Doctor insights on:
Polycythemia Vs Polycythemia Vera
Sometimes.: Most patients with polycythemia vera develop the condition in adulthood, most commonly from an acquired mutation in the jak2 gene, and are not born with it. However, there are families who pass on the tendency to have a high red blood cell count through a variety of genetic mutations. It is usually well known in the family when that is the case.
Your Doctor is guide: P. Vera is a rare condition. It is not difficult to diagnose provided you have consulted a specialist...A hematologist is the right specialist to help you with this issue. It typically manifests with high hemoglobin (>17 grams) and often has high white blood cell count as well as high platelets associated with high hemoglobin levels.
Polycythemia vera: Phlebotomy (blood removal) will be needed to maintain your blood at certain level to prevent stroke or blood clot. In addition, Aspirin is recommended if there is no risk of bleeding or other contraindication. For patients with high risk to develop stroke/clot (age>60 or prior history of clot)- medication called-hydroxy-urea- is also recommended. Discuss with your hematologist.See 1 more doctor answer
Maybe blood draw: Depends on how high the blood count and whether or not symptoms are present. Also, if pcv is caused by something (secondary polycythemia), that cause needs to be addressed. Smoking, sleep apnea, hemochromatosis are common causes of secondary pcv. If primary and symptoms exist the main treatment is phlebotomy - drawing blood off regularly to decrease the hemoglobin.See 2 more doctor answers
Polycythemia vera: Foods will not affect it.Get a more detailed answer ›
There are those: Who would encourage you to go forth with a strict organic raw food diet, like something along the lines of the Gerson diet (which also includes coffee enemas!) But I don't think there is any strong data to suggests a "curative" diet. But I will help to eat as healthy as you can, it may help limit further stress on your body.
PCRV is a: Myeloproliferative disease associated with too many red blood cells. Polycythemia -- too many cells -- ruba -- red -- vera -- true.
Depends on cause: The treatment really depends on the underlying cause. Unless that is known I can't help. Medications are available to treat this.
Same as in Gout: About 10-15% of polycythemia vera patients develop gout, a painful inflammation of certain joints (esp. The big toe) caused by precipitation of high uric acid content in the blood. Polycythemics already have a higher level of uric acid (about 50% have hyperuricemia) in their blood due to rapid turnover of red cells. It would be prudent to avoid foods that could precipitate a gouty attack.
No: Generally speaking, pvera dose not imapct a persons long term survival, ie when comparing a group of patients with pv to a group without, survial rates are the same. However, pv and other myeloproliferative disorders are uncommon in your age group and I would be skeptical of the diagnosis.
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