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Doctor insights on: Parkinson S Disease Support Groups

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Is there a paget's disease support group online?

Is there a paget's disease support group online?

Several: Try http://www.Experienceproject.Com/groups/have-pagets-disease-of-bone/99046.

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Dr. Jeffrey Roth
313 doctors shared insights

Support Groups (Definition)

For information, resources, and support on specific diseases and conditions, see the links below. Additional local and national support groups can be found on the web, through local libraries, your health care provider, and the yellow pages ...Read more


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Does anyone know of hirschsprung disease support groups or sites?

Does anyone know of hirschsprung disease support groups or sites?

Yes: There are several. You can google hirschsprung's disease and you will be surprised. ...Read more

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What are some mitochondrial disorder support groups in existence?

What are some mitochondrial disorder support groups in existence?

Look online: Since mitochondrial disorders are still considered rare disease entities, support groups at a local level would be very dificult to find. I suggest you go online to some of the big centers in the us who deal with the diagnosis and treatment of these disorders (ie. Children's hospital of philidelphia, cleveland clinic) and see if they have online support groups and parental geoups. ...Read more

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Are there support groups for pick's disease?

Are there support groups for pick's disease?

See below: These websites below might serve as a starting point. Good luck! http://www.Ftdsg.Org/index.Htm__ http://www.Theaftd.Org/. ...Read more

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Is contracting and living with Lewy bodies dementia (alzheimers) terminal?

Is contracting and living with Lewy bodies dementia (alzheimers) terminal?

Eventually, yes: Lbd is not the same as alzheimers. However, there also is no cure, and it is progressive - either slow or rapid. So, it is terminal but an average life expectancy after DX is 5-7 yrs. The worst of it is that the symptoms are quite difficult to manage and few families can avoid residential care. Here's a link: http://www.Lbda.Org/content/role-palliative-and-hospice-care-in-lbd. Hope you find help! ...Read more

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What are some non-medical treatments for parkinson disease dementia, coping mechanism?

What are some non-medical treatments for parkinson disease dementia, coping mechanism?

Sort Of: At this time there are no medications specifically indicated for parkinson's dementia. I have used the current medications that are used for alzheimer's dementia as these are available. Coping mechanisms are the same for all dementia. Treat the brain as though it is a muscle and keep it exercised regularly. Stimulation like reading, playing cards, puzzles, and games. Also, physical exercise. ...Read more

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Is alzheimer's disease a hereditary trait in extended families?

Is alzheimer's disease a hereditary trait in extended families?

Yes it can: There are some rare families where 50% of the members inherit a bad gene and develop alzheimer's disease. Very often, they develop the disease in relatively early age. ...Read more

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What groups of people typically get Parkinson's disease?

What groups of people typically get Parkinson's disease?

Some risk factors: Very rarely genetic in a few families, can be associated with multiple small strokes, can mostly be sporadic, seen after multiple head injuries (with/without dementia), seen after carbon monoxide poisoning, associated with manganese mining, maybe from carbon disulfide poisoning, rarely after oxygen deprivation. Most cases by far arise spontaneously, and affect males 3;1 females. ...Read more

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What distinguishes Parkinson's disease from alzheimer's disease?

What distinguishes Parkinson's disease from alzheimer's disease?

Many things.: Parkinson's Disease will present with physical symptoms such as shakiness, stiffness of the limbs causing a shuffling gait, lack of facial expression causing a mask-like face and the dementia may occur later while Alzheimer's dementia starts with gradual memory problems which begin to get worse in a few years and maybe accompanied with paranoid delusions. ...Read more

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What meds help with aggression in huntingtons disease patients?

What meds help with aggression in huntingtons disease patients?

Anticonvulsants: Anticonvusants are effective in treating aggression in a variety of disorders, including irritable mania, epilepsy, dementia and in individuals who have experienced head trauma. Because huntingtons is a neurodegenerative disorder, there is extremely abnormal brain electrical activity. Valproate or Carbamazepine may be effective if there are no other contraindications. ...Read more

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Dr. John Oro Dr. Oro
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What is ALS ( lou gehrigs disease )?

Dr. John Oro Dr. Oro
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What is ALS ( lou gehrigs disease )?

Paralysis of muscles: Lou gehrig's disease is also known as amyotrophic lateral sclerosis. The disease attacks nerve cells in the brain and spinal cord that run the muscles that we can normally control. The cause of the disease is not known. In about 10% it is genetic. People with lou gehrig's disease slowly become weak in the arms and legs, and can have difficulty speaking, swallowing, and breathing. ...Read more

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How is Parkinson's disease inherited?

How is Parkinson's disease inherited?

Mostly not inherited: The vast majority of people with parkinson's seem to get it sporadically, that is without any clear inheritance from family. That being said, we've found around 12 genetic variants that seem to greatly increase the risk of developing pd in some families. Some of them are recessive (rarely crops up), and some are dominant (50% chance of getting it from 1 affected parent). ...Read more

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Is parkinson’s disease hereditary?

Yes: Although the causes are multifactorial and sometimes poorly understood, there is a hereditary component. Keep in mind, that even though a parent may have it, it does not mean that it will be necessarily passed on. The tendency, however, may be there. ...Read more

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Are dystonia and Parkinson's disease related?

Are dystonia and Parkinson's disease related?

Basal ganglia: The area of the brain called basal ganglia has a lot of neurotransmitters like dopamine--some parkinson pt present with dystonia---when parkinson advance and people become rigid they get to be off and on--dystonic alternate with excessive movements. ...Read more

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Why can t healthy dopaminergic neurons be moved into the area of parkinson s affected neurons to treat parkinson s disease ?

Why can t healthy dopaminergic neurons be moved into the area of parkinson s affected neurons to treat parkinson s disease ?

Not so simple: Most of the dopaminergic neurons end in the substantia nigra of the midbrain, originating in various deep brain structures. These nerves are already affected by the disease. Unaffected nerves of course still remain but remain connected to brainstem. So outside nerve cells (from another source like stem cells are needed) nerves don't like to be moved around anyway, because they often die. ...Read more

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Is Parkinson's disease hereditary?

Is Parkinson's disease hereditary?

A bit: There are some hereditary factors but they are seemingly minor. If you have a first-degree relative with parkinson’s disease you are more likely to get it, but the risk is small (< 5 % according to mayo clinic reports). It can run very strongly in some families in rare situations of abnormalities of alpha-synuclein synthesis or protein disposal problems. ...Read more

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