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Doctor insights on: Parkinsons Disease Support Groups

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What are some mitochondrial disorder support groups in existence?

What are some mitochondrial disorder support groups in existence?

Look online: Since mitochondrial disorders are still considered rare disease entities, support groups at a local level would be very dificult to find. I suggest you go online to some of the big centers in the us who deal with the diagnosis and treatment of these disorders (ie. Children's hospital of philidelphia, cleveland clinic) and see if they have online support groups and parental geoups. ...Read more

Dr. Jeffrey Roth
312 doctors shared insights

Support Groups (Definition)

For information, resources, and support on specific diseases and conditions, see the links below. Additional local and national support groups can be found on the web, through local libraries, your health care provider, and the yellow pages ...Read more


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Are there support groups for pick's disease?

Are there support groups for pick's disease?

See below: These websites below might serve as a starting point. Good luck! http://www.Ftdsg.Org/index.Htm__ http://www.Theaftd.Org/. ...Read more

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Is there a paget's disease support group online?

Is there a paget's disease support group online?

Several: Try http://www.Experienceproject.Com/groups/have-pagets-disease-of-bone/99046.

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Does anyone know of hirschsprung disease support groups or sites?

Does anyone know of hirschsprung disease support groups or sites?

Yes: There are several. You can google hirschsprung's disease and you will be surprised. ...Read more

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Are dystonia and Parkinson's disease related?

Are dystonia and Parkinson's disease related?

Basal ganglia: The area of the brain called basal ganglia has a lot of neurotransmitters like dopamine--some parkinson pt present with dystonia---when parkinson advance and people become rigid they get to be off and on--dystonic alternate with excessive movements. ...Read more

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What are some non-medical treatments for parkinson disease dementia, coping mechanism?

What are some non-medical treatments for parkinson disease dementia, coping mechanism?

Sort Of: At this time there are no medications specifically indicated for parkinson's dementia. I have used the current medications that are used for alzheimer's dementia as these are available. Coping mechanisms are the same for all dementia. Treat the brain as though it is a muscle and keep it exercised regularly. Stimulation like reading, playing cards, puzzles, and games. Also, physical exercise. ...Read more

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Are there support groups for people with pancreatic cancer?

Are there support groups for people with pancreatic cancer?

PANCAN: The best group out there is the pancreatic cancer action network, aka pancan. Their liason program connects people with experience with pancreatic cancer with those seeking more information. www.pancan.org. ...Read more

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Could anyone recommend any 'good' support groups/websites for relatives of sufferers of vascular dementia?

Could  anyone recommend any 'good' support groups/websites for relatives of sufferers of vascular dementia?

NIH and NIA: Have good websites. The Alzheimer's Association and the Alzheimer's Foundation of America also have websites and support groups depending on where you live. There are also online support groups. These groups often help families with all types of dementia. ...Read more

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Wills massage chairs help ease Parkinson's disease?

Wills massage chairs help ease Parkinson's disease?

Parkinson's disease: Although a massage chair may temporarily alleviate any muscular discomfort it has no effect in parkinson's disease progression or symptoms manifestation. However, physical therapy has been found to be effective in mobility, posture, balance and even mood. ...Read more

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Chronic pain support groups?

Chronic pain  support groups?

See below: Here are some websites. I hope you find some relief! http://www.Theacpa.Org/33/supportgroups.Aspx http://chronic-pain.Supportgroups.Com/ http://www.Dailystrength.Org/c/chronic-pain/support-group. ...Read more

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What groups of people typically get Parkinson's disease?

What groups of people typically get Parkinson's disease?

Some risk factors: Very rarely genetic in a few families, can be associated with multiple small strokes, can mostly be sporadic, seen after multiple head injuries (with/without dementia), seen after carbon monoxide poisoning, associated with manganese mining, maybe from carbon disulfide poisoning, rarely after oxygen deprivation. Most cases by far arise spontaneously, and affect males 3;1 females. ...Read more

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Are there rsd-reflex sympathetic dystrophy support groups?

Careful w groups: See my other answers on rsd, support groups can be a good way to talk to others who have the same disease as you, be careful of bias and opinions. Some groups have a group think mentality that can lock you in to a mind set and lead you away from some therapies that may completely reverse most of you pain. ...Read more

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What distinguishes Parkinson's disease from alzheimer's disease?

What distinguishes Parkinson's disease from alzheimer's disease?

Many things.: Parkinson's Disease will present with physical symptoms such as shakiness, stiffness of the limbs causing a shuffling gait, lack of facial expression causing a mask-like face and the dementia may occur later while Alzheimer's dementia starts with gradual memory problems which begin to get worse in a few years and maybe accompanied with paranoid delusions. ...Read more

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Which symptoms of Parkinson's disease will mirapex (pramipexole) help?

Which symptoms of Parkinson's disease will mirapex (pramipexole) help?

Early Parkinson's: Would use this for mild and early disease, usually, and it may help tremor, stiffness, and even gait, but likely will benefit for maximum of 2 years. Early usage may prevent later dyskinesias or at least delay need for l-dopa when disease is worse, can use for add on benefit, and may stabilize for a time. ...Read more

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Please help! what is the main difference between alzheimers' and parkinsons' disease?

Movements: Alzheimer's disease affects mainly memory and other cognitive functions. Parkinson's disease affects movements, either by tremor or by rigidity. It does not affect cognitive functions in the early stages. ...Read more

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What groups of people typically get Parkinson's disease?

Some risk factors: Very rarely genetic in a few families, can be associated with multiple small strokes, can mostly be sporadic, seen after multiple head injuries (with/without dementia), seen after carbon monoxide poisoning, associated with manganese mining, maybe from carbon disulfide poisoning, rarely after oxygen deprivation. Most cases by far arise spontaneously, and affect males 3;1 females. ...Read more

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Does Parkinson's disease affect a certain ethnic group or gender?

Does Parkinson's disease affect a certain ethnic group or gender?

No and yes: Does not seem to be much of an ethnic variation in my experience, as i seem to have equal numbers of blacks and whites suffering this disorder. However, do find discrepancies in incidence, as many sources say 500, 000 and others 1.5 million in usa. If we take the latter figure, the proportion of men to women is 3 to 1 (the reverse of ms incidence!). ...Read more

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My father is 81 and has Parkinson's disease for the last 3 years. He can't even move his hands & legs. What can I do to support him?

My father is 81 and has Parkinson's disease for the last 3 years. He can't even move his hands & legs. What can I do to support him?

Hands on or w/c: At that stage a person needs hands on care to be up and around 24/7. No one likes @ institutionalize their parents, but he is very high risk to fall ad sustain major injury. He is mentally aware, as m ali, so you need @ handle with kid gloves, best @ have his md suggest it, if u can have 24/7 attention, a w/c will allow u 2 take him out and about. Can b done from home or nh. Good luck hard 2 do. ...Read more

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Why can t healthy dopaminergic neurons be moved into the area of parkinson s affected neurons to treat parkinson s disease ?

Why can t healthy dopaminergic neurons be moved into the area of parkinson s affected neurons to treat parkinson s disease ?

Not so simple: Most of the dopaminergic neurons end in the substantia nigra of the midbrain, originating in various deep brain structures. These nerves are already affected by the disease. Unaffected nerves of course still remain but remain connected to brainstem. So outside nerve cells (from another source like stem cells are needed) nerves don't like to be moved around anyway, because they often die. ...Read more

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I had parkinson disease for 12 years now. With my daily medication no one will know I have this ailment. Wouldn't my age 62 cause it to be worse?

Not necessarily: Congratulations on having a medication regimen that keeps the disease in check. Parkinson diseae affects different people differently; be happy you have control right now! ...Read more

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My husband has Parkinson's disease he is not feeling well i'd like to know if there is a Parkinson's doctor?

My husband has Parkinson's disease he is not feeling well i'd like to know if there is a Parkinson's doctor?

Parkinson's : Yes there is. A neurologist is the kind of physician who works with parkinson's disease. There are some neurologist who have special interest or additional training in movement disorders. Most of them practice in large academic centers, university hospitals or large cities. This special interest makes a difference as the condition becomes more complex and hard to manage with further progression. ...Read more

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How can I cope with Parkinson's disease?

How can I cope with Parkinson's disease?

Control what u can: Though there is no cure for patkinson's, strategies such as medications and remaining active (especially lots of walking, yoga, tai chi, etc) can help ameliorate symptoms, delay developing disability, and some meds (azilect) and exercise may even slow down the disease. Sometimes a support group can help. Also make sure your doctor addresses common non-movement issues in pd like depression. ...Read more

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What drugs help with Parkinson's disease?

What drugs help with Parkinson's disease?

Several: The mainstays of parkinsons treatment are Dopamine agonists such as Requip and the drug l-dopa (sinemet). Others include comtan, (entacapone) amantadine, selegeline, cogentin. Even ECT can be used in severe cases and there is also experimental surgery. Talk to your neurologist to see what is right for you or your loved one. ...Read more

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How fast does Parkinson's disease progress?

Slowly: Once the diagnosis is made, the initial problems can be handled with Dopamine agonists and seem stable for 1-2 yrs, but then the progression requires l-dopa, which may help nicely for about 6-8 yrs, during which time additional meds may be added. By 10-12 yrs the medications are sharply losing efficacy, and the next step may require use of a deep brain stimulator device. ...Read more

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Who is most affected by Parkinson's disease?

Who is most affected by Parkinson's disease?

Older males: Typically, there are about 3 times as many males as females, but not fully clear why there is this predilection. Usually a disease presenting in the 60's and 70's, but younger patients can be seen. There may be a higher frequency in Caucasians. ...Read more

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What can be done to cure Parkinson's disease?

No cure, treatments: Unfortunately there is no cure for parkonson's disease. There are many different medicines available which help the underlying pathology, which is a shortage of Dopamine (and other neurotransmitters). We also know that regular vigorous exercise is helpful. There is a surgical procedure that in the right patient can help symptoms. ...Read more

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How can Parkinson's disease affect your life?

How can Parkinson's disease affect your life?

Progressive dz: Parkinsons is a progressive dz. Its initially controlled with medications like levodopaand Dopamine agonists. Eventually they lose their effectiveness.And can cause invoulentary movements called dyskensia.Rehab diet and execise can alleviate some symptoms early on. Research to a cure is ongoing. ...Read more

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What can be initial symptoms of Parkinson's disease?

What can be initial symptoms of Parkinson's disease?

Several Things: Before overt physical symptoms begin, one can experience pre-motor parkinson's issues: the most reliably reported 4 are chronic constipation, chronic depression, anosmia (part or complete loss of smell--which also effects taste appreciation) & rbd. Rbd stands for rem behavior disorder. Rem (dreaming stage sleep) can be accompanied by acting-out of dreams: talking, kicking, punching, running, etc. ...Read more

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What are the common symptoms of Parkinson's disease?

What are the common symptoms of Parkinson's disease?

Here's a Brief list: Physical symptoms can include tremor of limbs at rest>in posture or in action; slow movements & stiff (rigid) muscles causing quiet facial emotions, softer voice, bent forward head & neck posture, decreased arm swing, slow-shuffled walk, small/scratchy penmanship, etc. Non-physical symptoms can include cognitive decline, depression, anxiety, sleepiness, constipation, ed, low bp, acting-out dreams. ...Read more

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Are there any young people with Parkinson's disease?

Are there any young people with Parkinson's disease?

Yes, Absolutely :(: Unfortunately, approximately 20% of pd patients are early-onset, meaning symptoms began at < 45years old. I have 2 patients who even started exhibiting symptoms in their late 20's. The earlier the disease begins & the more people athe family affected, raises our suspicion that genetics play a significant role. For reference, average age of onset is 58. Or, pd can come as late as 80. ...Read more

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Should I still go to work if I have Parkinson's disease?

Depends upon severit: Depending how disable you are ( severity of symptoms)for the type of work you do. ...Read more

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