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Doctor insights on: Plexiform Neurofibroma

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What is plexiform neurofibroma?

What is plexiform neurofibroma?

Large neurofibroma: Plexiform neurofibromas are large extensive tumors that grow from nerves anywhere in the body. Unlike cutaneous neurofibromas, plexiform neurofibromas are often found in young children, sometimes even present around the time of birth. Rarely they can become malignant.Plexiform neurofibromas may be located around the eye socket, face, arm, leg, back, chest, or abdomen. ...Read more

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Is there any medicine for neurofibroma? What are its management techniques?

Is there any medicine for neurofibroma? What are its management techniques?

No: If you are asking if there is a specific medication that will make a neurofibroma go away-there is not. There are some medications that may help with the symptoms of a neurofibroma. Neurofibromas are intertwined with the normal nerve fibers. This can lead to severe pain which may be treated with medications like neurontin (gabapentin). These may be addressed surgically if large and compressing vital structures. ...Read more

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How can a neurofibroma patient be treated?

How can a neurofibroma patient be treated?

Close followup: Neurofibromatosis is a genetic disorder. Mild forms have cafe au lait patches, freckling, soft skin tumors. Severe forms have epilepsy, retardation, and brain tumors. Careful evaluation and follow up is necessary. ...Read more

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Can you tell me about neurofibroma nf1 too much in my body?

Can you tell me about neurofibroma nf1 too much in my body?

Varies: Several signs of nf1, the main one six or more flat brown spots over 5 mm in greatest diameter in children and over 15 mm in greatest diameter in post-pubertal individuals, two or more soft nodules or neurofibromas or 1 plexiform neurofibroma,freckling in the axillary or groin regions, tumors of optic nerve, gliomas, bony abnormality such as scoliosis, bone overgrowth or congenital fracture. ...Read more

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I have a neurofibroma. What do I do if I have too much NF1 in my body?

I have a neurofibroma. What do I do if I have too much NF1 in my body?

Confusing question: You have the genes for NF1 in every cell of your body, as does every other person with the problem. Neurofibroma incidence and location varies tremendously within the affected patients. During your life you just have regular exams to monitor their location and effects on your system and treat them as needed.When necessary, they may need to be removed.I know of no way to stop their formation. ...Read more

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Neurofibroma nf1 too much in my body. What effects will this have on me?

Unpredictable : At 38 if you have only skin manifestations only , nf i is inherited due to gene !7 mutation , some will develop other neurological manifestations like epilepsy , learning disabilities , skeletal deformities like scoliosis , you must see your doctor ...Read more

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What is neurofibromas?

What is neurofibromas?

Inherited disorder: Most cases of neurofibromatosis are inherited. It is characterized by skin manifestions of a light coffee color. Tumors occur on the nerve sheaths which may protrude under the skins and at the nail beds. In some caes tumors of the brain may occur. In rare cases the fibrous tumors can be disfiguring as is depicted in "the elephant man". There are peripheral and central nervous system forms. ...Read more

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How common are single neurofibromas of the skin?

How common are single neurofibromas of  the skin?

Uncommon ?: Neurofibromatosis is the most common of the neurocutaneous disorders. There are two types. Both are uncommon. Having a single neurofibroma is also uncommon. What has your neurologist concluded ? Do you have cafe au lait spots, axillary freckling, sub ungual fibromas? ...Read more