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Doctor insights on:
People Takayasu Arteritis
1
Could people with takayasu arteritis fly in airplanes?

Yes: They should be no problems with air travel. ...Read more
Arteritis (Definition)
Arteritis is inflammation of the blood vessels or arteries. This may be triggered by viruses, medications, or by your own immune system leading to what is called an autoimmune disease. There are several different forms that mainly depends on the size of the blood vessel that is involved. There are several treatment options. This is an area of specialty handled by a rheumatologist. I am happy to do ...Read more
3
Can people with takayasu arteritis fly in airplanes at high altitudes?

Yes: There is no evidence the disease would worsen by flying in airplanes. ...Read more
4
What is takayasu arteritis?
Vasculitis:
Takayasu arteritis is a inflammatory condition of the large arterial vessels emerging from your heart (the aorta and branching vessels). It is unknown what the etiology is, although it is pretty clear the immune system drives this process (especially il-6).
Main initial symptoms are vague (fatigue, low-grade fever) but as it progresses, the lightheadedness and a cold arm from reduced blood flow.
...Read more
5
What causes takayasu arteritis?
Unknown: The cause of it is idiopathic or really unknown cause. ...Read more
6
Takayasu arteritis--causes and cures?

Steroids or surgery: Prednisone/ steroids are the main way of treatment. Some patients will require open bypass surgery in case of steroid resistance. Causes are idiopathic or unknown. It is an autoimmune disease affecting the wall of large blood vessels causing narrowing by fibrosis. ...Read more
7
Do you know about takayasu arteritis?

Yes: This a form of vasculitis generally sen in younger individuals in their 20s or 30 s with varied symptoms. It generally involves the largest blood vessels especially the aorta and can cause significant problems of lack of blood flow to brain and other major organs. Also notables are symptoms of fatigue and possible fever. Need immediate attention and treatment often with high dose steroid drugs or ...Read more
8
Does anybody treat takayasu arteritis?

Steroids or surgery: Prednisone/ steroids are the main way of treatment. Some patients will require open bypass surgery in case of steroid resistance. ...Read more
9
Does anybody know about takayasu arteritis?

Form of vasculits: Takayasu arteritis is an autoimmune disease that "attacks" the larger arteries leading to inflammation and blockage of blood flow. It affects typically females age 20's-30's and has some ethnic distribution in people of middle eastern and Asian descent. Symptoms are varied but the blockage of blood flow leads to possible internal organ damage or limb injury. ...Read more
10
If I get takayasu arteritis, what are the symptoms?
It depends: It depends on the vessels involved and the severity of the involvement. The most common symptoms are those that related to reduced blood flow to the brain or arms. ...Read more
11
How the disease takayasu arteritis will be treated?
Corticosteroids: At present corticosteroids are the mainstay but other medications include cytotoxic drugs and those used for connective tissue diseases. The activity is assessed by lab and imaging. Your physician will assess your activity and help decide your best approach. ...Read more
12
What is the definition or description of: takayasu arteritis?
Vasculitis: It is an inflammation of large blood vessels (e.g., aorta) which can cause aneurysms. ...Read more
13
What are the chances of having a normal healthy life with takayasu arteritis?
Depends85%: RTakayasu`s arteritis is a granulomatous giant cell arteritis that involves the aortic arch and can affect the arteries to the carotid, pulmonary, subclavian and even coronary arteries. The major treatment is prednisone, starting with high doses, mycophenolate, and tocilzumab. Bypass grafting, stents have been done. Many are young Asian women and with treatment many can live a normal life. ...Read more
14
Is takayasu arteritis deadly?

Unusual: Really unusual. This will depend on the artery that is involved with the disease, for example if renal arteries are involved the patient can developed severe high blood pressure and possible renal failure which can lead to death ...Read more
15
Is takayasu arteritis really deadly?
It can be: This large vessel vasculitis can have very severe complications, even fatal ones if it is not aggressively treated. ...Read more
16
How will the disease takayasu arteritis be treated and prevented?
Steroids, surgery: Treatment typically with immune suppressants like steroids. In resistant cases surgical bypass is offered. No known way to prevent it. ...Read more
17
My sister had takayasu arteritis known before 5months ago. Giving treatment now. But doctors are said there is no longer life. Plz tell another solutio?

I don't understand: What you mean by "there is no longer life" Please restate the question so that we can come up with a helpful answer ...Read more
18
Takayasu arteritis what r the test to no if I have this I'm getting thick tough temporal artery with pain around my ear?

Wrong vasculitis: Tenderness around the temporal artery is quite suggestive of temporal arteritis, a type of vasculitis that most surgeons call giant cell arteritis. If you truly are concerned i'd suggest seeing your pcp right away as untreated temporal arteritis can lead to blindness. Takayasu's ateritis affects the medium sized vessels of the body such as carotid and subclavian arteries. Temp artery is too small. ...Read more
19
Takayasu arteritis? Can I have this I'm 21 no health problems just that I get this temple artery that gets thick & tough with pain around my ear
No: Anything is possible but your description does not suggest this diagnosis. In addition, giant cell arteritis is incredibly rare in a 21 year old. ...Read more
20
Could takayasu's arteritis be cured?
Once: Circulation to arm is corrected, some medications may help control vasculitis. ...Read more
21
How dangerous is marijuanna use with takayasu's arteritis?

No danger I know of: For takayasu's arteritis, but plenty of dangers I can think of in being 18 years old, with a brain and mind that is still developing, that will be affected by marijuana in terms of potential to decrease ability to learn, increase social anxiety and cause problems. I think social use of marijuana in adults has few problems in most, just as the use of alcohol has few problems in most. Not in teens. ...Read more
22
What is the prognosis for someone with takayasu's arteritis?
Generally good.: The prognosis is generally good if the disease is effectively controlled with appropriate medications. As with all systemic vasculitic diseases, an individual with takayasu's must be closely monitored by a rheumatologist and must learn when to become concerned. ...Read more
23
Is it possible to be pregnant with takayasu's arteritis?
Yes: It is possible. If you are pregnant and have takayasu arteritis, you should probably seek out the services of an obstetrician that deals with high-risk pregnancies. ...Read more
24
What do you suggest if my wife has a rare disease called takayasu's arteritis. Commonly known as pulseless disease?
See details: She should be under the care of a rheumatologist and this disease should be aggressively treated to prevent serious vascular complications. ...Read more
25
My wife has a rare disease called takayasu's arteritis. Commonly known as pulseless disease. What do I need to know about this disease?
Takayusu:
Read this:
www. Mayoclinic. Org/diseases-conditions/takayasus-arteritis/.../con-2002808...
Takayasu's arteritis (tah-kah-YAH-sooz ahr-tuh-RIE-tis) is a rare type of vasculitis, a group of disorders that cause blood vessel inflammation. In Takayasu's. ..
Symptoms - Causes - Complications - Risk factors
...Read more
26
I have the symptoms of Takayasu's Arteritis but an ultrasound of my carotid was normal. I've been sick for 2 years without a dx. Any idea what it is?
No: You list no specific symptoms so you question is impossible to answer. Just saying you have symptoms of Takayasus is not enough. ...Read more
27
Is advisable a woman with takayasu's arteritis takes birth control pills with Drospirenone and ethinyl estradiol?

Probably not: Hormonal birth control pills have been associated with venous thrombosis. No data with Takayasu but may be advisable to use copper IUD Ask your OB-GYN. It seems using meds associated with venous thrombosis is not a good idea in patients with arterial disorders. ...Read more
28
Wat diet should be taken by a patient suffering with takayasu artheritis?

Careful w/ intake: In general it's important to keep your water intake high, 64 oz's per day. Avoid drinks with alot of salt and potassium, like diet drinks. Watch your intake of highly processed foods and simple sugars. Watch how much table salt you eat also. In some cases kidneys r inv. So keep protein below 200g/day. ...Read more
29
Is takayasu's arthritis curable?

No: Takayasu's arteritis (it's not an arthritis) is a vasculitis, which is inflammation of the vessels. Etiology remains unclear, but the immune system is thought to contribute the most to disease. Immunosuppressive meds help control symptoms, but this disease tends to flare. The more severe and frequently the pt flares, the more worried I get about prognosis and may identify pts who need surgery. ...Read more
30
What is the best treatment for "takayasu arthrities"?

See details: The basic therapy is prednisone, often in combination with methotrexate. For more resistant cases certain biologic agents may be very helpful. ...Read more
31
Hi, can woman with Takayasu take birth control pill?

Safer options: Since Takayasu arteritis causes inflammation, thickening, narrowing, and scarring of blood vessels and can decrease blood flow to major organs, estrogen's increase in clotting factors and blood clots make it inadvisible. There are progestin only pills and other methods of contraception that are safer. Your options with your doctor. Best wishes. Hope this helps. ...Read more
32
I have Takayasu Vasculitis, a month ago was diagnosed with POTS and today got biopsy results positive small fiber polyneurophy/ axonophthy prognosis?

It depends: There are obviously a myriad of diagnoses being provided here, and trying to come up with a single etiology might take additional investigations of linking a large vessel vasculitis with a small fiber neuropathy as well as POTS. You need to see your physician who can look to tie together these issues in order to provide information regarding prognosis. ...Read more
34
Diagnosed with carotidynia after extreme pain and high crp. What steps do I need to take to see if this is takayasu? Fatigue, even after steroids

Carotidynia: Carotidynia is neck, face, ear and head continuous, dull and throbbing pain over the area of the carotid bifurcation and may extend to the mandible, eye, ear and cheek on the same side. It occurs from dilatation of extracranial arteries on that side. It may be due to a virus, but careful progressive elimination of other conditions must be done. Takayasu arteritis is diagnosed by biopsy. ...Read more
35
What may be a cause of shrinking my penis? I used Medrol (methylprednisolone) of 4 mg past 2 years and drugs for blood pressure? I suffer from takayasu syndrom.

Not possible: I hate to disagree but your penis is not shrinking. ...Read more
36
Is it possible to remove arteritis?
Treat inflammation.: Arteritis refers to inflammation of arteries. This is not something that can be removed by surgery, but often is something that can be treated by anti-inflammation medications such as steroids, including prednisone. ...Read more
37
Could you pick up arteritis removed?
Unclear question: No, arteritis can be treated but not removed. ...Read more
38
What is the definition or description of: Arteritis?
Arteritis: Arteritis is inflammation of the blood vessels or arteries. This may be triggered by viruses, medications, or by your own immune system leading to what is called an autoimmune disease. There are several different forms that mainly depends on the size of the blood vessel that is involved. There are several treatment options. This is an area of specialty handled by a rheumatologist. I am happy to do a consult if needed. ...Read more
39
I am curious about how many forms of arteritis are there?
Many: There are three main ones - takayasu's, giant cell (temporal arteritis), and polyarteritis nodosa. There are other rarer ones as well. ...Read more
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Is it possible for a teenager to have arteritis at such a young age?
Certainly: Juvenile temporal arteritis: a rare form of localized blood vessel inflammation that affects older children and young adults. The condition is harmless and any nodules that develop can be removed and do not reappear. The nodules develop in blood vessels in the temples. ...Read more
Takayasu Arteritis (Definition)
It is an inflammation of large blood vessels (e.g., aorta) ...Read more