Doctor insights on:
Yes: There are several polycystic kidney diseases (pkd), and they are generally divided into autosomal dominant and recessive types. These are the patterns of inheritance. In general all are hereditary although spontaneous gene changes are common. The children of parents with gene changes are susceptible to inheriting these diseases. ...Read more
Check: Check your durable medical equipment company or local pharmacy. They may have a wide range of padding and confortable equipment to suit your needs. Good luck ...Read more
Damage using "this": Please tell me what "this" is for a meaningful answer to your question. ...Read more
I just found out that my great grandfather and other members of the family have died from pkd, my dad has never been tested am I at risk?
Yes you are.: If father has pkd, 50% chance that he passed it on to you;if not, very unlikely you have it. Uncertain that you have to get tested, as little effective treatment for it and diagnosis= exclude insurance and some jobs. Reasonable to check BP and kidney fxn annually. If abnl, then ultrasound kidneys. Bpcontrol, cv risk reduction, monitor kidneys for failure=best outcomes. ...Read more
Varies: Any kidney disease increases your risk of high blood pressure complications in pregnancy. This is especially true if you have increased urine protein or serum creatinine at the start of pregnancy. Polycystic kidney disease is also autosomal dominant. That means if you have it, your child has a 50% chance of having it as well. Most women with early stage disease tolerate pregnancy well. ...Read more
Least OTC as possibl: Over the counter medicines like non-steroidals e.g. Ibuprofen and Naproxen need to be used cautiously and after meals. Also, tylenol (acetaminophen) a few times daily on bad days could be used. However, if pain is worse or continuous you need to see your nephrologist since some of the large cysts could be aspirated yielding pain relief at least temporarily. The procedure is simple. ...Read more
Not short.: Polycystic kidney disease in most cases is a mild slowly progressive disease. Many patients do not even know they have it and they live and die without knowing they have it. The clue to answer the question could be taken from a person in the same family who has the disease. Of course, patients with PKD may develop end-stage and need dialysis after several years. They are eligible for transplant. ...Read more
Inherited disease.: Polycystic kidney disease is an inherited disorder of the kidneys, where numerous numbers of cysts form throughout both, making them appear large & irregular. It is estimated to affect 1 in every 1000. Many cases are clinically silent, & the diagnosis is usually made with ultrasound though definitive diagnosis is made with genetic testing. Long term, hypertension & kidney failure are consequences. ...Read more
Pkd and ionizing rad: Data are not clear on this. For sure, select mutations on either chromosome 16 or chromosome 4 lead to PKD expression. Scientists have long thought that a single mutation that affects polycystin expression leads to cyst formations. Newer data show that second or third or fourth mutations on these chromosomes affect expression of pkd. So, it is conceivable that yes ionizing rad could affect pkd ...Read more
Sometimes a single large cyst can cause pain. In that case, putting a needle into the cyst and draining it will relieve the pain. This is a procedure that would typically take just a few minutes and be done using ct or ultrasound guidance with only conscious sedation (it's not a very painful procedure).
I would suggest that you visit the doctor finder page at the society of interventional radiology web site (sirweb. Org) to find a doctor in your area who can help you with this. ...Read more
Kidney cysts: I assume you have adult polycystic kidney disease which is dominant inheritance from one of the parents. You probably have had this developing for years as it can start in child hood. Severity varies from mild to severe. Some people get pain from hemorrhage into cysts. With advancing disease hypertension can develop. Brain aneurysms are associated and should consult your physician about brain mri. ...Read more
Hi I have PKD is it okay for me to try green coffee bean extract I don t want my cysts to grow. What to do?
I have early stage pkd. My back hurts everyday but somedays it hurts worse than others. Any idea of why this happens?
Polycystic Kidney: Pain in the area of the kidneys can be caused by cyst infection, bleeding into cysts, kidney stone, or stretching of the fibrous tissue around the kidney with cyst growth. ...Read more
On percs. 5s 2yrs. For PKD & back pain. Works good but new dr. Is taking me off it all. Have legit pain & need it! How do I convince dr. I need it?!
Your doc is right: It's not a question of legitimate pain or not. It's a question of best way to deal with it. Most current medical guidelines indicate that narcotics are best for acute, short-term pain and for terminal diseases. Long term use for non-life-threatening conditions usually has more risk than benefit. There are many non-narcotic approaches to dealing with chronic pain. Ask your doctor about these. ...Read more
I was just diagnosed with PKD and pld. What is best diet to follow to prevent pain and possibly help cure problem? (alt med) on top of conventional?
PKD PLD Diet: Pain relates to cyst expansion and hemorrhage. Data show that a mostly veg and fruit diet mutes PKD in animal models of PKD. Reduce all meats to 2-3 oz per day at most. Maximize fruit and veggie and whole grains. Eliminate saturated fats. Add omega 3. Soy can help. Drink 4-5 liters fluid per day - will suppress vasopressin. Avoid trauma. Tolvaptan Rx has promise. Statins / ACEI show benefit to PKD ...Read more
I have PKD. The new diet I started had me eat more protein than normal. My CR went from 1.1 to 1.6 and BUN 19 to 42. Could this be why it jumped?
Ask nephrologist!: If you know that you have polycystic kidney disease, I imagine you already are in consultation with a nephrologist (kidney specialist). If you don't have one yet, find one. It is important to protect your kidney function - and important to know about strategies to employ if/when kidney function declines. In the meantime, use exercise to build muscles the natural way. Good luck. Lgromko md. ...Read more
PKD: If you have polycystic kidney disease (pkd), you will probably have some renal failure. Your functions (kidney?) dropping very low may indicate that you have advanced or end stage renal disease due to your pkd. There is nothing you did to cause your kidney disease. See a nephrologist for an evaluation and a treatment plan. Good luck. ...Read more
My fiancee has PKD and is at 20% gfr. How will we know when it's time to go to the hospital and start dialysis, etc.?
Regular visits: You need to regularly see your family doctor or nephrologist, either of whom can order bloodwork to follow his serum creatinine. If it is over 4.0, most nephrologists will want to start dialysis. Presuming that he is not at that level, now is the time for him to see a surgeon to have an arterio-venous fistula placed to make hemodialysis easier to perform. ...Read more
What hypertension medication work best that has lowest side effects for hard to treat hypertension for a person with PKD?
Lisinopril (ACE inh): Angiotensin converting enzyme (ACE) inhibitors are generally effective and well tolerated and for patients with PKD may help to preserve kidney function better than other BP medications. They are contraindicated however, in early pregnancy due to risk of birth defects. Other meds are acceptable options. Often control of BP without significant side effects is trial and error process. F/u with MD. ...Read more
When I was told I had pkd, I was also told my kidneys couldn't handle animal product & to take it out of my diet. Is this the same as being vegan?
No: If you have PKD you may progress to having kidney failure as you grow older. When kidneys loose filtration power any increase in nitrogen waste can cause accumulation of so called toxins in the blood that can make you sick so we recommend reduction in proteint intake. You don't need to become a vegetarian just reduce portions of animal derived foods. ...Read more
My mom and I both have pkd, but my daughters blood test came back negative, is she out of the woods, Or still susceptible?
PKD is dominant:
PKD is dominantly inherited which means that there is a 50: 50 chance of the children being free from it or being affected If the test is negative that is good news ; however sometimes the cysts may only develop later in life as an adult. Not everyone has symptoms as an adult.
There is a recessive form also which may occur in children. How old is your daughter.?
did she have a genetic test ...Read more
What can treat pain from PKD Cyst. My kidneys are covered with cyst' too numerous to count. Kidney function is normal, tyenol doesn't work?
Anti-inflammatory OK: As long as kidney function is normal, and you are not taking an ACE inhibitor and diuretic, then anti-inflammatory pain meds like ibuprofen are OK for a few days at a time. They shouldn't be used constantly, and as always, kidney function needs to be monitored. Please avoid narcotics, which are best used for acute conditions that expected to resolve (like surgery), or end of life pain. ...Read more
Yes: I would consider meeting with a genetic counselor to see what your options are. There are two types of pkd, one that is dominant and one that is recessive. If you have the dominant version then your baby has a 50% chance of being affected. They can do an amniocentesis to see if the fetus is affected. If you have the recessive type and your partner is negative then your baby will not have pkd. ...Read more
Take the kid to ER!: Stones are a known complication of pkd. If your child is vomiting and has low temperature, I would highly recommend taking him/her to the er for eval. It could be a stone; and it could be a superimposed infection as well. Obstruction+infection is a medical emergency! I am pretty sure that IV fluids +/- antibiotics might be warranted in this situation! ...Read more