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Doctor insights on: Parkinson Disease Support Groups

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What are some mitochondrial disorder support groups in existence?

What are some mitochondrial disorder support groups in existence?

Look online: Since mitochondrial disorders are still considered rare disease entities, support groups at a local level would be very dificult to find. I suggest you go online to some of the big centers in the us who deal with the diagnosis and treatment of these disorders (ie. Children's hospital of philidelphia, cleveland clinic) and see if they have online support groups and parental geoups. ...Read more

Dr. Jeffrey Roth
312 doctors shared insights

Support Groups (Definition)

For information, resources, and support on specific diseases and conditions, see the links below. Additional local and national support groups can be found on the web, through local libraries, your health care provider, and the yellow pages ...Read more


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Are there support groups for pick's disease?

Are there support groups for pick's disease?

See below: These websites below might serve as a starting point. Good luck! http://www.Ftdsg.Org/index.Htm__ http://www.Theaftd.Org/. ...Read more

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Is there a paget's disease support group online?

Is there a paget's disease support group online?

Several: Try http://www.Experienceproject.Com/groups/have-pagets-disease-of-bone/99046.

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Does anyone know of hirschsprung disease support groups or sites?

Does anyone know of hirschsprung disease support groups or sites?

Yes: There are several. You can google hirschsprung's disease and you will be surprised. ...Read more

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What are some non-medical treatments for parkinson disease dementia, coping mechanism?

What are some non-medical treatments for parkinson disease dementia, coping mechanism?

Sort Of: At this time there are no medications specifically indicated for parkinson's dementia. I have used the current medications that are used for alzheimer's dementia as these are available. Coping mechanisms are the same for all dementia. Treat the brain as though it is a muscle and keep it exercised regularly. Stimulation like reading, playing cards, puzzles, and games. Also, physical exercise. ...Read more

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Are dystonia and Parkinson's disease related?

Are dystonia and Parkinson's disease related?

Basal ganglia: The area of the brain called basal ganglia has a lot of neurotransmitters like dopamine--some parkinson pt present with dystonia---when parkinson advance and people become rigid they get to be off and on--dystonic alternate with excessive movements. ...Read more

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Are there support groups for people with pancreatic cancer?

Are there support groups for people with pancreatic cancer?

PANCAN: The best group out there is the pancreatic cancer action network, aka pancan. Their liason program connects people with experience with pancreatic cancer with those seeking more information. www.pancan.org. ...Read more

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Could anyone recommend any 'good' support groups/websites for relatives of sufferers of vascular dementia?

Could  anyone recommend any 'good' support groups/websites for relatives of sufferers of vascular dementia?

NIH and NIA: Have good websites. The Alzheimer's Association and the Alzheimer's Foundation of America also have websites and support groups depending on where you live. There are also online support groups. These groups often help families with all types of dementia. ...Read more

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What groups of people typically get Parkinson's disease?

What groups of people typically get Parkinson's disease?

Some risk factors: Very rarely genetic in a few families, can be associated with multiple small strokes, can mostly be sporadic, seen after multiple head injuries (with/without dementia), seen after carbon monoxide poisoning, associated with manganese mining, maybe from carbon disulfide poisoning, rarely after oxygen deprivation. Most cases by far arise spontaneously, and affect males 3;1 females. ...Read more

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What distinguishes Parkinson's disease from alzheimer's disease?

What distinguishes Parkinson's disease from alzheimer's disease?

Many things.: Parkinson's Disease will present with physical symptoms such as shakiness, stiffness of the limbs causing a shuffling gait, lack of facial expression causing a mask-like face and the dementia may occur later while Alzheimer's dementia starts with gradual memory problems which begin to get worse in a few years and maybe accompanied with paranoid delusions. ...Read more

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Wills massage chairs help ease Parkinson's disease?

Wills massage chairs help ease Parkinson's disease?

Parkinson's disease: Although a massage chair may temporarily alleviate any muscular discomfort it has no effect in parkinson's disease progression or symptoms manifestation. However, physical therapy has been found to be effective in mobility, posture, balance and even mood. ...Read more

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Are there rsd-reflex sympathetic dystrophy support groups?

Careful w groups: See my other answers on rsd, support groups can be a good way to talk to others who have the same disease as you, be careful of bias and opinions. Some groups have a group think mentality that can lock you in to a mind set and lead you away from some therapies that may completely reverse most of you pain. ...Read more

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Which symptoms of Parkinson's disease will mirapex (pramipexole) help?

Which symptoms of Parkinson's disease will mirapex (pramipexole) help?

Early Parkinson's: Would use this for mild and early disease, usually, and it may help tremor, stiffness, and even gait, but likely will benefit for maximum of 2 years. Early usage may prevent later dyskinesias or at least delay need for l-dopa when disease is worse, can use for add on benefit, and may stabilize for a time. ...Read more

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What meds help with aggression in huntingtons disease patients?

What meds help with aggression in huntingtons disease patients?

Anticonvulsants: Anticonvusants are effective in treating aggression in a variety of disorders, including irritable mania, epilepsy, dementia and in individuals who have experienced head trauma. Because huntingtons is a neurodegenerative disorder, there is extremely abnormal brain electrical activity. Valproate or Carbamazepine may be effective if there are no other contraindications. ...Read more

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Chronic pain support groups?

Chronic pain  support groups?

See below: Here are some websites. I hope you find some relief! http://www.Theacpa.Org/33/supportgroups.Aspx http://chronic-pain.Supportgroups.Com/ http://www.Dailystrength.Org/c/chronic-pain/support-group. ...Read more

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Is contracting and living with Lewy bodies dementia (alzheimers) terminal?

Is contracting and living with Lewy bodies dementia (alzheimers) terminal?

Eventually, yes: Lbd is not the same as alzheimers. However, there also is no cure, and it is progressive - either slow or rapid. So, it is terminal but an average life expectancy after DX is 5-7 yrs. The worst of it is that the symptoms are quite difficult to manage and few families can avoid residential care. Here's a link: http://www.Lbda.Org/content/role-palliative-and-hospice-care-in-lbd. Hope you find help! ...Read more

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Dr. Robert Hutchman
293 doctors shared insights

Parkinson Disease (Definition)

A condition in which a person has a degenerative brain problem in which dopamine-containing cells in a part of the midbrain die off. Early symptoms include shaking, rigidity, slowness of ...Read more