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Doctor insights on: Paroxysmal Nocturnal Hemoglobinemia

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How can I cure paroxysmal nocturnal hemoglobinuria?

How can I cure paroxysmal nocturnal hemoglobinuria?

You can't: Anyone telling you otherwise is scamming you. It's an acquired genetic mutation. Hopefully you can manage it -- it is a difficult and dangerous disease. Learn all you can about it as you'll have choices to make. Best wishes. ...Read more

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Nocturnal (Definition)

This refers to something that ...Read more


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How can I treat paroxysmal nocturnal hemoglobinuria fast?

No easy fix: Anyone telling you otherwise is deceiving you. This is a lifelong health problem though the severity between cases is widely variable. Your physician will guide you if you need transfusion, anticoagulation and/or eculizumab. ...Read more

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Paroxysmal nocturnal hemoglobinuria: are there many symptoms?

Not always: You may not even have abnormally-colored urine in the mornings. Or you may develop anemia or have deep vein thrombi and their complications. If you have pnh, this is a management problem for you with your hematologist, and you'll do best to learn as much as you can about it. ...Read more

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Waking up breathless once every week or two. Not sure whats wrong. How often is shortness of breath seen in patients with paroxysmal nocturnal dyspnea?

Waking up breathless once every week or two. Not sure whats wrong. How often is shortness of breath seen in patients with paroxysmal nocturnal dyspnea?

Waking up breathless: PND is a specific symptom complex indicative of very bad illness, not all nocturnal breathlessness is PND ;this has to be evaluated promptly as to cause. ...Read more

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Paroxymal nocturnal hemaglobinuia means what?

Paroxymal nocturnal hemaglobinuia means what?

It is a disease ...: It is rare type of blood disorder where the red blood cells(rbc) are not healthy and are prone to intermittent hemolysis(breakdown of rbcs). It often shows up as dark(brown) colored urine especailly when you wake after nights sleep ...Read more

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What are symptoms of paroxymal nocturnal dyspnea and can you die from it?

What are symptoms of paroxymal nocturnal dyspnea and can you die from it?

PND: Is the need to suddenly sit up due to shortness of breath after being asleep or lying down for a while. It can be a symptom of decompensated heart failure. If PND is truly happening, you should get your physician involved or go to an emergency room. ...Read more

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What is familial paroxysmal polyserositis?

What is familial paroxysmal polyserositis?

Familial Mediterrane: This is more commonly known as Familial Mediterranean Fever. This is a genetic illness, commonly found in people who lived around the Mediterranean that is inflammatory and causes a variety of symptoms with a fever and attacks of abdomenal pain, joint attacks, chest pain, muscle aches, skin rashes. Your physicians can help clarify how it affects you. ...Read more

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Whats paroxysmal cough?

Whats paroxysmal cough?

Cough: Uncontrollable outburst of cough; it can be seen in pertussis. ...Read more

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What is paroxysmal dystonia?

What is paroxysmal dystonia?

Paroxysmal dystonia: is muscle spasms and abnormal body movements that only happen at specific moments of the body. Paroxysmal dystonias do not affect the mind or the senses. ...Read more

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How do I treat benign paroxysmal positional vertigo?

How do I treat benign paroxysmal positional vertigo?

Epley Maneuvers: First make sure that your physician really thinks you have bppv. If so, then you may try the epley maneuvers. You can find online videos that show you how to correctly perform these. Sometimes we use medications to help with symptoms. Lastly, seeing an ENT and going through vestibular rehabilitation may help. Good luck. ...Read more