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Doctor insights on: Permanent Phlebotomy For Hemochromatosis

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My friend has hemochromatosis. He has never had therapeutic phlebotomy. What should he do?

My friend has hemochromatosis. He has never had therapeutic phlebotomy. What should he do?

Depends: Hi. Hemochromatosis can be a hereditary disease from mutations in the HFE gene, or it can be from transfusion dependency (e.g., for various alpha and beta- thalassemias). You can only treat the hereditary hemochromatosis with phlebotomy...you can't phlebotomize transfusion-dependant patients! Clarify what your friend has, and if he is in fact iron-overloaded. Phlebotomy is easy and very effective ...Read more

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Dr. (Liz)Phuong Tran
316 doctors shared insights

Hemochromatosis (Definition)

Hemochromatosis is a medical condition caused by iron accumulation in the body. It can be the result of underlying hereditary disease or be due ...Read more


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I have hemochromatosis and had my first phlebotomy yesterday. I was to get 300cc out. My blood was so thick it took 1.5hrs to get 200. Why is my blood like that and the risks?

Iron overload: This disease, if advanced, causes increased red blood cells, increased iron, and "thick blood". You may not be well hydrated. Are you on an aspirin? You need to see a hematologist or a GI doctor who deals with this illness & have a good treatment area with experienced phlebotomists . Drink lots of water the day of and be patient. You may have to go every 1-2 weeks for a while & follow closely. ...Read more

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Is it true that phlebotomy is the recommended or effective treatment for hemochromatosis?

In some cases.: Phlebotomy is the first-line treatment for primary hemochromatosis, a genetic defect that makes a person absorb too much iron(hereditary hemochromatosis). It can prolong life expectancy, prevent complications, and relieve some but not all symptoms. Secondary hemochromatosis, which results from repeated blood transfusions, some anemias, or excessive iron therapy, is usually treated w/ iron chelators. ...Read more

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I have been doing phlebotomy for hemochromatosis. i got my ferritin down to 50 then it went back up to 300! why?! do not drink low iron diet

I have been doing phlebotomy for hemochromatosis. i got my ferritin down to 50 then it went back up to 300! why?! do not drink low iron diet

Iron accumulates: In Hemochromatosis, your body absorbs too much iron. Even if your diet is low iron, as it should be, you can still over time accumulate iron in your tissues again since the underlying problem with iron metabolism is ever present. Ferritin is also a marker of inflammation, and often rises during infection etc. If you have had any such issues lately, it could be a result of that as well. ...Read more

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I have genetic hemochromatosis my ferritin level before last phlebotomy was 318 hemoglobin 187 my wbc 11 and my platelet count 454. I'm so confused!

I have genetic hemochromatosis my ferritin level before last phlebotomy was 318 hemoglobin 187 my wbc 11 and my platelet count 454. I'm so confused!

Talk about it: The key is that you're getting treated. Your physician will try to keep your ferritin fairly low. That platelet count is fine. The white count has little to do with your hemochromatosis status. I'm really glad this got picked up. If it's missed, it's slow, miserable and deadly. Of all the very-very-serious diseases, it's the easiest to manage. Best wishes. ...Read more

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I have hemachromatosis and get phlebotomies. What is this highest level my ferritin should be before getting a phlebotomy?

Dont wait : You should have your phlebotomies regularly to keep the iron stores low . If you wait until the ferritin level is increase your there some risk you are still overloading tissue. ...Read more

Dr. (Liz)Phuong Tran
159 doctors shared insights

Phlebotomy (Definition)

There is also terapeutic phlebotomy. When someone has too much iron, taking blood will help to bring ...Read more