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Doctor insights on: Paroxysmal Hemicrania

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What is the process of being dx with paroxysmal hemicrania? Is it a complicated diagnosis or is recognizable?

What is the process of being dx with paroxysmal hemicrania? Is it a complicated diagnosis or is recognizable?

Rare conditions: Paroxysmal Hemicrania is a rare condition. However, it should be recognizable to a neurologist. The process of being diagnosed would be if one's symptoms matched the disease state, clawlike headaches radiating to the back of the neck, associated with nasal congestion and sometimes ptosis. This type of headache is a "zebra" because other types of headache are more common.http://tinyurl.com/5had5z ...Read more

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Possible paroxysmal hemicrania not responding to any medication after 8 months. Started getting worse. Should I get more scans/tests?

Possible paroxysmal hemicrania not responding to any medication after 8 months. Started getting worse. Should I get more scans/tests?

Headache: Are you seeing a headache specialist or neurologist? If not,get a consultation at a headache clinic and appropriate tests will be done in order to make a diagnosis and get you proper treatment. ...Read more

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What should I know about cph - chronic paroxysmal hemicrania?

What should I know about cph - chronic paroxysmal hemicrania?

Tough to treat: This can be quite debilitating to some, but many treatments are avaiable. Indocin belongs to the antiinflammatory meds and it is often first choice, but does not work for everyone. There are other classes/meds used for this: calcium chanel blockers (i.E verapamil), steroids (prednisone), acetazolamide, and topamax (topiramate) have been used successfully in many patients. So, consult doc. Good luck. ...Read more

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What surgical or alternative (not drugs) treatments are available for chronic paroxysmal hemicrania?

What surgical or alternative (not drugs) treatments are available for chronic paroxysmal hemicrania?

Want surgery?: There is NO surgery that is beneficial. Drugs such as Indocin, (indomethacin) Lithium, even Naproxen might be useful. OTC includes butterbur, feverfew, magnesium, riboflavin, CoQ-10. Did you see a doctor and discuss this? ...Read more

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Can someone please explain to me what Benign Paroxysmal Hemicrania is exactly? I get bad migraines that ONLY respond to Toradol in ER or Indomethacin

Hemicrania: Hemicrania is a form of headache that is similar to migraine and cluster headaches. It normally occurs on one side, and there may be tears, a stuffy nose, or eyelid changes. It responds to indomethacin, normally the other two kinds of headaches do not. http://www.ninds.nih.gov/disorders/hemicrania_continua/hemicrania_continua.htm ...Read more

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How do doctors diagnosis Paroxysmal Hemicrania? Like how what are the characteristics of these type of headaches? Sorry for so many headache questions trying get to the bottom of what's wrong with me.

How do doctors diagnosis Paroxysmal Hemicrania? Like how what are the characteristics of these type of headaches? Sorry for so many headache questions trying get to the bottom of what's wrong with me.

Well...: The best way to diagnose such a condition is through a good history and physical by your doctor/neurologist. There is no specific blood test per se but the absence of other findings on CT/MRI/LP for a continuous unilateral headache 3 months or longer with response to NSAID's with or without other associated symptoms not typical of migrainous headaches should make the diagnosis. Best wishes!! ...Read more

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If Idomethacin is such a dangerous drug, why do Dr.'s still prescribe it? Is there something better? I'm diagnosed with Hemicrania Continua.

Indomethacin is KING: DANGEROUS-strong word. Most significant GI side effects are GI which is why 20% of patients with side effects stop drug due to side effects of a GI nature. It's the BEST drug available to treat HC. Response to the drug is often diagnostic of the headache. BUT, recent studies suggest BOTOX MAY be good option. Wanna Chat? www.healthtap.com/drsaghafi Use Key Code: PDXFNR P.S. Your doc sure it's HC? ...Read more

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Diagnosed with hemicrania continua.Indomethacin is not working.What next?

Hemicrania continua: How much indomethacin have you tried? If you gave it a try, perhaps a prevention medicine, such as amitriptyline, would help you. http://www.ninds.nih.gov/disorders/hemicrania_continua/hemicrania_continua.htm ...Read more

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With hemicrania continua, is there anything that can be done medically/surgically or just with indomethacin and other drugs?

With hemicrania continua, is there anything that can be done medically/surgically or just with indomethacin and other drugs?

See below: Indomethacin is the best medication. For those that can't tolerate it Celexa (citalopram) has been helpful. Tricyclic antidepressants have also been used.Other medications with case reports of efficacy include melatonin, topiramate, verapamil and gabapentin. Radio frequency ablation of supraorbital branch of trigeminal N, Botox, and deep brain stimulation have been used. ...Read more