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Doctor insights on: Parkinson S Support Groups

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What are some mitochondrial disorder support groups in existence?

What are some mitochondrial disorder support groups in existence?

Look online: Since mitochondrial disorders are still considered rare disease entities, support groups at a local level would be very dificult to find. I suggest you go online to some of the big centers in the us who deal with the diagnosis and treatment of these disorders (ie. Children's hospital of philidelphia, cleveland clinic) and see if they have online support groups and parental geoups. ...Read more

Dr. Jeffrey Roth
312 doctors shared insights

Support Groups (Definition)

For information, resources, and support on specific diseases and conditions, see the links below. Additional local and national support groups can be found on the web, through local libraries, your health care provider, and the yellow pages ...Read more


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Is there a paget's disease support group online?

Is there a paget's disease support group online?

Several: Try http://www.Experienceproject.Com/groups/have-pagets-disease-of-bone/99046.

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Are there rsd-reflex sympathetic dystrophy support groups?

Careful w groups: See my other answers on rsd, support groups can be a good way to talk to others who have the same disease as you, be careful of bias and opinions. Some groups have a group think mentality that can lock you in to a mind set and lead you away from some therapies that may completely reverse most of you pain. ...Read more

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What's the focus of support groups for edward's syndrome?

What's the focus of support groups for edward's syndrome?

Trisomy 18 Support: Edward's syndrome is the result of a chromosome abnormality, namely trisomy 18. Support groups include resources and emotional support. Visit the trisomy 18 foundation for assistance. ...Read more

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Know of enucleation online support groups?

Ocularist: An artificial eye maker is termed ocularist. They would have contact with enucleation support groups so ask you eye maker about this. ...Read more

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Are there support groups for pick's disease?

See below: These websites below might serve as a starting point. Good luck! http://www.Ftdsg.Org/index.Htm__ http://www.Theaftd.Org/. ...Read more

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What are some reputable support groups for incest survivors?

Two 12 Step groups: You might want to consider attending a meeting of survivors of incest anonymous (sia) and/or incest survivors anonymous (isa) the most important difference is that anyone who has been a perpetrator is asked not to attend isa even if the perpetrator was also a victim of incest. ...Read more

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Does anyone know of hirschsprung disease support groups or sites?

Does anyone know of hirschsprung disease support groups or sites?

Yes: There are several. You can google hirschsprung's disease and you will be surprised. ...Read more

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Is there support groups for anxiety. And depression. In chicago ill?

Is there support groups for anxiety. And depression. In chicago ill?

Sure there are: Chicago's a big town with lots if resources. I would go online to the site for: nami, which is the national alliance for the mentally ill, to see if there is a group they can recommend you attend. Also, most community mental health centers offer group therapy. Good luck. ...Read more

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Could anyone recommend any 'good' support groups/websites for relatives of sufferers of vascular dementia?

Could  anyone recommend any 'good' support groups/websites for relatives of sufferers of vascular dementia?

NIH and NIA: Have good websites. The Alzheimer's Association and the Alzheimer's Foundation of America also have websites and support groups depending on where you live. There are also online support groups. These groups often help families with all types of dementia. ...Read more

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Is contracting and living with Lewy bodies dementia (alzheimers) terminal?

Is contracting and living with Lewy bodies dementia (alzheimers) terminal?

Eventually, yes: Lbd is not the same as alzheimers. However, there also is no cure, and it is progressive - either slow or rapid. So, it is terminal but an average life expectancy after DX is 5-7 yrs. The worst of it is that the symptoms are quite difficult to manage and few families can avoid residential care. Here's a link: http://www.Lbda.Org/content/role-palliative-and-hospice-care-in-lbd. Hope you find help! ...Read more

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Are there support groups for people with tinnitus?

Are there support groups for people with tinnitus?

Yes, Brookline is : close to many. See the American Tinnitus Association, www.ata.org/support. Clinics include Beth Israel Deaconess Medical Center, www.bidmc.org/YourHealth/Conditions-AZ.aspx?ChunkID=11504, Mass. Eye & Ear, www.masseyeandear.org/for-patients/patient-guide/patient-education/diseases-and-conditions/tinnitus/ & Mario Hearing Clinics, www.mariohearingclinics.com/tinnitus-retraining-therapy. ...Read more

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What are some less religious family support groups for loved ones with drug addiction?

12 steps: I love 12 step programs - the neutral one is positive anonymous 12 step program - any 12 step program would work. ...Read more

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Are there support groups for people with pancreatic cancer?

Are there support groups for people with pancreatic cancer?

PANCAN: The best group out there is the pancreatic cancer action network, aka pancan. Their liason program connects people with experience with pancreatic cancer with those seeking more information. www.pancan.org. ...Read more

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Are there support groups for blind vets?

Are there support groups for blind vets?

Yes: Check with your va and with the organization 'disabled american veterans' for help and support. Your local organizations for the blind and poorly sighted can also help. ...Read more

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Is there any programs aimed at elders to rehabilitate dementia, Alzheimer's etc?

Is there any programs aimed at elders to rehabilitate dementia, Alzheimer's etc?

Few: There are some programs that claim that they can improve cognitive function of persons with dementia but they have not been proven to be effective. ...Read more

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Is there a support group for children of drug-addicted parents?

Is there a support group for children of drug-addicted parents?

Yes: If either parent uses alcohol, the most well developed support group for this purpose is al-anon. If the addiction is to drugs, and no alcohol is involved, the less well developed support group nar-anon would be the best choice. If nar-anon is not available, codependents anonymous would also be useful. ...Read more