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Doctor insights on: Paroxysmal Hemicrania

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Hi! Do you know anyways to get relief from paroxysmal hemicrania?

Hi! Do you know anyways to get relief from paroxysmal hemicrania?

Specific treatments: There are specific therapies associated with PH - however, they need to be administered judiciously. A neurologist would be the best person to speak with and follow you if this is your diagnosis. ...Read more

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What is the process of being dx with paroxysmal hemicrania? Is it a complicated diagnosis or is recognizable?

What is the process of being dx with paroxysmal hemicrania? Is it a complicated diagnosis or is recognizable?

Rare conditions: Paroxysmal Hemicrania is a rare condition. However, it should be recognizable to a neurologist. The process of being diagnosed would be if one's symptoms matched the disease state, clawlike headaches radiating to the back of the neck, associated with nasal congestion and sometimes ptosis. This type of headache is a "zebra" because other types of headache are more common.http://tinyurl.com/5had5z ...Read more

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Possible paroxysmal hemicrania not responding to any medication after 8 months. Started getting worse. Should I get more scans/tests?

Possible paroxysmal hemicrania not responding to any medication after 8 months. Started getting worse. Should I get more scans/tests?

Headache: Are you seeing a headache specialist or neurologist? If not,get a consultation at a headache clinic and appropriate tests will be done in order to make a diagnosis and get you proper treatment. ...Read more

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What should I know about cph - chronic paroxysmal hemicrania?

What should I know about cph - chronic paroxysmal hemicrania?

Tough to treat: This can be quite debilitating to some, but many treatments are avaiable. Indocin belongs to the antiinflammatory meds and it is often first choice, but does not work for everyone. There are other classes/meds used for this: calcium chanel blockers (i.E verapamil), steroids (prednisone), acetazolamide, and topamax (topiramate) have been used successfully in many patients. So, consult doc. Good luck. ...Read more

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What surgical or alternative (not drugs) treatments are available for chronic paroxysmal hemicrania?

What surgical or alternative (not drugs) treatments are available for chronic paroxysmal hemicrania?

Want surgery?: There is NO surgery that is beneficial. Drugs such as Indocin, (indomethacin) Lithium, even Naproxen might be useful. OTC includes butterbur, feverfew, magnesium, riboflavin, CoQ-10. Did you see a doctor and discuss this? ...Read more

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Can someone please explain to me what Benign Paroxysmal Hemicrania is exactly? I get bad migraines that ONLY respond to Toradol in ER or Indomethacin

Hemicrania: Hemicrania is a form of headache that is similar to migraine and cluster headaches. It normally occurs on one side, and there may be tears, a stuffy nose, or eyelid changes. It responds to indomethacin, normally the other two kinds of headaches do not. http://www.ninds.nih.gov/disorders/hemicrania_continua/hemicrania_continua.htm ...Read more

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How do doctors diagnosis Paroxysmal Hemicrania? Like how what are the characteristics of these type of headaches? Sorry for so many headache questions trying get to the bottom of what's wrong with me.

How do doctors diagnosis Paroxysmal Hemicrania? Like how what are the characteristics of these type of headaches? Sorry for so many headache questions trying get to the bottom of what's wrong with me.

Well...: The best way to diagnose such a condition is through a good history and physical by your doctor/neurologist. There is no specific blood test per se but the absence of other findings on CT/MRI/LP for a continuous unilateral headache 3 months or longer with response to NSAID's with or without other associated symptoms not typical of migrainous headaches should make the diagnosis. Best wishes!! ...Read more

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If Idomethacin is such a dangerous drug, why do Dr.'s still prescribe it? Is there something better? I'm diagnosed with Hemicrania Continua.

Indomethacin is KING: DANGEROUS-strong word. Most significant GI side effects are GI which is why 20% of patients with side effects stop drug due to side effects of a GI nature. It's the BEST drug available to treat HC. Response to the drug is often diagnostic of the headache. BUT, recent studies suggest BOTOX MAY be good option. Wanna Chat? www.healthtap.com/drsaghafi Use Key Code: PDXFNR P.S. Your doc sure it's HC? ...Read more

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Diagnosed with hemicrania continua.Indomethacin is not working.What next?

Hemicrania continua: How much indomethacin have you tried? If you gave it a try, perhaps a prevention medicine, such as amitriptyline, would help you. http://www.ninds.nih.gov/disorders/hemicrania_continua/hemicrania_continua.htm ...Read more

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With hemicrania continua, is there anything that can be done medically/surgically or just with indomethacin and other drugs?

With hemicrania continua, is there anything that can be done medically/surgically or just with indomethacin and other drugs?

See below: Indomethacin is the best medication. For those that can't tolerate it Celexa (citalopram) has been helpful. Tricyclic antidepressants have also been used.Other medications with case reports of efficacy include melatonin, topiramate, verapamil and gabapentin. Radio frequency ablation of supraorbital branch of trigeminal N, Botox, and deep brain stimulation have been used. ...Read more

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Indomethacin for hemicrania continua. Based on 1 week of use, one 25mg pill kills pain for near 24hrs. Ok to use it this way rather than 3x day as rx.

Hemicrania continua: is an indomethacin-responsive headache disorder. The appropriate dose will vary among patients. The initial dose is that dose which results in resolution of headache, and in your case 25 mg. However, always ask your doctor for more information about your individual situation. ...Read more

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Can cold weather bring on Hemicrania Continua?

Not typically: Although stress is thought to be a trigger one could make a case for the stress of cold weather but it has not been definitively proven to be a known trigger. If one has the diagnosis of hemicrania continua, indomethacin treatment should be started. ...Read more

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What is hemicrania continua? If indocin (indomethacin) does not relieve the pain, do I have any other options?

What is hemicrania continua? If indocin (indomethacin) does not relieve the pain, do I have any other options?

1-sided headache : Hemicrania = headache on one side; continua means prolonged/continuous pain. Indocin belongs to the antiinflammatory meds and it is often first choice, but does not work for everyone. There are other classes used for this: calcium chanel blockers (i.E verapamil), steroids (prednisone), acetazolamide, and topamax (topiramate) have been used successfully in many patients. So, consult doc. Good luck. ...Read more

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Dr suspects Hemicrania Contiinua but mri came back clean. I'm currently on Idomethacain yet still have headache in same spot off/on for over a year.

Dr suspects Hemicrania Contiinua but mri came back clean. I'm currently on Idomethacain yet still have headache in same spot off/on for over a year.

HC: Often headache MDs use indomethacin as a tool to identify if a constant unilateral head pain is hemicrania continua/other trigeminal autonomic cephalgia... I assume you have expressed the lack of effectiveness of the medication to your physician, as most MDs do not keep pts on indomethacin. Other causes are possible... ...Read more

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Can i take topamax (topiramate) (50mg) for two weeks safely to assist weight loss. Was prescribed for my hemicrania but i disliked side effects with long term use.

Can i take topamax (topiramate) (50mg) for two weeks safely to assist weight loss. Was prescribed for my hemicrania but i disliked side effects with long term use.

Safe- will it work?: It is safe to use topamax (topiramate) for this, but it is not helpful for most people for weight loss. It is better as a preventer for seizures or headaches. ...Read more

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My doc believes I have Hemicrania Continua. What is that. He has me on indomethacin. How safe is this drug. I go for an MRI.

Continuous headache: Hemicrania continua is a continuous (or very persistent) headache that affects only one side of the head (right or left) usually towards the temple. If this is your first time experiencing these symptoms, if there are other neurologic symptoms (vision problems, tingling, weakness, etc), or if its the "worst headache of your life", the imaging my be appropriate, though chances are it'll show nothin ...Read more

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I've had a never ending migraine head ache for about 7 years now and it hasn't ended. I think it might be hemicrania continua what do you think?

I've had a never ending migraine head ache for about 7 years now and it hasn't ended. I think it might be hemicrania continua what do you think?

Hemicrania : See a neurologist. Hemicrania is one sided headache which is there 24 x7. There may be intermittent worsening with tearing, redness in eye or congestion. It response to indomethacin, migraine are also one sided, but there are generally intermittent, though chronic migraines can be there all the time. ...Read more

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If my brain MRI came back clean, YAY,can it still be Hemicrania Continua like Dr may still suspect or could it be coming from my neck. Have bone spurs?

If my brain MRI came back clean, YAY,can it still be Hemicrania Continua like Dr may still suspect or could it be coming from my neck. Have bone spurs?

Hemicrania Continua: Karen, bone spurs usually causes pinched nerve and other symptoms more then headache. Doctors consider a diagnosis of hemicrania continua if the pain has been present, without switching sides or disappearing even briefly, for at least three months. Doctors consider it a telltale sign of hemicrania continua if the headaches go away after a dose of the nsaid such as motrin or ibuprofen. ...Read more