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Doctor insights on: Phenylketonuria Support Groups

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What are some mitochondrial disorder support groups in existence?

What are some mitochondrial disorder support groups in existence?

Look online: Since mitochondrial disorders are still considered rare disease entities, support groups at a local level would be very dificult to find. I suggest you go online to some of the big centers in the us who deal with the diagnosis and treatment of these disorders (ie. Children's hospital of philidelphia, cleveland clinic) and see if they have online support groups and parental geoups. ...Read more

Dr. Jeffrey Roth
312 doctors shared insights

Support Groups (Definition)

For information, resources, and support on specific diseases and conditions, see the links below. Additional local and national support groups can be found on the web, through local libraries, your health care provider, and the yellow pages ...Read more


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Know of enucleation online support groups?

Know of enucleation online support groups?

Ocularist: An artificial eye maker is termed ocularist. They would have contact with enucleation support groups so ask you eye maker about this. ...Read more

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What are some reputable support groups for incest survivors?

Two 12 Step groups: You might want to consider attending a meeting of survivors of incest anonymous (sia) and/or incest survivors anonymous (isa) the most important difference is that anyone who has been a perpetrator is asked not to attend isa even if the perpetrator was also a victim of incest. ...Read more

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Are there online support groups for juvenile retinoschisis or enucleation?

Www.losteye.com: www.losteye.com is a valuable online support resource. There are many other groups which can be found my searching "enucleation support group" on a google search. ...Read more

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Are there support groups for pick's disease?

See below: These websites below might serve as a starting point. Good luck! http://www.Ftdsg.Org/index.Htm__ http://www.Theaftd.Org/. ...Read more

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Any support groups for pertussis?

Why?: You don't usually need a support group for an acute infection that you recover from. Support groups are for people with chronic infections. And if everyone got vaccinated, there would be no pertussis. ...Read more

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Dr. Vasu Brown Dr. Brown
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Are there support groups for drug addiction?

Dr. Vasu Brown Dr. Brown
10 doctors agreed:
Are there support groups for drug addiction?

Yes: You can go to the nearest 12 step program and pick a sponsor who had similar issues as yours. ...Read more

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Are there support groups for people with pancreatic cancer?

Are there support groups for people with pancreatic cancer?

PANCAN: The best group out there is the pancreatic cancer action network, aka pancan. Their liason program connects people with experience with pancreatic cancer with those seeking more information. www.pancan.org. ...Read more

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Are there rsd-reflex sympathetic dystrophy support groups?

Careful w groups: See my other answers on rsd, support groups can be a good way to talk to others who have the same disease as you, be careful of bias and opinions. Some groups have a group think mentality that can lock you in to a mind set and lead you away from some therapies that may completely reverse most of you pain. ...Read more

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Are there support groups for blind vets?

Are there support groups for blind vets?

Yes: Check with your va and with the organization 'disabled american veterans' for help and support. Your local organizations for the blind and poorly sighted can also help. ...Read more

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What are some less religious family support groups for loved ones with drug addiction?

12 steps: I love 12 step programs - the neutral one is positive anonymous 12 step program - any 12 step program would work. ...Read more

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Are there any online support groups for those diagnosed with retinitis pigmentosa?

Are there any online support groups for those diagnosed with retinitis pigmentosa?

Check this web site: Ther are many on this web.http://www.blindness.org/index.php?searchword=support+group&ordering=&searchphrase=all&advanced=0&option=com_search.

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Are there support groups for people with tinnitus?

Are there support groups for people with tinnitus?

Yes, Brookline is : close to many. See the American Tinnitus Association, www.ata.org/support. Clinics include Beth Israel Deaconess Medical Center, www.bidmc.org/YourHealth/Conditions-AZ.aspx?ChunkID=11504, Mass. Eye & Ear, www.masseyeandear.org/for-patients/patient-guide/patient-education/diseases-and-conditions/tinnitus/ & Mario Hearing Clinics, www.mariohearingclinics.com/tinnitus-retraining-therapy. ...Read more

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Will a pastor provide support for family members of those in icu?

Will a pastor provide support for family members of those in icu?

Usually: I believe a pastor, minister, priest, or rabbi has some duty to comfort those with a loved one in the icu. I do not believe they should be waiting in the icu, but some contact should be made. Make sure they know your loved one is in an ic unit! ...Read more

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Does anyone know of hirschsprung disease support groups or sites?

Does anyone know of hirschsprung disease support groups or sites?

Yes: There are several. You can google hirschsprung's disease and you will be surprised. ...Read more

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Dr. Darrin Cunningham
73 doctors shared insights

Pku (Definition)

It is a congenital deficiency of an enzyme which digests a protein in milk causing a build-up of a substance that causes brain damage in infants. This disorder is tested for in all newborns and a special formula ...Read more