrent episodes are classified as having chronic inflammatory demyelinating polyneuropathy (cipd). ...Read more

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Who is at risk for paraneoplastic syndromes?

Who is at risk for paraneoplastic syndromes?

Cancer patients: Paraneoplastic syndromes are a heterogeneous group of disorders caused by mechanisms other than metastases, metabolic and nutritional deficits, infections, coagulopathy or side effects of cancer treatment. They may occur before the obvious signs of a malignancy become apparent. ...Read more

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Where can I find a support group for schizoaffective disorder?

Where can I find a support group for schizoaffective disorder?

NAMI: The National Alliance for the Mentally Ill is a nationwide organization that does outstanding outreach for persons with bipolar disorder and schizophrenia. You can do an online search of a local chapter and contact them. ...Read more

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What is the life expectancy for kids who have treachers collins syndrome?

What is the life expectancy for kids who have treachers collins syndrome?

Normal: If the craniofacial abnormalities are addressed then the life expectancy can be otherwise normal. ...Read more

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Is there a support group for children of drug-addicted parents?

Is there a support group for children of drug-addicted parents?

Yes: If either parent uses alcohol, the most well developed support group for this purpose is al-anon. If the addiction is to drugs, and no alcohol is involved, the less well developed support group nar-anon would be the best choice. If nar-anon is not available, codependents anonymous would also be useful. ...Read more